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      Health care staff support for mothers in NICU: a focused ethnography study

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          Abstract

          Background

          Mothers of premature newborns in the neonatal intensive care unit (NICU) have complex needs and require a significant amount of support during the NICU admission. However, little is known about mothers' support needs in the NICU. This study aimed to explore health care staff and mothers' experiences of meeting the mothers support needs in the NICU.

          This study aimed to explore health care staff and mothers' experiences of meeting the mothers' support needs in the NICU .

          Methods

          A focused ethnographic approach was adopted. Observations and interviews with 21 mothers, 18 nurses, and five physicians were undertaken over a seven months period. Qualitative data analysis was conducted using the Roper and Shapira (2000) five-step framework.

          Result

          Two main themes of “insufficient provision of the mothers' support needs” (subthemes: inadequate accompany of the mothers in care, assigning monitoring and care to the mothers, inadequate sharing of medical the information) and “supporting the mothers in certain circumstances” (subthemes: reassuring the mothers, supporting the mothers with reduced functional capacity, providing information) were obtained.

          Conclusion

          The mothers experienced a gap between expected and actual support provided by health care staff. Although, the health care staff believed that mothers' support was a necessity, it was not their main concerns, and they considered workload as a barrier for the mothers support in the NICU.

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          Most cited references39

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          Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU.

          To provide clinicians with evidence-based strategies to optimize the support of the family of critically ill patients in the ICU.
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            Translation and back-translation in qualitative nursing research: methodological review.

            To examine the effects of the procedure of translation and the techniques used on the collection and interpretation of original language qualitative data for English presentation. Nursing and health research increasingly use qualitative research for a broadened perspective on practice and research. In numerous qualitative nursing research papers, data are collected in the original language (example Chinese) and the findings are presented in English. No standardised procedures exist for evaluating the influences of translation on the trustworthiness of qualitative data in nursing research. Translation and back-translation related literature review was conducted. This is a methodological review paper. Discussion. This paper discusses the factors influencing the quality of translation including translator, back-translation, culture and language. Additionally, the translation procedures reported in the literature and the author's experiences are considered. The translation procedures described in qualitative nursing research can be summarised as: 1 Verbatim transcription of the content in original language, and then analysis of content; 2 Two bilingual translators are necessary to translate the emerged concepts and categories; 3 Back translate is employed; 4 An expert panel committee is involved in reaching final agreement on the translation. Development of the translation procedures could provide qualitative nursing researchers with a guide when collecting data in one language and presenting results in another language. In this way, the necessary rigour in qualitative nursing research could be achieved.
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              Parental Stressor Scale: neonatal intensive care unit.

              This article is a report of the development of the Parental Stressor Scale: Neonatal Intensive Care Unit (PSS:NICU), which is designed to measure parental perception of stressors arising from the physical and psychosocial environment of the neonatal intensive care unit. Stress theory, literature reviews, expert consultation, and parent interviews guided instrument development and refinement and established the content validity of the instrument. Construct validity is supported by links with theory, correlation with anxiety measures, and factor analytic results. Alpha coefficients support the tool's internal consistency. Three scales were identified: Parental Role Alterations, Sights and Sounds of the Unit, and Infant Behavior and Appearance. Available metrics allow scoring for stress occurrence levels, overall stress levels, and number of stressors experienced. The PSS:NICU can serve as a research or clinical measure to evaluate stressors experienced by parents with infants in a NICU.
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                Author and article information

                Contributors
                negarandeh@gmail.com
                hassankhanihadi@gmail.com
                jabraeilim@gmail.com
                m.abbaszadeh2014@gmail.com
                a.best@massey.ac.nz
                Journal
                BMC Pregnancy Childbirth
                BMC Pregnancy Childbirth
                BMC Pregnancy and Childbirth
                BioMed Central (London )
                1471-2393
                21 July 2021
                21 July 2021
                2021
                : 21
                : 520
                Affiliations
                [1 ]GRID grid.411705.6, ISNI 0000 0001 0166 0922, Nursing and Midwifery Care Research Center, , Tehran University of Medical Sciences, ; Tehran, Iran
                [2 ]GRID grid.412888.f, ISNI 0000 0001 2174 8913, Center of Qualitative Studies, Department of Medical Surgical Nursing, School of Nursing and Midwifery, , Tabriz University of Medical Sciences, ; Tabriz, Iran
                [3 ]GRID grid.412888.f, ISNI 0000 0001 2174 8913, School of Nursing and Midwifery, , Tabriz University of Medical Sciences, ; Tabriz, Iran
                [4 ]Department of Sociology, University of University, Tabriz, Iran
                [5 ]Campus Teacher, School of Nursing, Massey University Wellington, Wellington, Australia
                Author information
                http://orcid.org/0000-0002-6400-0806
                Article
                3991
                10.1186/s12884-021-03991-3
                8296702
                34289802
                d85d6966-414c-4064-a844-61474c69a15c
                © The Author(s) 2021

                Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

                History
                : 27 July 2020
                : 8 July 2021
                Categories
                Research Article
                Custom metadata
                © The Author(s) 2021

                Obstetrics & Gynecology
                mother,support,nurse,ethnography,neonatal intensive care unit
                Obstetrics & Gynecology
                mother, support, nurse, ethnography, neonatal intensive care unit

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