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      'No one agrees except for those of us who have it': endometriosis patients as an epistemological community.

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      Sociology of health & illness

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          Abstract

          This paper contributes to the literature on patients' claims-making work by analysing the epistemological strategies and standards used by members of an endometriosis patient community. It draws upon focus group research with members of a support group for endometriosis sufferers, and an open-ended survey of an e-mail list for women with the disease. Lynn Hankinson Nelson's (1993) concept of epistemological community is used to examine standards and practices for developing and evaluating knowledge used by women with endometriosis. Particular attention is paid to the use and centrality of the notion of experience within this community.

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          Author and article information

          Journal
          Sociol Health Illn
          Sociology of health & illness
          0141-9889
          0141-9889
          Nov 2007
          : 29
          : 7
          Affiliations
          [1 ] Sociology and Social Anthropology, Dalhousie University, Halifax, Nova Scotia, Canada. emma.whelan@dal.ca
          Article
          SHIL1024
          10.1111/j.1467-9566.2007.01024.x
          18092978
          d1839052-3316-43ce-803c-f03b6cc8986e
          History

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