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      Co‐producing research with youth: The NeurOx young people's advisory group model

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          Abstract

          Context

          The 1989 UN Convention on the Rights of the Child states that children have the right to be heard in all matters affecting them. The Convention inspired a surge in research that investigates young people's perspectives on health and wellness‐related concerns and that involves children as ‘co‐researchers'. Young people's advisory groups (YPAGs) are a widely used method to enable young people's involvement in all research stages, but there is a lack of academic literature to guide researchers on how to set up, run and evaluate the impact of such groups.

          Objective

          In this paper, we provide a step‐by‐step model, grounded in our own experience of setting up and coordinating the Oxford Neuroscience, Ethics and Society Young People's Advisory Group (NeurOx YPAG). This group supports studies at the intersection of ethics, mental health and novel technologies. Our model covers the following stages: deciding on the fit for co‐production, recruiting participants, developing collective principles of work, running a meeting and evaluating impact.

          Results

          We emphasize that throughout this process, researchers should take a critical stance by reflecting on whether a co‐production model fits their research scope and aims; ensuring (or aspiring to) representativeness within the group; valuing different kinds of expertise; and undertaking on‐going evaluations on the impact of the group on both the young people and the research.

          Conclusion

          Adopting a critical and reflective attitude can increase researchers' capacity to engage youth in democratic and inclusive ways, and to produce research outputs that are aligned with the target audience's needs and priorities.

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          Most cited references 42

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          The Third Wave of Science Studies: Studies of Expertise and Experience

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            Participatory diagramming: deploying qualitative methods through an action research epistemology

             Mike Kesby (2000)
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              Power, agency and participatory agendas: A critical exploration of young people’s engagement in participative qualitative research

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                Author and article information

                Contributors
                Role: Postdoctoral Researchergabriela.pavarini@psych.ox.ac.uk
                Role: Research Assistant
                Role: DPhil Candidate
                Role: NeurOx YPAG group member
                Role: Professor
                Journal
                Health Expect
                Health Expect
                10.1111/(ISSN)1369-7625
                HEX
                Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
                John Wiley and Sons Inc. (Hoboken )
                1369-6513
                1369-7625
                16 May 2019
                August 2019
                : 22
                : 4 ( doiID: 10.1111/hex.v22.4 )
                : 743-751
                Affiliations
                [ 1 ] Department of Psychiatry and Wellcome Centre for Ethics and Humanities University of Oxford Oxford UK
                [ 2 ] Oxford Neuroscience, Ethics and Society Young People's Advisory Group Oxford UK
                Author notes
                [* ] Correspondence

                Gabriela Pavarini, Department of Psychiatry, University of Oxford, Oxford, UK.

                Email: gabriela.pavarini@ 123456psych.ox.ac.uk

                Article
                HEX12911
                10.1111/hex.12911
                6737761
                31095837
                © 2019 The Authors Health Expectations published by John Wiley & Sons Ltd

                This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                Page count
                Figures: 2, Tables: 1, Pages: 9, Words: 5957
                Product
                Funding
                Funded by: Wellcome Trust
                Award ID: 104825/Z/14/B
                Award ID: 104825/Z/14/Z
                Award ID: 203132/Z/16/Z
                Award ID: 203329/Z/16/Z
                Funded by: National Institute for Health Research
                Award ID: IS-BRC-1215-20005
                Categories
                Original Research Paper
                Original Research Papers
                Custom metadata
                2.0
                hex12911
                August 2019
                Converter:WILEY_ML3GV2_TO_NLMPMC version:5.6.9 mode:remove_FC converted:11.09.2019

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