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      Are we good and are we safe? Measuring quality and assessing risk in an adult autism diagnostic service

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          Abstract

          Purpose

          Leeds autism diagnostic service is an adult autism diagnostic service for people of any intellectual ability which also offers consultancy to service users/carers or professionals, as well as a wide range of autism training. The service was set up as a pilot in 2011 and a paper describing the service development was published in this journal in November 2015. The purpose of this paper is to describe the approach taken to measure the quality of the service the authors provide and accurately assess risk in adults with autism.

          Design/methodology/approach

          The process of evaluating appropriate outcome measures is described, along with considering appropriate risk assessment tools for use in the community. Over 200 people each year complete the autism diagnostic pathway, and 164 patients were invited to respond to service evaluation questionnaires in 2014.

          Findings

          To date, the most useful outcome measures for this group include a prospective service user questionnaire which enables service user opinion to influence service development. In the absence of any appropriate autism-specific risk assessment tools, the service has developed one which it is currently piloting. This has proved particularly useful in the consultancy setting

          Originality/value

          This paper is a follow-up paper looking at the day-to-day issues that the team have had to grapple with – how do you assess whether what you are doing is providing the best possible service for the people that you serve and how do you accurately assess risk in this population?

          Related collections

          Most cited references 23

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          Is Open Access

          Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study.

          Asperger's syndrome in adulthood is frequently associated with depression, but few studies have explored the lifetime experience of self-reported suicidal ideation and suicide plans or attempts in this clinical group. We aimed to assess this prevalence in a clinical cohort of patients in the UK.
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            The Diagnostic Interview for Social and Communication Disorders: background, inter-rater reliability and clinical use

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              A five to fifteen year follow-up study of infantile psychosis. II. Social and behavioural outcome.

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                Author and article information

                Contributors
                Journal
                AIA
                10.1108/AIA
                Advances in Autism
                AIA
                Emerald Publishing
                2056-3868
                03 January 2017
                : 3
                : 1
                : 15-26
                Affiliations
                Leeds Autism Diagnostic Service, Leeds and York Partnership NHS Trust, Leeds, UK
                University of Leeds , Leeds, UK
                Community Mental Health, Leeds and York Partnership Foundation Trust, Bootham Park Hospital, Leeds, UK
                Author notes
                Alison Jane Stansfield can be contacted at: alisonstansfield@nhs.net
                Article
                589276 AIA-03-2016-0008.pdf AIA-03-2016-0008
                10.1108/AIA-03-2016-0008
                © Emerald Publishing Limited
                Page count
                Figures: 3, Tables: 1, Equations: 0, References: 34, Pages: 12, Words: 6100
                Product
                Categories
                e-conceptual-paper, Conceptual paper
                cat-HSC, Health & social care
                cat-LID, Learning & intellectual disabilities
                Custom metadata
                yes
                yes
                JOURNAL
                included

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