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      Optimizing patient and public involvement (PPI): Identifying its “essential” and “desirable” principles using a systematic review and modified Delphi methodology

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          Abstract

          Background

          There is international interest in the active involvement of patients and the public. However, consensus on how best to optimize its application is currently unavailable.

          Objective

          To identify and assess the underlying principles of patient and public involvement ( PPI) in health and social care services, research, education and regulation across medicine, dentistry and nursing.

          Design

          A four‐phase methodology: (i) an extensive systematic review of published and grey literature; (ii) inductive thematic analysis of review findings; (iii) development of best practice principles; and (iv) consensus testing of identified principles using a modified Delphi methodology.

          Setting and participants

          Twelve systematic reviews and 88 grey literature publications were reviewed leading to the unique identification of 13 principles later assessed by 18 PPI experts.

          Results

          Essential consensus (>75% agreement) was obtained for nine principles reviewed. Working in equal partnership and sharing information achieved the highest consensus rates: 16/17 essential 94.1%; 1/17 desirable 5.8%. The four remaining principles that failed to reach essential consensus were categorized as desirable by expert respondents. No principles were considered irrelevant. No alternatives were suggested.

          Discussion

          Expert respondents suggest essential principles must be achieved to optimize PPI best practice. To advance PPI practice, desirable principles should also be aspired to wherever possible.

          Conclusions

          This study's innovative approach advances existing knowledge by providing previously unavailable consensus about PPI best practice. Research findings hold important theoretical and practical implications for educators, regulators, researchers and practitioners looking to effectively work together.

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          Most cited references16

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          The Delphi method as a research tool: an example, design considerations and applications

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            Consulting the oracle: ten lessons from using the Delphi technique in nursing research.

            The aim of this paper was to provide insight into the Delphi technique by outlining our personal experiences during its use over a 10-year period in a variety of applications. As a means of achieving consensus on an issue, the Delphi research method has become widely used in healthcare research generally and nursing research in particular. The literature on this technique is expanding, mainly addressing what it is and how it should be used. However, there is still much confusion and uncertainty surrounding it, particularly about issues such as modifications, consensus, anonymity, definition of experts, how 'experts' are selected and how non-respondents are pursued. This issues that arise when planning and carrying out a Delphi study include the definition of consensus; the issue of anonymity vs. quasi-anonymity for participants; how to estimate the time needed to collect the data, analyse each 'round', feed back results to participants, and gain their responses to this feedback; how to define and select the 'experts' who will be asked to participate; how to enhance response rates; and how many 'rounds' to conduct. Many challenges and questions are raised when using the Delphi technique, but there is no doubt that it is an important method for achieving consensus on issues where none previously existed. Researchers need to adapt the method to suit their particular study.
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              An evidence-based practice guideline for the peer review of electronic search strategies.

              Complex and highly sensitive electronic literature search strategies are required for systematic reviews; however, no guidelines exist for their peer review. Poor searches may fail to identify existing evidence because of inadequate recall (sensitivity) or increase the resource requirements of reviews as a result of inadequate precision. Our objective was to create an annotated checklist for electronic search strategy peer review. A systematic review of the library and information retrieval literature for important elements in electronic search strategies was conducted, along with a survey of individuals experienced in systematic review searching. Six elements with a strong consensus as to their importance in peer review were accurate translation of the research question into search concepts, correct choice of Boolean operators and of line numbers, adequate translation of the search strategy for each database, inclusion of relevant subject headings, and absence of spelling errors. Seven additional elements had partial support and are included in this guideline. This evidence-based guideline facilitates the improvement of search quality through peer review, and thus the improvement in quality of systematic reviews. It is relevant for librarians/information specialists, journal editors, developers of knowledge translation tools, research organizations, and funding bodies.
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                Author and article information

                Contributors
                rebecca.baines@plymouth.ac.uk
                Journal
                Health Expect
                Health Expect
                10.1111/(ISSN)1369-7625
                HEX
                Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
                John Wiley and Sons Inc. (Hoboken )
                1369-6513
                1369-7625
                19 September 2017
                February 2018
                : 21
                : 1 ( doiID: 10.1111/hex.2018.21.issue-1 )
                : 327-335
                Affiliations
                [ 1 ] Collaboration for the Advancement of Medical Education Research & Assessment University of Plymouth Plymouth UK
                Author notes
                [*] [* ] Correspondence

                Rebecca Baines, University of Plymouth, Peninsula Schools of Medicine and Dentistry, Plymouth, UK

                Email: rebecca.baines@ 123456plymouth.ac.uk

                Author information
                http://orcid.org/0000-0001-9857-1976
                http://orcid.org/0000-0003-4714-7408
                Article
                HEX12618
                10.1111/hex.12618
                5750770
                28929554
                d5e34546-4902-4336-90e7-ab82d596c7b0
                © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd

                This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                History
                : 01 August 2017
                Page count
                Figures: 3, Tables: 3, Pages: 9, Words: 5800
                Funding
                Funded by: The Health Foundation
                Categories
                Original Research Paper
                Original Research Papers
                Custom metadata
                2.0
                hex12618
                February 2018
                Converter:WILEY_ML3GV2_TO_NLMPMC version:5.2.8 mode:remove_FC converted:15.01.2018

                Health & Social care
                delphi,health care,patient and public involvement,qualitative
                Health & Social care
                delphi, health care, patient and public involvement, qualitative

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