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      Use of Web 2.0 Social Media Platforms to Promote Community-Engaged Research Dialogs: A Preliminary Program Evaluation

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          Abstract

          Background

          Community-engaged research is defined by the Institute of Medicine as the process of working collaboratively with groups of people affiliated by geographic proximity, special interests, or similar situations with respect to issues affecting their well-being. Traditional face-to-face community-engaged research is limited by geographic location, limited in resources, and/or uses one-way communications. Web 2.0 technologies including social media are novel communication channels for community-engaged research because these tools can reach a broader audience while promoting bidirectional dialogs.

          Objective

          This paper reports on a preliminary program evaluation of the use of social media platforms for promoting engagement of researchers and community representatives in dialogs about community-engaged research.

          Methods

          For this pilot program evaluation, the Clinical and Translational Science Office for Community Engagement in Research partnered with the Social Media Network at our institution to create a WordPress blog and Twitter account. Both social media platforms were facilitated by a social media manager. We used descriptive analytics for measuring engagement with WordPress and Twitter over an 18-month implementation period during 2014-2016. For the blog, we examined type of user (researcher, community representative, other) and used content analysis to generate the major themes from blog postings. For use of Twitter, we examined selected demographics and impressions among followers.

          Results

          There were 76 blog postings observed from researchers (48/76, 64%), community representatives (23/76, 32%) and funders (5/76, 8%). The predominant themes of the blog content were research awareness and dissemination of community-engaged research (35/76, 46%) and best practices (23/76, 30%). For Twitter, we obtained 411 followers at the end of the 18-month evaluation period, with an increase of 42% (from 280 to 411) over the final 6 months. Followers reported varied geographic location (321/411, 78%, resided in the United States); 99% (407/411) spoke English; and about half (218/411, 53%) were female. Followers produced 132,000 Twitter impressions.

          Conclusions

          Researchers and community stakeholders use social medial platforms for dialogs related to community-engaged research. This preliminary work is novel because we used Web 2.0 social media platforms to engage these stakeholders whereas prior work used face-to-face formats. Future research is needed to explore additional social media platforms; expanded reach to other diverse stakeholders including patients, providers, and payers; and additional outcomes related to engagement.

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          Content Analysis : An Introduction to Its Methodology

          Klaus Krippendorff (2004)
          Since the publication of the first edition of Content Analysis: An Introduction to Its Methodology, the textual fabric in which contemporary society functions has undergone a radical transformation -- namely, the ongoing information revolution. Two decades ago, content analysis was largely known in journalism and communication research, and, to a lesser extent, in the social and psychological sciences. Today, content analysis has become an efficient alternative to public opinion research -- a method of tracking markets, political leanings, and emerging ideas, a way to settle legal disputes, and an approach to explore individual human minds. The Second Edition of Content Analysis is a definitive sourcebook of the history and core principles of content analysis as well as an essential resource for present and future studies. The book introduces readers to ways of analyzing meaningful matter such as texts, images, voices -- that is, data whose physical manifestations are secondary to the meanings that a particular population of people brings to them.Organized into three parts, the book examines the conceptual and methodological aspects of content analysis and also traces several paths through content analysis protocols.The author has completely revised and updated the Second Edition, integrating new information on computer-aided text analysis. The book also includes a practical guide that incorporates experiences in teaching and how to advise academic and commercial researchers. In addition, Krippendorff clarifies the epistemology and logic of content analysis as well as the methods for achieving its aims. Author Klaus Krippendorff discusses three distinguishing characteristics of contemporary content analysis: that it is fundamentally empirically grounded, exploratory in process, and predictive or inferential in intent; that it transcends traditional notions of symbols, contents, and intents; and that it has been forced to develop a methodology of its own, one that enables researchers to plan, execute, communicate, reproduce, and critically evaluate an analysis independent of the desirability of its results.Intended as a textbook for advanced undergraduate and graduate students across the social sciences, Content Analysis, Second Edition will also be a valuable resource for practitioners in a variety of disciplines.
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            Imagining Twitter as an Imagined Community

            A. Gruzd, B Wellman, Y. Takhteyev (2011)
            Article 0 comments Cited 91 times – based on 0 reviews     Review now
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              Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research

