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      Calidad de vida en niños y adolescentes sobrevivientes de leucemia linfoblástica aguda Translated title: Quality of life in children and adolescents surviving acute lymphoblastic leukemia

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          Abstract

          Objetivo: Describir la calidad de vida relacionada con la salud en niños curados de LLA tratados en la Unidad de Oncología del Hospital de Niños Roberto del Río. Método: Bajo un diseño transversal, se aplicó el cuestionario específico Kidscreen-27 a una muestra intencionada de 41 pacientes. Con fines ilustrativos se compararon, mediante un ANOVA, los resultados obtenidos con datos de dos sub-muestras pareadas en edad y sexo, escogidas mediante proceso de randomización en una muestra de niños chilenos escolarizados evaluados con el mismo instrumento. Resultados: Los niños curados de LLA tuvieron medias inferiores (no significativo) a la de los grupos con que se compararon. En la muestra estudiada se observó mayor proporción de niños que se autoreportan como enfermos; en el ámbito del bienestar físico tienen una media significativamente inferior que los que se reportan sanos. El tiempo medio de control oncológico fue 8 años. Conclusiones: El auto-reporte de la calidad de vida de los niños curados de LLA es similar a una muestra de niños escolarizados chilenos. Para preservar la calidad de vida de los pacientes se sugiere que se realice prevención de secuelas, pesquisa y tratamiento de trastornos emocionales y alta definitiva en un plazo razonable.

          Translated abstract

          Objective: Describe the quality of life of patients cured of acute lymphoblastic leukemia (ALL) treated at the Oncology Unit at Roberto del Rio Children's Hospital. Method: With a transversal design, the Kidscreen-27 questionnaire was applied to a selected sample of 41 patients. Results were compared with a random sample of school children paired for age and sex. Results: Children cured from ALL had lower scores than the control group, although ANOVA showed differences were not significant. ALL children tended to self report as ill, significantly lower in physical well-being. Average followup time was 8 years. Conclusions: Quality of life of chilean children cured from ALL is similar to school children of similar age and gender. To preserve the quality of life, it is suggested that the following measures be taken: prevention of sequelae, detection and treatment of emotional disorders, and discharge at a reasonable time.

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          The KIDSCREEN-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries.

          To assess the construct and criterion validity of the KIDSCREEN-27 health-related quality of life (HRQoL) questionnaire, a shorter version of the KIDSCREEN-52. The five-dimensional KIDSCREEN-27 was tested in a sample of 22,827. For criterion validity the correlation with and the percentage explained variance of the scores of the KIDSCREEN-52 instrument were examined. Construct validity was assessed by testing a priori expected associations with other generic HRQoL measures (YQOL-S, PedsQL, CHIP), indicators of physical and mental health, and socioeconomic status. Age and gender differences were investigated. Correlation with corresponding scales of the KIDSCREEN-52 ranged from r = 0.63 to r = 0.96, and r2 ranged from 0.39 to 0.92. Correlations between other HRQoL questionnaires and KIDSCREEN-27 dimensions were moderate to high for those assessing similar constructs (r = 0.36 to 0.63). Statistically significant and sizeable differences between physically and mentally healthy and ill children were found in all KIDSCREEN-27 dimensions together with strong associations with psychosomatic complaints (r = -0.52). Most of the KIDSCREEN-27 dimensions showed a gradient according to socio-economic status, age and gender. The KIDSCREEN-27 seems to be a valid measure of HRQoL in children and adolescents. Further research is needed to assess longitudinal validity and sensitivity to change.
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            Calidad de vida relacionada con la salud: Elementos conceptuales

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              Childhood cancer survival trends in Europe: a EUROCARE Working Group study.

              EUROCARE collected data from population-based cancer registries in 20 European countries. We used this data to compare childhood cancer survival time trends in Europe. Survival in 44,129 children diagnosed under the age of 15 years during 1983 to 1994 was analyzed. Sex- and age-adjusted 5-year survival trends for 10 common cancers and for all cancers combined were estimated for five regions (West Germany, the United Kingdom, Eastern Europe, Nordic countries, and West and South Europe) and Europe as a whole. Europe-wide trends for 14 rare cancers were estimated. For all cancers combined, 5-year survival increased from 65% for diagnoses in 1983 to 1985 to 75% in 1992 to 1994. Survival improved for all individual cancers except melanoma, osteosarcoma, and thyroid carcinoma; although for retinoblastoma, chondrosarcoma, and fibrosarcoma, improvements were not significant. The most marked improvements (50% to 66%) occurred in Eastern Europe. For common cancers, the greatest improvements were for leukemia and lymphomas, with risk of dying reducing significantly by 5% to 6% per year. Survival for CNS tumors improved significantly from 57% to 65%, with risk reducing by 3% per year. Risk reduced by 4% per year for neuroblastoma and 3% per year for Wilms' tumor and rhabdomyosarcoma. The survival gap between regions reduced over the period, particularly for acute nonlymphocytic leukemia, CNS tumors, and rhabdomyosarcoma. For rare Burkitt's lymphoma, hepatoblastoma, gonadal germ cell tumors, and nasopharyngeal carcinoma, risk reductions were at least 10% per year. These gratifying improvements in survival can often be plausibly related to advances in treatment. The prevalence of European adults with a history of childhood cancer will inevitably increase.
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                Author and article information

                Journal
                rcp
                Revista chilena de pediatría
                Rev. chil. pediatr.
                Sociedad Chilena de Pediatría (Santiago, , Chile )
                0370-4106
                April 2011
                : 82
                : 2
                : 113-121
                Affiliations
                [03] orgnameHospital Roberto del Río orgdiv1Unidad Oncología orgdiv2Protocolo Leucemia Linfoblástica PINDA Chile
                [01] orgnameHospital Roberto del Río orgdiv1Unidad de Oncología orgdiv2subcomisión psicooncología PINDA Chile
                [02] orgnameUniversidad Católica del Norte orgdiv1Escuela de Psicología Chile
                Article
                S0370-41062011000200005 S0370-4106(11)08200205
                10.4067/S0370-41062011000200005
                bd27eec8-f74a-4e1d-aece-0b1369c146c5

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 19 April 2010
                : 10 January 2011
                : 31 January 2011
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 26, Pages: 9
                Product

                SciELO Chile

                Categories
                ARTÍCULOS ORIGINALES

                Lymphoblastic leukemia,quality of life,calidad de vida,Kidscreen-27,Leucemia linfoblástica,sobreviviente de cáncer,cancer survivalr,Kidscreen -27

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