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      Health determining concepts important to people with Crohn's disease and their coverage by patient-reported outcomes of health and wellbeing ☆☆

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          Abstract

          Background and aims

          Busy clinical settings often restrict the possibility to focus on concepts that determine health in a positive way, commonly assessed by using patient-reported outcomes (PROs). We aimed to explore which determinants of health (DHs) are important to people with Crohn's disease (CD), to understand possible gender differences and to analyze whether these DHs are covered by PROs used in CD.

          Methods

          Two systematic literature reviews were done to identify relevant DHs and clinically relevant PROs. We conducted a qualitative narrative biographical study and mapped the patients' experiences to concepts that determine health in a positive way. Experiences, DHs and the items of the PROs were compared by the WHO International Classification of Functioning, Disability and Health (ICF) as a common framework.

          Results

          15 people with CD with a median age of 46 years (IQR 34–60) and median disease duration of 15 years (IQR 8–30) participated. Self-efficacy, social support, job satisfaction and occupational balance were mentioned most frequently. While participation appeared to have greater meaning to men, appreciation and resilience seemed to be more important for women. Of 18 PROs the Perceived Stress Questionnaire (PSQ), the Inflammatory Bowel disease — Self- efficacy scale (IBD-SES), the Life Orientation Test — Revised (LOT-R) and the Patient Activation Measure 13 (PAM-13) cover most DHs.

          Conclusions

          This is the first study elaborating the coverage of patient's perspective by commonly used PROs in CD. The findings could support health professionals to focus on DHs in people with CD in clinical practice and research.

          Related collections

          Most cited references 59

          • Record: found
          • Abstract: found
          • Article: not found

          The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.

          A 36-item short-form (SF-36) was constructed to survey health status in the Medical Outcomes Study. The SF-36 was designed for use in clinical practice and research, health policy evaluations, and general population surveys. The SF-36 includes one multi-item scale that assesses eight health concepts: 1) limitations in physical activities because of health problems; 2) limitations in social activities because of physical or emotional problems; 3) limitations in usual role activities because of physical health problems; 4) bodily pain; 5) general mental health (psychological distress and well-being); 6) limitations in usual role activities because of emotional problems; 7) vitality (energy and fatigue); and 8) general health perceptions. The survey was constructed for self-administration by persons 14 years of age and older, and for administration by a trained interviewer in person or by telephone. The history of the development of the SF-36, the origin of specific items, and the logic underlying their selection are summarized. The content and features of the SF-36 are compared with the 20-item Medical Outcomes Study short-form.
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            • Record: found
            • Abstract: found
            • Article: not found

            The hospital anxiety and depression scale.

             R Snaith,  S Zigmond (1983)
            A self-assessment scale has been developed and found to be a reliable instrument for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. The anxiety and depressive subscales are also valid measures of severity of the emotional disorder. It is suggested that the introduction of the scales into general hospital practice would facilitate the large task of detection and management of emotional disorder in patients under investigation and treatment in medical and surgical departments.
              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              EQ-5D: a measure of health status from the EuroQol Group.

              Established in 1987, the EuroQol Group initially comprised a network of international, multilingual and multidisciplinary researchers from seven centres in Finland, the Netherlands, Norway, Sweden and the UK. Nowadays, the Group comprises researchers from Canada, Denmark, Germany, Greece, Japan, New Zealand, Slovenia, Spain, the USA and Zimbabwe. The process of shared development and local experimentation resulted in EQ-5D, a generic measure of health status that provides a simple descriptive profile and a single index value that can be used in the clinical and economic evaluation of health care and in population health surveys. Currently, EQ-5D is being widely used in different countries by clinical researchers in a variety of clinical areas. EQ-5D is also being used by eight out of the first 10 of the top 50 pharmaceutical companies listed in the annual report of Pharma Business (November/December 1999). Furthermore, EQ-5D is one of the handful of measures recommended for use in cost-effectiveness analyses by the Washington Panel on Cost Effectiveness in Health and Medicine. EQ-5D has now been translated into most major languages with the EuroQol Group closely monitoring the process.
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                Author and article information

                Journal
                J Crohns Colitis
                J Crohns Colitis
                Journal of Crohn's & Colitis
                Elsevier Science
                1873-9946
                1876-4479
                01 January 2014
                01 January 2014
                : 8
                : 1
                : 45-55
                Affiliations
                [a ]Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna, Austria
                [b ]Institute for Medical Informatics, Biometry and Epidemiology, Ludwig-Maximilians-University, Munich, Germany
                [c ]Department of Internal Medicine III, Division of Gastroenterology and Hepatology, Medical University of Vienna, Austria
                [d ]Department of Internal Medicine III, Division of Diabetology, Medical University of Vienna, Austria
                [e ]Department of Physical Medicine and Rehabilitation, Medical University of Vienna, Austria
                Author notes
                [* ]Corresponding author at: Medical University of Vienna: Department of Internal Medicine III Division of Rheumatology, A-1090 Vienna, Währinger Gürtel 18-20, Austria. Tel.: + 43 1 40400 4381; fax: + 43 1 40400 4500. Tanja.stamm@ 123456meduniwien.ac.at
                Article
                S1873-9946(13)00003-2
                10.1016/j.crohns.2012.12.014
                3889494
                © 2014 European Crohn's and Colitis Organisation. Published by Elsevier B.V. All rights reserved.

                This document may be redistributed and reused, subject to certain conditions.

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