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      Palliative care and nursing in dissertations and theses in Portugal: a bibliometric study Translated title: Cuidados paliativos y enfermería en las tesis de maestría y doctorado en portugal: un estudio bibliométrico Translated title: Cuidados paliativos e enfermagem nas dissertações e teses em Portugal: um estudo bibliométrico

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          Abstract

          Abstract Objective To identify the academic scientific production on palliative care in master dissertations and PhD theses carried out by nurses in Portugal. Method A descriptive retrospective study of bibliometric type with search for the abstracts available in repositories of higher education institutions in the period 2000-2014. Results Of the 1814 papers identified, 249 met the inclusion criteria (ten doctoral theses and 239 master dissertations). The most representative methodological approach was quantitative (31.35%) and the most studied area was family/informal caregiver (20.69%). The most studied target population were the students/health professionals (38.51%). Conclusion The academic scientific production in this area has been growing in spite of the need for continued investment in order to fill the identified gaps.

          Translated abstract

          Resumen Objetivo Identificar la producción científica académica acerca de los cuidados paliativos en los estudios de maestrías y doctorados llevados a cabo por enfermeros en Portugal. Método Estudio descriptivo y retrospectivo, del tipo bibliométrico, recurriendo a los resúmenes disponibles en los repositorios de las instituciones de enseñanza superior en el período 2000-2014. Resultados De los 1814 trabajos identificados, 249 correspondieron a los criterios de inclusión (10 tesis de doctorado y 239 tesis de maestría). El abordaje metodológico más representativo es el cuantitativo (31,35%), el área más estudiada fue la familia/cuidador informal (20,69%) y la población meta más estudiada fueron los estudiantes/profesionales sanitarios (38,51%). Conclusión La producción científica académica en esa área está creciendo. Aunque exista necesidad de inversión continua de modo a rellenar los espacios identificados.

          Translated abstract

          Resumo OBJETIVO Identificar a produção científica académica sobre cuidados paliativos nos estudos de mestrados e doutoramentos efetuados por enfermeiros em Portugal. MÉTODO Estudo descritivo e retrospetivo, do tipo bibliométrico, recorrendo aos resumos disponíveis nos repositórios das instituições de ensino superior no período 2000-2014. RESULTADOS Dos 1814 trabalhos identificados, 249 corresponderam aos critérios de inclusão (10 teses de doutoramento e 239 dissertações de mestrado). A abordagem metodológica mais representativa é a quantitativa (31,35%), a área mais estudada foi a família/cuidador informal (20,69%) e a população-alvo mais estudada foram os estudantes/profissionais de saúde (38,51%). CONCLUSÃO A produção científica académica nessa área tem vindo a crescer. Embora exista necessidade de investimento contínuo de forma a colmatar as lacunas identificadas.

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          Nurse-patient relationships in palliative care.

          The aim of this paper is to report a study exploring aspects of nurse-patient relationships in the context of palliative care. Although there are numerous studies addressing nurse-patient relationships, little research has focused on these in the context of palliative are. Furthermore, no previous study has examined the relationship in the Chinese context. Qualitative data were collected from 10 hospice nurses and 10 terminally ill patients by means of open ended unstructured interviews. Respondents were asked to reflect on practices and incidents that would allow an understanding of the meaning of nurse-patient relationships in palliative care. Four major categories emerged from the perspectives of patients and nurses: (1) forming a relationship of trust; (2) being part of the family; (3) refilling with fuel along the journey of living and dying; and (4) enriched experiences. Responses revealed that a relationship of trust is formed, and that nurses are not only regarded as health professionals, but also become part of the family or a good friend. Nurses who develop trusting relationships demonstrate a holistic approach to caring, show their understanding of patients' suffering, are aware of their unvoiced needs, provide comfort without actually being asked, and are reliable, proficient, competent and dedicated in their care. Trust, the achievement of the goals of patients and nurses, caring and reciprocity are important elements of nurse-patient relationships in palliative care. Such relationships not only improve patients' physical and emotional state, but also facilitate their adjustment to their illness, ease pain and can ultimately lead to a good death experience. It is nurses' personal qualities and skills, which are embedded in these relationships, that constitute excellence in nursing care. Nurses also derive satisfaction and are enriched through the relationships.
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            Meeting the supportive needs of family caregivers in palliative care: challenges for health professionals.

            Caring for a dying relative is demanding, and family caregivers have acknowledged many unmet needs associated with their caregiver role. Consistently, caregivers of dying patients with cancer have reported that they need more support and information from health care professionals. Moreover, a number of palliative care clinicians and researchers have called for interventions to enhance the support offered to family caregivers. However, before researchers can develop and test palliative care interventions directed to families, it is important to identify barriers that may confront health care professionals with regard to the provision of supportive family care. For new interventions to be feasible they must be applicable within the constraints of current palliative care service delivery environments. This paper provides an account of issues that may impinge on optimal transference of supportive strategies from health care professionals to family caregivers of patients receiving palliative care. By acknowledging these barriers to supportive care, researchers and health care professionals can begin to design and implement interventions that are clinically relevant and more likely to be effective.
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              National cancer control programmes: policies and managerial guidelines

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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Role: ND
                Journal
                reeusp
                Revista da Escola de Enfermagem da USP
                Rev. esc. enferm. USP
                Universidade de São Paulo, Escola de Enfermagem
                1980-220X
                April 2016
                : 50
                : 2
                : 317-323
                Affiliations
                [1 ] Instituto de Ciências Biomédicas Abel Salazar Portugal
                [2 ] Unidade de Cuidados à Comunidade de Lousada Portugal
                [3 ] Escola Superior de Enfermagem de Coimbra Portugal
                [4 ] Universidade do Porto Portugal
                [5 ] Escola Superior de Enfermagem do Porto Portugal
                Article
                S0080-62342016000200317
                10.1590/S0080-623420160000200019
                c922053c-5438-4d44-bde8-fe477b31f782

                This work is licensed under a Creative Commons Attribution 4.0 International License.

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                SciELO Brazil

                Self URI (journal page): http://www.scielo.br/scielo.php?script=sci_serial&pid=0080-6234&lng=en
                Categories
                NURSING

                Nursing
                Cuidados Paliativos,Enfermería,Bibliometria,Portugal,Palliative Care,Nursing,Bibliometrics,Enfermagem
                Nursing
                Cuidados Paliativos, Enfermería, Bibliometria, Portugal, Palliative Care, Nursing, Bibliometrics, Enfermagem

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