              Yvonne Joosten, Tiffany Israel, Neely Williams … (2015)
              Problem Engaging communities in research increases its relevance and may speed the translation of discoveries into improved health outcomes. Many researchers lack training to effectively engage stakeholders, whereas academic institutions lack infrastructure to support community engagement. Approach In 2009, the Meharry-Vanderbilt Community-Engaged Research Core began testing new approaches for community engagement, which led to the development of the Community Engagement Studio (CE Studio). This structured program facilitates project-specific input from community and patient stakeholders to enhance research design, implementation, and dissemination. Developers used a team approach to recruit and train stakeholders, prepare researchers to engage with stakeholders, and facilitate an in-person meeting with both. Outcomes The research core has implemented 28 CE Studios that engaged 152 community stakeholders. Participating researchers, representing a broad range of faculty ranks and disciplines, reported that input from stakeholders was valuable and that the CE Studio helped determine project feasibility and enhanced research design and implementation. Stakeholders found the CE Studio to be an acceptable method of engagement and reported a better understanding of research in general. A tool kit was developed to replicate this model and to disseminate this approach. Next Steps The research core will collect data to better understand the impact of CE Studios on research proposal submissions, funding, research outcomes, patient and stakeholder engagement in projects, and dissemination of results. They will also collect data to determine whether CE Studios increase patient-centered approaches in research and whether stakeholders who participate have more trust and willingness to participate in research.
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                Author and article information

                Contributors
                Joyce E Balls-Berry:
                Center for Clinical and Translational ScienceOffice for Community Engagement in ResearchMayo Clinic200 First Street, SWRochester, MN,United States1 507 255 91731 507 538 0850ballsberry.joyce@mayo.edu
                ORCID: http://orcid.org/0000-0003-3497-1115
                Journal
                Journal ID (nlm-ta): JMIR Res Protoc
                Journal ID (iso-abbrev): JMIR Res Protoc
                Journal ID (publisher-id): ResProt
                Title: JMIR Research Protocols
                Publisher: JMIR Publications (Toronto, Canada )
                ISSN (Electronic): 1929-0748
                Publication date Collection: Jul-Sep 2016
                Publication date (Electronic): 09 September 2016
                Volume: 5
                Issue: 3
                Electronic Location Identifier: e183
                Affiliations
                [1] 1Center for Clinical and Translational Science Office for Community Engagement in Research Mayo Clinic Rochester, MNUnited States
                [2] 2Department of Health Sciences Research Division of Epidemiology Mayo Clinic Rochester, MNUnited States
                [3] 3Public Affairs Social and Digital Innovation Unit Mayo Clinic Rochester, MNUnited States
                [4] 4Public Affairs Communications Leadership Unit Mayo Clinic Rochester, MNUnited States
                [5] 5Mayo Clinic Social Media Network Mayo Clinic Rochester, MNUnited States
                [6] 6Department of Cardiovascular Disease Mayo Clinic College of Medicine Rochester, MNUnited States
                [7] 7Department of Internal Medicine Division of Endocrinology Mayo Clinic College of Medicine Rochester, MNUnited States
                [8] 8Center for Clinical and Translational Science Knowledge and Evaluation Research Unit Mayo Clinic Rochester, MNUnited States
                [9] 9Department of Psychiatry and Psychology Behavioral Health Research Program Mayo Clinic Rochester, MNUnited States
                Author notes
                Corresponding Author: Joyce E Balls-Berry ballsberry.joyce@ 123456mayo.edu
                Author information
                https://orcid.org/http://orcid.org/0000-0002-8556-4010
                https://orcid.org/http://orcid.org/0000-0003-3497-1115
                https://orcid.org/http://orcid.org/0000-0002-4474-5448
                https://orcid.org/http://orcid.org/0000-0002-5615-7790
                https://orcid.org/http://orcid.org/0000-0002-0877-046X
                https://orcid.org/http://orcid.org/0000-0003-0595-2898
                https://orcid.org/http://orcid.org/0000-0002-7194-8160
                Article
                Publisher ID: v5i3e183
                DOI: 10.2196/resprot.4808
                PMC ID: 5035380
                PubMed ID: 27613231
                SO-VID: e5191fe6-0c50-41a7-8768-be9b4fbe9960
                Copyright statement: ©Miguel Valdez Soto, Joyce E Balls-Berry, Shawn G Bishop, Lee A Aase, Farris K Timimi, Victor M Montori, Christi A Patten. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 09.09.2016.
                License:

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.

                History
                Date received : 8 June 2015
                Date revision requested : 3 November 2015
                Date revision received : 23 March 2016
                Date accepted : 24 May 2016
                Product
                Self URI: http://www.researchprotocols.org/2016/3/e183/
                Categories
                Subject: Original Paper
                Subject: Original Paper

                Keywords: web 2.0,social media,platforms,analytics,community,engagement,stakeholders,wordpress,twitter,facebook
                Data availability:
                Keywords: web 2.0, social media, platforms, analytics, community, engagement, stakeholders, wordpress, twitter, facebook

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