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Desempenho motor de aluno com paralisia cerebral discinética frente à adaptação das propriedades físicas de recurso pedagógico Translated title: Motor performance of students with dyskinetic cerebral palsy and the adaptation of physical properties of educacional resources

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      Abstract

      O objetivo deste estudo foi o de analisar as propriedades físicas modificadas de um recurso pedagógico para facilitação do manuseio de uma criança com paralisia cerebral do tipo discinética. O participante do estudo foi uma criança com paralisia cerebral do tipo discinética com idade de seis anos e matriculada na rede regular de ensino da educação infantil. O recurso pedagógico escolhido foi um jogo de encaixe, em que as propriedades físicas de peso, tamanho e textura foram modificadas. A análise foi feita em relação à qualidade do movimento do membro superior para as variáveis: índice de retidão, deslocamento escalar (s), velocidade média (Vm) e tempo (t). Os resultados evidenciaram que a combinação entre tamanho grande e peso pesado não se mostrou satisfatória, desde a ação de preensão do recurso pedagógico, até o ato de encaixe. Também houve inconsistência nas respostas obtidas nas ações de crianças com paralisia cerebral. Há uma variação nos resultados, sem que ocorra um padrão a ser estabelecido. Desta forma, o presente estudo contribuiu para a compreensão das respostas motoras de uma criança com paralisia cerebral do tipo discinética quando submetida à atividade de encaixe com recursos pedagógicos em que as propriedades físicas foram modificadas.

      Translated abstract

      The main purpose of this study was to analyze the modified physical properties of an educational resource for facilitating the handling of a child with dyskinetic cerebral palsy. The participant of the study was a six year old child with dyskinetic cerebral palsy enrolled in a regular early childhood education classroom. The educational resource that was selected was a brick game, in which the physical properties of weight, size and texture had been modified. The analysis was made regarding the quality of upper limb movement to the variables: righting index, scalar displacement (s), average speed (As) and time (t). The results showed that combined large size and heavy weight did not have a satisfactory outcome, affecting both grasping the educational resource and fitting. There was also inconsistency in children with cerebral palsy's responses. There is variation in the results, though a standard cannot be established. Thus, this study contributed to understanding the motor responses of a child with dyskinetic cerebral palsy when participating in a fitting activity with educational resources in which the physical properties had been modified.

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      The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability.

      The Manual Ability Classification System (MACS) has been developed to classify how children with cerebral palsy (CP) use their hands when handling objects in daily activities. The classification is designed to reflect the child's typical manual performance, not the child's maximal capacity. It classifies the collaborative use of both hands together. Validation was based on the experience within an expert group, a review of the literature, and thorough analysis of children across a spectrum of function. Discussions continued until consensus was reached, first about the constructs, then about the content of the five levels. Parents and therapists were interviewed about the content and the description of levels. Reliability was tested between pairs of therapists for 168 children (70 females, 98 males; with hemiplegia [n=52], diplegia [n=70], tetraplegia [n=19], ataxia [n=6], dyskinesia [n=19], and unspecified CP [n=2]) between 4 and 18 years and between 25 parents and their children's therapists. The results demonstrated that MACS has good validity and reliability. The intraclass correlation coefficient between therapists was 0.97 (95% confidence interval 0.96-0.98), and between parents and therapist was 0.96 (0.89-0.98), indicating excellent agreement.
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        Low back pain in adult female caregivers of children with physical disabilities.

        Low back pain (LBP) in occupational settings has been studied extensively. There are fewer studies on LBP in domestic settings, especially in an informal caregiving setting. To compare the prevalence of LBP in adult female primary caregivers of children with physical disabilities who need assistance with transfers (eg, moving from a bed to a wheelchair) with the prevalence of LBP in adult female primary caregivers of children with nondisabling medical illnesses and to evaluate the factors associated with LBP. A 15-minute, self-administered, cross-sectional survey. University-based clinics. Subjects Ninety consecutive adult female caregivers of children presenting to a pediatric physical medicine and rehabilitation clinic and 23 consecutive adult female caregivers of children presenting to a pediatric endocrine clinic were studied. General exclusionary criteria included the following: male sex, a history of back surgery or fracture, the caregiver was younger than 18 years old at the time of the completion of the questionnaire, or the caregiver was caring for any child younger than 2 years old. Caregivers visiting the pediatric endocrine clinic were excluded if they were caring for 1 or more children needing assistance with transfers. The dependent variable was the presence of LBP. The independent variables were mood, work status, amount of lifting at work, physical functioning of the child, demographic variables of the caregiver, and demographic variables of the child. The prevalence of having LBP (71.1%) in the physical medicine and rehabilitation group is higher than the prevalence (43.5%) in the endocrine clinic group (odds ratio, 3.2; 95% confidence interval, 1.25-8.21). The prevalence of having LBP (80.3%) when the child required physical assistance with transfers was significantly higher than the prevalence (40.5%) when the child did not require physical assistance with transfers (odds ratio, 2.56; 95% confidence interval, 2.56-14.0). Forward multiple logistic regression showed that the factors related to LBP in the caregiver were the transferability of the child, mood of the caregiver, and a history of LBP in the caregiver. The prevalence of LBP is higher in caregivers of children needing assistance with transfers. This increased prevalence is associated with the transferability of the child and mood of the caregiver. Results of this study suggest that physical and psychological factors both contribute to the presence of nonoccupational LBP.
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          Manual de ergonomia: adaptando o trabalho ao homem

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            Author and article information

            Affiliations
            [1 ] Universidade Estadual Paulista Brazil
            [2 ] Universidade Estadual de Campinas Brazil
            [3 ] Universidade Estadual Paulista Brazil
            Contributors
            Role: ND
            Role: ND
            Role: ND
            Journal
            rbee
            Revista Brasileira de Educação Especial
            Rev. bras. educ. espec.
            Associação Brasileira de Pesquisadores em Educação Especial - ABPEE (Marília )
            1980-5470
            June 2013
            : 19
            : 2
            : 257-272
            S1413-65382013000200009 10.1590/S1413-65382013000200009

            http://creativecommons.org/licenses/by/4.0/

            Product
            Product Information: SciELO Brazil
            Categories
            EDUCATION & EDUCATIONAL RESEARCH
            EDUCATION, SPECIAL

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