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      Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey

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          Abstract

          Background

          Currently, WeChat is widely used in disease education for patients with Crohn’s disease (CD) in China. It is beneficial for the patients to actively engage in their disease management.

          Methods

          In this study, we examined the source and expectations of disease information for Chinese CD patients, analysing the content of popular WeChat public accounts and their potential association with medication adherence.

          Results

          Between November 24th, 2017 and April 10th, 2018, online questionnaires were sent to CD patients from eight different large urban hospitals in China. In all, 436 patients with CD were surveyed, and 342 patients responded. Patients most frequently visited Baidu (65%) , WeChat (61%) and medical websites such as Haodaifu (35%) when searching for IBD-related information. Among ten WeChat IBD public accounts, the China Crohn’s and Colitis Foundation (CCCF) (73%), “ IBD Academic Officer” (21%) and “ IBD in love” (21%) were the most popular. CD patients were most interested in information from the internet about diet and day-to-day health-related living with IBD (83%), an introduction to the disease (80%), and medication advances and side effects (80%). The correlation between the information provided by the top five WeChat public accounts and patients’ expectations was low. Additionally, most patients (64%) had greater confidence in overcoming the disease after learning about CD through their internet searches. Medical adherence was also related to internet access and income ( p < 0.05).

          Conclusions

          WeChat has become a major source of information for IBD education in China, but the content of WeChat didn’t fully meet patients’ expectations. Therefore, future initiatives should aim to provide high-quality information that based on patients’ demands.

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          Most cited references16

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          Information needs and preferences of recently diagnosed patients with inflammatory bowel disease.

          The aim of this study was to assess the information needs and experiences of patients who were recently diagnosed with inflammatory bowel disease (IBD). Seventy-four patients, diagnosed with Crohn's disease or ulcerative colitis, 3-24 months previously were recruited from gastroenterology practices and completed the information needs survey. The most frequent sources of information in the first 2 months after diagnosis were the gastroenterologist and the Internet. In all, 24% of patients reported feeling dissatisfied with the information they were given at the time of their diagnosis, 31% were moderately satisfied, and 45% were very satisfied. There were many areas of information about the disease, its treatment, and self management that patients considered to be important and received little or no information about. When patients described how they would prefer to receive information if they were considering a new treatment in the future, 68% indicated that they preferred information from a medical specialist. Given the large number of topics judged by patients to be important and the complexity of the information required, it would be very difficult to communicate this information in oral discussion during typical consultation visits. Supplementing physician-patient consultations with well-designed written information or a Website recommendation may produce more effective communication and education. Patients rated these sources of information as having a high level of acceptability.
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            YouTube and inflammatory bowel disease.

            Background and aims Nearly half of all patients with inflammatory bowel disease (IBD) use the Internet as a source of information for their disease. We analyzed the source, content and accuracy of IBD videos found on YouTube - one of the most popular websites in the United States - and assessed the demographic variables of the viewers.
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              WeChat Public Account Use Improves Clinical Control of Cough-Variant Asthma: A Randomized Controlled Trial

              Background WeChat is a convenient and popular social medium, and it seems to be an appropriate platform for education and management of patients. This study sought to identify usefulness in clinical control of cough-variant asthma (CVA). Material/Methods A randomized controlled trial was conducted among 80 CVA patients. After being assigned to either the traditional group (TG) or the WeChat group (WG), they received the same inhalation therapy, but patients in WG received additional education and instruction via our public account on the WeChat application. Questionnaires on asthma and chronic cough, data on pulmonary function, blood-related items, follow-up adherence, and Emergency Department (ED) visits were collected at the initial visit and at 3 months. Results A total of 67 participants completed the trial for analysis. FEV1/predicted and FEV1/FVC were significantly increased in WG (p<0.001; p=0.012) after 3 months. PD20-FEV1 was increased in both groups compared with baseline, but more pronounced in WG (p=0.004). ACQ-7 scores were improved in both groups (p=0.024; p<0.001). Participants allocated to WG experienced a greater improvement in AQLQ and LCQ scores, and between-group differences were significant at 3 months (p=0.040; p=0.001). Furthermore, we observed decreases in blood eosinophil count and FeNO in WG (p=0.048; p=0.014), and WG presented better follow-up compliance (p=0.034). Conclusions Using WeChat as part of treatment and management of CVA can help patients learn about their disease and medications, as well as improve disease control and therapy outcomes.
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                Author and article information

