Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis.

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Abstract

The risk of psychosocial harm in families of infants with false-positive (FP) newborn bloodspot screening (NBS) results for cystic fibrosis (CF) is a longstanding concern. Whether well designed retrieval and confirmatory testing systems can mitigate risks remains unknown.

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Journal

Journal ID (iso-abbrev): Pediatrics

Title: Pediatrics

Publisher: American Academy of Pediatrics (AAP)

ISSN (Electronic): 1098-4275

ISSN (Print): 0031-4005

Publication date (Electronic): September 2016

Volume: 138

Issue: 3

Affiliations

[1 ] Child Health Evaluative Sciences, Research Institute, The Hospital for Sick Children, Toronto, Canada; Institute of Health Policy, Management and Evaluation, robin.hayeems@sickkids.ca.

[2 ] Institute of Health Policy, Management and Evaluation.

[3 ] Institute of Health Policy, Management and Evaluation, Li Ka Shing Knowledge Institute of St. Michael's Hospital, Toronto, Canada;

[4 ] Psychology, Departments of Pediatrics and.

[5 ] Divisions of Clinical and Metabolic Genetics.

[6 ] Family and Community Medicine, Sinai Health System, University of Toronto, Toronto, Canada;

[7 ] School of Epidemiology, Public Health & Preventive Medicine.

[8 ] Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Canada; Newborn Screening Ontario, Children's Hospital of Eastern Ontario, Ottawa, Canada;

[9 ] Newborn Screening Ontario, Children's Hospital of Eastern Ontario, Ottawa, Canada;

[10 ] Institute of Health Policy, Management and Evaluation, Department of Public Health, University of Helsinki, Helsinki, Finland;

[11 ] Pediatric Medicine, and.

[12 ] Children's Hospital of Western Ontario, London, Ontario, Canada; and.

[13 ] Departments of Pediatrics and Pediatric Medicine, and Respiratory Medicine, Departments of Pediatrics and.

[14 ] Child Health Evaluative Sciences, Research Institute, The Hospital for Sick Children, Toronto, Canada; Institute of Health Policy, Management and Evaluation, Departments of Pediatrics and Pediatric Medicine, and Institute for Clinical Evaluative Sciences, Toronto, Canada.

Article

Publisher Item ID: peds.2016-1052

DOI: 10.1542/peds.2016-1052

PubMed ID: 27485696

SO-VID: de59084c-828f-4ccf-b038-15599d158931

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