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      Design and feasibility of integrating personalized PRO dashboards into prostate cancer care

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          Abstract

          Objective Patient-reported outcomes (PROs) are a valued source of health information, but prior work focuses largely on data capture without guidance on visual displays that promote effective PRO use in patient-centered care. We engaged patients, providers, and design experts in human-centered design of “PRO dashboards” that illustrate trends in health-related quality of life (HRQOL) reported by patients following prostate cancer treatment.

          Materials and Methods We designed and assessed the feasibility of integrating dashboards into care in 3 steps: (1) capture PRO needs of patients and providers through focus groups and interviews; (2) iteratively build and refine a prototype dashboard; and (3) pilot test dashboards with patients and their provider during follow-up care.

          Results Focus groups ( n = 60 patients) prioritized needs for dashboards that compared longitudinal trends in patients’ HRQOL with “men like me.” Of the candidate dashboard designs, 50 patients and 50 providers rated pictographs less helpful than bar charts, line graphs, or tables ( P < .001) and preferred bar charts and line graphs most. Given these needs and the design recommendations from our Patient Advisory Board ( n = 7) and design experts ( n = 7), we built and refined a prototype that charts patients’ HRQOL compared with age- and treatment-matched patients in personalized dashboards. Pilot testing dashboard use ( n = 12 patients) improved compliance with quality indicators for prostate cancer care ( P < .01).

          Conclusion PRO dashboards are a promising approach for integrating patient-generated data into prostate cancer care. Informed by human-centered design principles, this work establishes guidance on dashboard content, tailoring, and clinical use that patients and providers find meaningful.

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          Author and article information

          Journal
          J Am Med Inform Assoc
          J Am Med Inform Assoc
          jamia
          jaminfo
          Journal of the American Medical Informatics Association : JAMIA
          Oxford University Press
          1067-5027
          1527-974X
          January 2016
          09 August 2015
          : 23
          : 1
          : 38-47
          Affiliations
          [ 1 ] Group Health Research Institute, Seattle, Washington, USA
          [ 2 ] Departments of Urology and Oncology, Queen’s University, Kingston, Ontario, Canada
          [ 3 ] Department of Urology, University of Washington, Seattle, Washington, USA
          [ 4 ] Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA
          Author notes
          Correspondence to Andrea L Hartzler, Group Health Research Institute, 1730 Minor Ave, Suite 1600, Seattle, WA 98101, USA; hartzler.a@ 123456ghc.org
          Article
          PMC5009933 PMC5009933 5009933 ocv101
          10.1093/jamia/ocv101
          5009933
          26260247
          cebf0e6c-3e27-4a5e-ba50-645f55663cf9
          © The Author 2015. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com
          Page count
          Pages: 10
          Categories
          Interactive Systems for Patient-Centered Care to Enhance Patient Engagement

          user-computer interface,patient-provider communication,patient-reported outcomes,data display,patient-centered care

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