                Contributors
                yuqiao@zju.edu.cn
                xuly2016@zju.edu.cn
                3120102837@zju.edu.cn
                merryzh@163.com
                gyb11809@rjh.com.cn
                sunwingwxy@163.com
                hguoxqyy@163.com
                yuelee2001@sina.com
                yhfansjr@163.com
                blyang1971@163.com
                xuemeng@zju.edu.cn
                lvminfang1972@outlook.com
                xudingting1015@163.com
                zhanghanyun@zju.edu.cn
                liyan_8786@zju.edu.cn
                zsympanda@aliyun.com
                dengqun@zju.edu.cn
                xiaoxuhuang0909@126.com
                amzj0930@163.com
                huwen_mc@163.com
                zhuyimiao01@163.com
                2503024@zju.edu.cn
                jtcai6757@zju.edu.cn
                86-057187783542 , chenyan72_72@zju.edu.cn
                Journal
                BMC Gastroenterol
                BMC Gastroenterol
                BMC Gastroenterology
                BioMed Central (London )
                1471-230X
                20 June 2019
                20 June 2019
                2019
                : 19
                : 97
                Affiliations
                [1 ]ISNI 0000 0004 1759 700X, GRID grid.13402.34, Center for Inflammatory Bowel Diseases, Department of Gastroenterology, , The Second Affiliated Hospital, School of Medicine, Zhejiang University, ; No. 88, Jiefang Road, Hangzhou, 310009 Zhejiang Province China
                [2 ]GRID grid.488525.6, Department of Gastroenterology, , the Sixth Affiliated Hospital of Sun Yat-sen University, ; Guangzhou, Guangdong Province China
                [3 ]ISNI 0000 0004 1760 6738, GRID grid.412277.5, Department of Gastroenterology, , Rui Jin Hospital, Affiliated to Shanghai Jiao Tong University, School of Medicine, ; Shanghai, China
                [4 ]ISNI 0000 0004 1771 3058, GRID grid.417404.2, Department of Gastroenterology, , Zhujiang Hospital, Southern Medical University, ; Guangzhou, Guangdong Province China
                [5 ]ISNI 0000 0004 1762 4928, GRID grid.417298.1, Department of Gastroenterology, , Xinqiao Hospital, Army Medical University, ; Chongqing, China
                [6 ]ISNI 0000 0000 9889 6335, GRID grid.413106.1, Department of Gastroenterology, , Peking Union Medical College Hospital, ; Beijing, China
                [7 ]ISNI 0000 0004 1799 0055, GRID grid.417400.6, Department of Gastroenterology, , Zhejiang Provincial Hospital of Traditional Chinese Medicine, ; Hangzhou, Zhejiang Province China
                [8 ]ISNI 0000 0004 1765 1045, GRID grid.410745.3, Department of Colorectal Surgery, , the Affiliated Hospital of Nanjing University of Chinese Medicine, ; Nanjing, Jiangsu Province China
                [9 ]GRID grid.412465.0, Department of Oncology Surgery, , the Second Affiliated Hospital, Zhejiang University School of Medicine, ; Hangzhou, Zhejiang Province China
                [10 ]GRID grid.412465.0, Department of Nutrition, , the Second Affiliated Hospital, Zhejiang University School of Medicine, ; Hangzhou, Zhejiang Province China
                Article
                1011
                10.1186/s12876-019-1011-3
                6584988
                31221086
                d4a51212-06d4-4d1c-a7e2-fc7f315e4a0d
                © The Author(s). 2019

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

                History
                : 27 February 2019
                : 4 June 2019
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/501100001809, National Natural Science Foundation of China;
                Award ID: 81700455
                Award Recipient :
                Funded by: Department of Science and Technology of Zhejiang Province
                Award ID: 2014C03041-1
                Award Recipient :
                Categories
                Research Article
                Custom metadata
                © The Author(s) 2019

                Gastroenterology & Hepatology
                multicentre,questionnaire survey,internet,social media,inflammatory bowel disease,crohn’s disease

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