23
views
0
recommends
+1 Recommend
0 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: not found

      Patients as partners in a health research agenda setting: the feasibility of a participatory methodology.

      Evaluation & the Health Professions
      Communication, Humans, Patient Participation, methods, Research, Spinal Cord Injuries, rehabilitation

      Read this article at

      ScienceOpenPublisherPubMed
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          This article deals with the participation of patients in setting the agenda of health research that potentially directly affects their lives. The focus is on the communication problems encountered between lay people and medical professionals in developing a joint research agenda. The author argues that a participatory methodology can address these problems and thereby give patients "a say" in the types of health research that have the greatest chance of affecting them personally. The article uses a case example of people with spinal cord injuries participating in research to support the importance and value of patient participation. The case example also helps to rethink appropriate methodologies or at least to modify existing approaches by paying more attention to required social conditions, diversity, and the life world of patients to foster meaningful participation.

          Related collections

          Author and article information

          Journal
          17102064
          10.1177/0163278706293406

          Chemistry
          Communication,Humans,Patient Participation,methods,Research,Spinal Cord Injuries,rehabilitation
          Chemistry
          Communication, Humans, Patient Participation, methods, Research, Spinal Cord Injuries, rehabilitation

          Comments

          Comment on this article