5
views
0
recommends
+1 Recommend
1 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found

      The development of positive psychology outcome measures and their uses in dementia research: A systematic review

      1 , 2 , 3 , 4
      Dementia
      SAGE Publications

      Read this article at

      ScienceOpenPublisherPubMed
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Positive psychology is gaining credence within dementia research but currently there is a lack of outcome measures within this area developed specifically for people with dementia. Authors have begun adopting positive psychology measures developed with other populations but there is no consensus around which are more appropriate or psychometrically robust. A systematic search identified measures used between 1998 and 2017 and an appraisal of the development procedure was undertaken using standardised criteria enabling the awarding of scores based on reporting of psychometric information. Twelve measures within the constructs of identity, hope, religiosity/spirituality, life valuation, self-efficacy, community and wellbeing were identified as being used within 17 dementia studies. Development procedures were variable and scores on development criterion reflected this variability. Of the measures included, the Herth Hope Index, Systems of Belief Inventory and Psychological Wellbeing Scale appeared to be the most robustly developed and appropriate for people with dementia.

          Related collections

          Most cited references29

          • Record: found
          • Abstract: not found
          • Article: not found

          The experience of dementia

          T Kitwood (1997)
            Bookmark
            • Record: found
            • Abstract: not found
            • Article: not found

            Satisfaction and happiness

              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Suffering from dementia - the patient's perspective: a review of the literature.

              Among the general public there is a deep fear of developing dementia, which has led to an increasing number of people "at risk" seeking ways (such as advance directives) to avoid undergoing progressive mental decline. The views of people with dementia are vital in obtaining a real answer to the question of how the disease affects people's lives and whether it actually involves the suffering that so many fear. A review of the international literature is provided on what is known about living through dementia from the patient's perspective. A total of 50 papers met the inclusion criteria. The findings of these reviewed papers give insight into the impact of dementia and the ways that those who have it deal with its effects by using different coping strategies. The literature on the perspective of the patient gives no solid support to the widespread assumption that dementia is necessarily a state of dreadful suffering. Although the impact of dementia and the experiences of loss resulting in multiple "negative" emotions cannot be denied, our findings also indicate that people do not undergo the disease passively and use both emotion-oriented and problem-oriented coping strategies to deal with its challenges. The experiences of living through dementia as told by the sufferers appear to yield a more subtle picture than the assumptions made by the general public. The overview provides a good starting point for improving the adjustment of care to the experience and wishes of people with dementia.
                Bookmark

                Author and article information

                Contributors
                (View ORCID Profile)
                Journal
                Dementia
                Dementia
                SAGE Publications
                1471-3012
                1741-2684
                August 2019
                November 16 2017
                August 2019
                : 18
                : 6
                : 2085-2106
                Affiliations
                [1 ]Department of Neurodegenerative Disease, University College London, London, UK
                [2 ]Research and Development, North East London NHS Foundation Trust, Ilford, UK; Division of Psychiatry, University College London, London, UK
                [3 ]Institute of Mental Health, University of Nottingham, Nottingham, UK
                [4 ]Research Department of Clinical, Educational and Health Psychology, University College London, London, UK
                Article
                10.1177/1471301217740288
                29145739
                cb892493-0a55-41f9-a736-2e521ea68699
                © 2019

                http://journals.sagepub.com/page/policies/text-and-data-mining-license

                History

                Comments

                Comment on this article