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Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

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      Abstract

      BackgroundSocial network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited.ObjectiveThis study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer.MethodsWe searched Facebook (www.Facebook.com) using the term breast cancer. We restricted our analysis to groups that were related to breast cancer, operated in English, and were publicly available. Two of us independently extracted information on the administrator and purpose of the group, as well as the number of user-generated contributions. We developed a coding scheme to guide content analysis.ResultsWe found 620 breast cancer groups on Facebook containing a total of 1,090,397 members. The groups were created for fundraising (277/620, 44.7%), awareness (236, 38.1%), product or service promotion related to fundraising or awareness (61, 9%), or patient/caregiver support (46, 7%). The awareness groups as a whole contained by far the most members (n = 957,289). The majority of groups (532, 85.8%) had 25 wall posts or fewer. The support oriented groups, 47% (27/57) of which were established by high school or college students, were associated with the greatest number of user-generated contributions.ConclusionsFacebook groups have become a popular tool for awareness-raising, fundraising, and support-seeking related to breast cancer attracting over one million users. Given their popularity and reach, further research is warranted to explore the implications of social network sites as a health resource across various health conditions, cultures, ages, and socioeconomic groups.

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      Most cited references 47

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          Being immersed in social networking environment: Facebook groups, uses and gratifications, and social outcomes.

          A Web survey of 1,715 college students was conducted to examine Facebook Groups users' gratifications and the relationship between users' gratifications and their political and civic participation offline. A factor analysis revealed four primary needs for participating in groups within Facebook: socializing, entertainment, self-status seeking, and information. These gratifications vary depending on user demographics such as gender, hometown, and year in school. The analysis of the relationship between users' needs and civic and political participation indicated that, as predicted, informational uses were more correlated to civic and political action than to recreational uses.
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            Author and article information

            Affiliations
            3simpleDepartment of Health Policy, Management and Evaluation simpleUniversity of Toronto Toronto, ONCanada
            2simpleDalla Lana School of Public Health simpleUniversity of Toronto Toronto, ONCanada
            1simpleCentre for Global eHealth Innovation simpleUniversity Health Network Toronto, ONCanada
            Contributors
            Journal
            J Med Internet Res
            JMIR
            Journal of Medical Internet Research
            Gunther Eysenbach (Centre for Global eHealth Innovation, Toronto, Canada )
            1438-8871
            Jan-Mar 2011
            04 February 2011
            : 13
            : 1
            3221337
            v13i1e16
            21371990
            10.2196/jmir.1560
            (Editor), (Reviewer), (Reviewer),
            ©Jacqueline, L Bender, Maria-Carolina Jimenez-Marroquin, Alejandro R Jadad. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 04.02.2011.

            This is an open-access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.

            Categories
            Original Paper

            Medicine

            fundraising, internet, facebook, breast cancer, supportive care, peer support, health promotion

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