Chronic diseases are a tremendous burden to both patients and the health care system.
In 2014, 60% of adult Americans had at least one chronic disease or condition, and
42% had multiple diseases (1). Chronic diseases, including heart disease, cancer,
chronic lung disease, stroke, Alzheimer’s disease, diabetes, osteoarthritis, and chronic
kidney disease, are the leading causes of poor health, long-term disability, and death
in the United States (2,3). One-third of all deaths in this country are attributable
to heart disease or stroke, and every year, more than 1.7 million people receive a
diagnosis of cancer (2). During the past several decades, the prevalence of diabetes
increased dramatically; in 2015 more than 29 million Americans had diabetes and another
86 million adults had prediabetes, increasing their chance of developing type 2 diabetes
(3). Diabetes increases the risk of developing other chronic diseases, including heart
disease, stroke, and hypertension, and is the leading cause of end-stage renal failure
(4).
Chronic diseases can profoundly reduce quality of life for patients and for their
families, affecting enjoyment of life, family relationships, and finances (5). Working
can be difficult for people with chronic diseases: rates of absenteeism are higher
and income is often lower among people who have a chronic disease compared with people
who do not have one. Functional limitations can be distressing, and depression, which
can reduce a patient’s ability to cope with pain and worsen the clinical course of
disease, is a common complication (6).
Chronic diseases are also the leading drivers of health care costs in the United States
(2). In 2016, total direct costs for health care treatment of chronic diseases were
more than $1 trillion, with diabetes, Alzheimer’s, and osteoarthritis being the most
expensive (2,7). If lost economic productivity is also considered, the total cost
of chronic diseases increases to $3.7 trillion, which is close to one-fifth of the
entire US economy (7,8). These costs are expected to increase as the population ages
— projections indicate that by 2030, more than 80 million people in the United States
will have at least 3 chronic diseases (7).
Clinical preventive strategies are available for many chronic diseases; these strategies
include intervening before disease occurs (primary prevention), detecting and treating
disease at an early stage (secondary prevention), and managing disease to slow or
stop its progression (tertiary prevention). These interventions, combined with lifestyle
changes, can substantially reduce the incidence of chronic disease and the disability
and death associated with chronic disease (9). However, clinical preventive services
are substantially underutilized despite the human and economic burden of chronic diseases,
the availability of evidence-based tools to prevent or ameliorate them, and the effectiveness
of prevention strategies (9–11). For example, in 2015, only 8% of US adults aged 35
or older received all recommended, high-priority, appropriate clinical preventive
services, and nearly 5% received none (12).
Interview Study
It is far better to prevent disease than to treat people after they get sick (13).
This is particularly true for chronic diseases, which are associated with suffering,
large numbers of deaths, and high health care costs (2,7). Given the gap between the
burden of chronic diseases and the utilization of preventive services, we set out
to obtain from health care industry experts their perspectives on the levers and influencers
that have the potential to increase utilization of clinical preventive care. The objective
of our study was to gather experience-based insights that would be valuable to policy
makers in developing strategies, programs, and partnerships across the health care
industry to increase utilization of preventive services. We selected a qualitative
interview study design for this investigation, which was conducted from December 2017
to June 2018. This project involved domain experts rather than human subjects as defined
by 45 CFR part 46, and therefore institutional review board approval was not required.
Recruitment of experts
We first identified experts with a background in working with decision makers in health
care. We then narrowed our selection to 12 experts, each of whom had at least 10 years
of experience in working with one or more types of organizations, including health
systems, hospitals or physician groups, commercial payers, or state Medicaid agencies.
We then conducted a short screening interview to confirm appropriate expertise and
willingness to participate. After this initial selection process, we scheduled a 1-hour
semistructured interview with each of 9 participants. Before beginning the interviews,
the participants confirmed that they had no conflicts of interest that might bias
their comments and that they would not disclose any confidential or proprietary information
about the organizations for which they currently or previously worked. We tabulated
details of their expertise (Table 1).
Table 1
Areas of Focus of Subject Matter Experts (N = 9) Participating in a Qualitative Interview
Study Designed to Gather Information for Developing Strategies, Programs, and Partnerships
Across the Health Care Industry to Increase Utilization of Preventive Services, 2018
Industry Sector
Role
Areas of Focus
Payers
Set payment models for preventive services or programs
Health plan collaborations with focus on value-based care transformation, population
health, and consumerism
Policies, processes, strategies, and information technology systems associated with
successful Medicaid and Children’s Health Insurance Program programs, and other human
services programs
Health systems
Develop and manage delivery of preventive services
Quality management for large health systems, including implementing health information
technology and electronic health record transformations
Strategy and operations effectiveness of health systems, including care management,
vendor management, system design and implementation, post-merger integration, enterprise
cost reduction
Clinical transformation among health systems with focus on pay for performance and
patient safety
Providers and physicians
Deliver or prescribe preventive services
Customer/patient experience strategies and digital transformation for health care
providers
Physician services design and implementation, including clinical integration, patient
retention and physician loyalty, physician alignment, productivity and compensation,
regulatory compliance, and ambulatory operations
Interview questions
Increasing uptake of preventive services requires multifaceted strategies, including
but not limited to organizational leadership, education, measurement, and reimbursement.
With this in mind, we developed an interview guide (Table 2), which included a series
of questions focused on how payers, health systems, and physicians determine their
clinical and business priorities for resource allocation and quality improvement efforts.
