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      Necessidades e papéis parentais em cuidados intensivos neonatais: revisão dos guias portugueses Translated title: Parental roles and needs in neonatal intensive care: a review of Portuguese guidelines

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          Abstract

          Resumo Pretende-se analisar as necessidades e os papéis parentais incluídos nos guias sobre Unidades de Terapia Intensiva Neonatal. Realizou-se uma análise de conteúdo temática de 33 guias (28 consensos e 5 documentos dirigidos aos pais) disponíveis em acesso livre no site da Sociedade Portuguesa de Pediatria em agosto de 2014. Estes documentos contemplam, principalmente, necessidades de informação, cuidados a prestar pelos pais e respectivas responsabilidades na tomada de decisões quanto à saúde das crianças. Características parentais e familiares foram mencionadas como fatores de risco para a prematuridade e doenças perinatais. As consequências psicossociais e a adequação das características físicas das Unidades de Terapia Intensiva Neonatal às necessidades parentais emergiram com menos frequência. Raramente se abordaram questões especificamente relacionadas com o conforto, suporte social, segurança e confiança dos pais nos serviços de saúde. Os documentos analisados refletem normas socioculturais associadas à parentalidade intensiva, centrada na criança, orientada por profissionais de saúde e altamente emotiva. Importa disseminar guias que orientem a integração de cuidados de saúde centrados na família nas dinâmicas das Unidades de Terapia Intensiva Neonatal.

          Translated abstract

          Abstract The scope of this article is to analyze the parental roles and needs included in Neonatal Intensive Care Unit guidelines. Thematic content analysis was conducted of 33 guidelines (28 consensuses and 5 documents directed to parents) freely available on the Portuguese Pediatrics Society website in August 2014. These documents deal mainly with information needs, child care activities performed by the parents and the respective responsibilities in decision making with respect to the health of children. Furthermore, parental and family characteristics were mentioned as risk factors for prematurity and perinatal diseases. The psychosocial consequences of parenthood experienced in Neonatal Intensive Care Units, as well as the adequacy of their environmental characteristics to parental needs, were less frequently touched upon. Issues related to the safety and comfort, confidence of parents in healthcare and social support were rarely touched upon. The results reflect sociocultural norms associated with intensive parenting, which is exclusively child centered, highly emotional and performed under the guidance of health professionals. The important aspect is to issue and disseminate guidelines that foster the integration of family-centered care in the dynamics of Neonatal Intensive Care Units.

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          Most cited references 74

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          Assessment of family needs in neonatal intensive care units.

           Julia Mundy (2010)
          Limited research has been conducted to assess family needs in neonatal intensive care units. Health care providers often make assumptions about what families need, but these assumptions are unfounded and can lead to inappropriate conclusions. When assessed appropriately, family needs can be incorporated into individualized plans of care, enhancing family-centered care. To assess the needs of parents in neonatal intensive care units, we asked the following 3 questions: What are the most and least important needs of families in a level III neonatal intensive care unit? Do parents' needs differ at admission and discharge? Do the needs of mothers and fathers differ? Parents were interviewed by using the Neonatal Intensive Care Unit Family Needs Inventory. Participants rated statements as not important (1), slightly important (2), important (3), very important (4), or not applicable (5). Fifty-two (93%) of the 56 items were rated as important or very important, and parents rated assurance-type needs highest. Parents at admission rated support needs higher than parents at discharge rated those needs. Needs of mothers and fathers did not differ significantly. Identifying the needs of parents in neonatal intensive care units can enhance nursing communication and allow nurses to incorporate parents' needs into families' plans of care. The family needs inventory can help identify those needs and allows the integration of individualized nursing care to fulfill those needs, providing a positive family-centered experience in the unit for patients and their families.
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            The principles for family-centered neonatal care.

             Lee Harrison (1993)
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              ‘They’ve forgotten that I’m the mum’: constructing and practising motherhood in special care nurseries

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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Role: ND
                Journal
                csc
                Ciência & Saúde Coletiva
                Ciênc. saúde coletiva
                ABRASCO - Associação Brasileira de Saúde Coletiva
                1678-4561
                August 2016
                : 21
                : 8
                : 2583-2594
                Affiliations
                [1 ] Universidade do Porto Portugal
                Article
                S1413-81232016000802583
                10.1590/1413-81232015218.07292015

                This work is licensed under a Creative Commons Attribution-NonCommercial 3.0 International License.

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