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      Ethical aspects of digital health from a justice point of view

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          Abstract

          Digital health is transforming healthcare systems worldwide. It promises benefits for population health but might also lead to health inequities. From an ethical perspective, it is hence much needed to adopt a fair approach. This article aims at outlining chances and challenges from an ethical perspective, focusing especially on the dimension of justice—a value, which has been described as the core value for public health. Analysed through the lenses of a standard approach for health justice—Norman Daniels’ account of just health and accountability for reasonableness—most recent and relevant literature was reviewed and challenges from a justice point of view were identified. Among them are challenges with regard to digital illiteracy, resulting inequities in access to healthcare, truthful information sharing to end users demanding fully informed consent, dignity and fairness in storage, access, sharing and ownership of data. All stakeholders involved bear responsibilities to shape digital health in an ethical and fair way. When all stakeholders, especially digital health providers and regulators, ensure that digital health interventions are designed and set up in an ethical and fair way and foster health equity for all population groups, there is a chance for this transformation resulting in a fair approach to digital health.

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          Most cited references13

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          Accountability for reasonableness.

          N Daniels (2000)
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            Digital health: meeting the ethical and policy challenges

            (2018)
            Digital health encompasses a wide range of novel digital technologies related to health and medicine. Such technologies rely on recent advances in the collection and analysis of ever increasing amounts of data from both patients and healthy citizens. Along with new opportunities, however, come new ethical and policy challenges. These range from the need to adapt current evidence-based standards, to issues of privacy, oversight, accountability and public trust as well as national and international data governance and management. This review illustrates key issues and challenges facing the rapidly unfolding digital health paradigm and reflects on the impact of big data in medical research and clinical practice both internationally and in Switzerland. It concludes by emphasising five conditions that will be crucial to fulfil in order to foster innovation and fair benefit sharing in digital health.
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              Societal and ethical issues of digitization

                Author and article information

                Journal
                Eur J Public Health
                Eur J Public Health
                eurpub
                The European Journal of Public Health
                Oxford University Press
                1101-1262
                1464-360X
                October 2019
                18 November 2019
                18 November 2019
                : 29
                : Suppl 3 , Digitalization: Potentials and Pitfalls from a Public Health Perspective
                : 18-22
                Affiliations
                [1 ] Department of Health and Technology, Health Ethics and Policy Lab , ETH Zurich, Zurich, Switzerland
                [2 ] Department of International Health, Care and Public Health Research Institute (CAPHRI), Maastricht University , Maastricht, The Netherlands
                [3 ] Section Ethics in Public Health, European Public Health Association (EUPHA)
                [4 ] Institute for Medical Education, University of Groningen, University Medical Center Groningen , Groningen, The Netherlands
                Author notes
                Correspondence: Caroline Brall, Department of Health and Technology, Health Ethics and Policy Lab, ETH Zurich, Hottingerstrasse 10, 8092 Zürich, Switzerland, Tel: +41 632 42 69, e-mail: caroline.brall@ 123456hest.ethz.ch
                Article
                ckz167
                10.1093/eurpub/ckz167
                6859518
                31738439
                b60f919d-27eb-432c-834f-d7d584b3807d
                © The Author(s) 2019. Published by Oxford University Press on behalf of the European Public Health Association.

                This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                Page count
                Pages: 5
                Categories
                Supplement Papers

                Public health
                Public health

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