We asked about opportunities to include incentives for the use of preventive services
under current and emerging designs of models for payment and delivery. We included
questions about examples of successful implementation of preventive services strategies
or models and about clinical–community linkages that focus on chronic disease prevention.
Table 2
Interview Questions Used in a Qualitative Interview Study Designed to Gather Information
for Developing Strategies, Programs, and Partnerships Across the Health Care Industry
to Increase Utilization of Preventive Services, 2018
Theme
Questions
Organizational leadership and decision making
How do health systems, payers, or providers determine their priorities (eg, deciding
which strategies to focus on and what metrics to pay attention to, holding their physicians
accountable for certain strategies, prioritizing certain interventions over others)?
What are the primary drivers in the current health care delivery system – including
both payment and delivery model designs – that shape guidelines, standards of care,
or financial incentives?
Facilitators and barriers (measurement and reimbursement)
Could you describe facilitators and barriers that a typical health system faces when
considering or implementing chronic disease prevention services?
What additional opportunities (eg, performance measures, reimbursement structures)
can be leveraged to drive uptake of prevention services among health system stakeholders?
Under the current and emerging designs for models of payment and delivery, what are
opportunities to better incentivize preventive services?
Successful models of prevention
Among the health systems you have worked with, are you familiar with successful implementation
of preventive services, strategies, or models?
Are you aware of any health systems that have implemented innovative community prevention
programs or models that focus on chronic disease prevention?
Although primary prevention was not excluded, much of the discussion focused on secondary
and tertiary prevention related to health care system interventions and community
interventions linked to clinical services. Throughout the interviews, the participants
were encouraged to draw from their experiences with organizations of various capacities
and not to focus only on high-level performers or models that would be difficult for
average organizations to adopt and replicate. Each interview was conducted via teleconference
and facilitated by the first author (S.L.), a senior scientist with expertise in qualitative
research methods.
Interview Findings
Across all interviews, 4 findings emerged as major levers or influencers of preventive
care. These findings cut across all health care industry sectors and organization
types.
Financial and economic considerations. The most prominent theme was finances. All
interviewees highlighted the importance of financial and economic considerations when
organizations determine priorities and make decisions. These decisions include where
to invest resources, what health benefits to cover, or how to bill for clinical services.
In the words of one interviewee, “With no margin, there is no mission.”
Use of metrics to drive change in the health care system. The second finding was related
to metrics and the importance of using metrics to drive change in the health care
system. Interviewees stressed that measures continue to play a crucial role in the
delivery of care, but the “right” metrics — outcome-focused, aligned across payers,
and with sufficient financial incentives or risk — are needed to drive uptake of chronic
disease preventive services. One participant, emphasizing that reporting and monitoring
can drive change, noted, “Once external reporting is in place, measured outcomes are
prioritized.” However, interviewees cautioned about the “metrics fatigue” that is
plaguing health care providers, the misalignment of measures for reporting and quality
ratings, and the current lack of financial risk for outcome measures associated with
preventive care; in other words, payments to providers are not based on improvements
in their patients’ health status.
Role of health care payers. The third finding focused on the role of health care payers
(commercial payers/health plans, Medicaid, and particularly Medicare) in influencing
uptake of preventive care services. Findings coalesced around the opportunities for
payers to drive change in practice. As risk-bearing entities, they provide the payment
models and the influence and incentives that can affect uptake of chronic disease
preventive services. Several interviewees highlighted the importance of data for payers.
As one expert explained, “Payers have the data that can often drive adoption or uptake
of programs and interventions.”
Rapid changes in health care reimbursement models. The fourth finding focused on the
pace of change in health care reimbursement models. The shift from volume-based reimbursement
has been at the forefront of debate and discussion for years, but for typical health
care delivery organizations, the transition to value-based reimbursement is still
in early stages and is uneven across payers. As a result, the transition has not reached
the “tipping point” for providers to change their practice patterns. As one interviewee
observed, “There is some emphasis on value-based care, including focus on outcomes
and reduced spending, but the view is generally short-term.” The health care industry
will continue to move in the direction of value-based care, but changes in provider
practice vary across systems and markets. There is also considerable room for continuing
experimentation and evaluation to determine what reimbursement models work best and
for whom.
Discussion
Industry experts participating in this stakeholder interview process made it clear
that most players in the health care system are aware of recommended preventive care
services and understand the benefit of preventing disease for the patient and the
larger health care system. Underutilization of preventive services is largely the
result of an implementation gap rather than an information gap; in other words, providers
do not prioritize preventive care services although they know that preventive services
can reduce the incidence and burden of chronic diseases. A major reason the implementation
gap exists is that financial incentives do not align with a focus on preventing chronic
diseases. Currently, most providers, including hospitals and physicians, are paid
to treat rather than to prevent disease. Payers have the potential to increase utilization
of preventive services with value-based payment models and contractual requirements
that include reporting on preventive health quality measures.
As the participants in our study offered their perspectives on the barriers and influences
surrounding the coverage and delivery of preventive care services, much of the conversation
focused on the influence of financial considerations on uptake of preventive care.
However, participants generally agreed that financial incentives alone are unlikely
to result in positive changes in the absence of a multipronged approach to increasing
preventive services among people at risk of or living with chronic diseases. A multipronged
approach would include strong organizational leadership, shifts in institutional culture,
team-based care, systems of care that accommodate preventive services, and willingness
of patients to seek out and engage in preventive care.