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      Tracing the Use of the Family Management Framework and Measure: A Scoping Review

      research-article
      , PhD, FAAN 1 , , PhD, RN, FAAN 2 , , PhD, RN, FAAN 3 , , RN, MSN, CPNP-PC 1
      Journal of Family Nursing
      SAGE Publications
      family research, family management, scoping review

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          Abstract

          This article reports the results of a scoping review of research applications of the Family Management Style Framework (FMSF) and the Family Management Measure (FaMM). We identified 32 studies based on the FMSF and 41 studies in which the FaMM was used, 17 of which were based on the FMSF. Both the framework and measure have been used by investigators in multiple countries, with most applications of the FaMM outside the United States. Although the FMSF and FaMM were originally developed for use with families in which there was a child with a chronic physical condition, both have been applied to a broader range of health conditions and to studies focusing on families with an adult member facing a health challenge. Based on our findings, we make recommendations for how researchers can more fully address all aspects of the FMSF.

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          Scoping studies: towards a methodological framework

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            An integrative model of pediatric medical traumatic stress.

            To guide assessment and intervention for patients and families, a model for assessing and treating pediatric medical traumatic stress (PMTS) is presented that integrates the literature across pediatric conditions. A model with three general phases is outlined--I, peritrauma; II, early, ongoing, and evolving responses; and III, longer-term PMTS. Relevant literature for each is reviewed and discussed with respect to implications for intervention for patients and families. Commonalities across conditions, the range of normative responses to potentially traumatic events (PTEs), the importance of preexisting psychological well-being, developmental considerations, and a social ecological orientation are highlighted. Growing empirical support exists to guide the development of assessment and intervention related to PMTS for patients with pediatric illness and their parents. The need for interventions across the course of pediatric illness and injury that target patients, families, and/or healthcare teams is apparent. The model provides a basis for further development of evidence-based treatments.
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              Assessment of the psychometric properties of the Family Management Measure.

              This paper reports development of the Family Management Measure (FaMM) of parental perceptions of family management of chronic conditions. By telephone interview, 579 parents of children age 3 to 19 with a chronic condition (349 partnered mothers, 165 partners, 65 single mothers) completed the FaMM and measures of child functional status and behavioral problems and family functioning. Analyses addressed reliability, factor structure, and construct validity. Exploratory factor analysis yielded six scales: Child's Daily Life, Condition Management Ability, Condition Management Effort, Family Life Difficulty, Parental Mutuality, and View of Condition Impact. Internal consistency reliability ranged from .72 to .91, and test-retest reliability from .71 to .94. Construct validity was supported by significant correlations in hypothesized directions between FaMM scales and established measures. Results support FaMM's; reliability and validity, indicating it performs in a theoretically meaningful way and taps distinct aspects of family response to childhood chronic conditions.
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                Author and article information

                Journal
                J Fam Nurs
                J Fam Nurs
                JFN
                spjfn
                Journal of Family Nursing
                SAGE Publications (Sage CA: Los Angeles, CA )
                1074-8407
                1552-549X
                20 March 2021
                May 2021
                : 27
                : 2
                : 87-106
                Affiliations
                [1 ]The University of North Carolina at Chapel Hill, USA
                [2 ]University of Pennsylvania, Philadelphia, USA
                [3 ]University of Illinois at Chicago, USA
                Author notes
                [*]Kathleen A. Knafl, Professor, School of Nursing, The University of North Carolina at Chapel Hill, Carrington Hall #7640, Chapel Hill, NC 27599, USA. Email: kknafl@ 123456email.unc.edu
                Author information
                https://orcid.org/0000-0003-2623-2515
                https://orcid.org/0000-0002-6447-3259
                Article
                10.1177_1074840721994331
                10.1177/1074840721994331
                8044632
                33749353
                cb3077d7-1466-45f2-9dc3-e949fd165e26
                © The Author(s) 2021

                This article is distributed under the terms of the Creative Commons Attribution 4.0 License ( https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

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                family research,family management,scoping review
                family research, family management, scoping review

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