Mona Dür a , Martina Sadloňová a , Stefanie Haider a , Alexa Binder a , Michaela Stoffer a , Michaela Coenen b , Josef Smolen a , Clemens Dejaco c , Alexandra Kautzky-Willer d , Veronika Fialka-Moser e , Gabriele Moser c , Tanja Alexandra Stamm a , *
01 January 2014
DH, determinant of health, DHs, determinants of health, HP, health promotion, Crohn's disease, Determinants of health, Health and wellbeing, Health promotion, Inflammatory bowel disease, Patient-reported outcomes
Busy clinical settings often restrict the possibility to focus on concepts that determine health in a positive way, commonly assessed by using patient-reported outcomes (PROs). We aimed to explore which determinants of health (DHs) are important to people with Crohn's disease (CD), to understand possible gender differences and to analyze whether these DHs are covered by PROs used in CD.
Two systematic literature reviews were done to identify relevant DHs and clinically relevant PROs. We conducted a qualitative narrative biographical study and mapped the patients' experiences to concepts that determine health in a positive way. Experiences, DHs and the items of the PROs were compared by the WHO International Classification of Functioning, Disability and Health (ICF) as a common framework.
15 people with CD with a median age of 46 years (IQR 34–60) and median disease duration of 15 years (IQR 8–30) participated. Self-efficacy, social support, job satisfaction and occupational balance were mentioned most frequently. While participation appeared to have greater meaning to men, appreciation and resilience seemed to be more important for women. Of 18 PROs the Perceived Stress Questionnaire (PSQ), the Inflammatory Bowel disease — Self- efficacy scale (IBD-SES), the Life Orientation Test — Revised (LOT-R) and the Patient Activation Measure 13 (PAM-13) cover most DHs.