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      Data Sharing in a Humanitarian Organization: The Experience of Médecins Sans Frontières

      research-article
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      PLoS Medicine
      Public Library of Science

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          Abstract

          Unni Karunakara and colleagues discuss how Médecins Sans Frontières decided to adopt a data sharing policy for routinely collected clinical and research data in humanitarian settings and its aspirations to create a truly open data set with the first step being managed access.

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          Most cited references5

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          Research Ethics Review in Humanitarian Contexts: The Experience of the Independent Ethics Review Board of Médecins Sans Frontières

          Doris Schopper and colleagues describe the functioning of the Médecins Sans Frontières independent ethics review board and the framework used for ethics review, and discuss challenging ethical issues encountered by the board since its inception.
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            Conducting operational research within a non governmental organization: the example of Medecins Sans Frontieres.

            Like many other non governmental organizations (NGOs) that provide assistance to vulnerable populations living in difficult and resource-limited settings, Médecins Sans Frontières (MSF) is confronted with situations for which proven, effective interventions are often lacking and/or where there is need for strong advocacy for improving medical care. As a result, MSF has become an important contributor to health research, and has dedicated resources to guide operational research by establishing its own Ethics Review Board, an innovation fund, an online publications repository and by regularly contributing to major scientific conferences. However, this increased research activity has led to concern that priorities and resources may be diverted away from the essential mandate of care provision for NGOs. In response, this article discusses the potential role operational research can play within medical NGOs such as MSF, and highlights the relevance of operational research, the essential elements of developing it within the organisation and some of the perceived barriers and solutions.
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              Research in Complex Humanitarian Emergencies: The Médecins Sans Frontières/epicentre Experience

              Vincent Brown and colleagues review Epicentre's 20 years of experience conducting research during complex humanitarian emergencies.
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                Author and article information

                Journal
                PLoS Med
                PLoS Med
                PLoS
                plosmed
                PLoS Medicine
                Public Library of Science (San Francisco, USA )
                1549-1277
                1549-1676
                December 2013
                December 2013
                10 December 2013
                : 10
                : 12
                : e1001562
                Affiliations
                [1]Médecins Sans Frontières, Geneva, Switzerland
                Author notes

                The author has declared that no competing interests exist.

                Conceived and designed the experiments: UK. Wrote the first draft of the manuscript: SV. Contributed to the writing of the manuscript: UK. ICMJE criteria for authorship read and met: UK. Agree with manuscript results and conclusions: UK. Guarantor of the paper: UK.

                Article
                PMEDICINE-D-13-01934
                10.1371/journal.pmed.1001562
                3858219
                24339750
                d24ffef8-45fa-4527-bfe3-1a7bb2fc8dca
                Copyright @ 2013

                This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

                History
                Page count
                Pages: 4
                Funding
                No specific funding was received for writing this article.
                Categories
                Policy Forum

                Medicine
                Medicine

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