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      A review of emergency department visits made by youth and adults with autism spectrum disorder from the parent perspective

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          Abstract

          Purpose

          Past research has shown individuals with autism spectrum disorder (ASD) visit hospital emergency departments (ED) at high rates. In order to assist individuals with ASD, their families and health care providers to improve ED care, it is important to understand these encounters in greater detail. The purpose of this paper is to provide a descriptive summary of the ED experiences of adolescents and adults with ASD, from the perspective of their families.

          Design/methodology/approach

          A subset of data from a larger prospective cohort study was used. Specifically, 46 parents of adolescents and adults with ASD provided details concerning 49 ED visits over a 12-month period.

          Findings

          Results suggest a range of presentations requiring ED use, and also diverse profiles of those with ASD who visited the ED, in terms of age, gender, and ASD severity. While overall degree of satisfaction with care received in the ED was high, parents provided recommendations to improve the ED experiences for their family members with ASD.

          Originality/value

          This is the first study to provide detailed accounts of ED visits from the perspective of parents of adolescents and adults with ASD. Families play an important role in the lives of individuals with ASD across the lifespan and it is important to include their perspective to improve hospital-based care for those with ASD.

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          Most cited references 21

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          Is Open Access

          Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study.

          Asperger's syndrome in adulthood is frequently associated with depression, but few studies have explored the lifetime experience of self-reported suicidal ideation and suicide plans or attempts in this clinical group. We aimed to assess this prevalence in a clinical cohort of patients in the UK.
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            Understanding and prevention of suicide in autism

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              Mindful Staff Can Reduce the Use of Physical Restraints When Providing Care to Individuals with Intellectual Disabilities

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                Author and article information

                Contributors
                Journal
                AIA
                10.1108/AIA
                Advances in Autism
                AIA
                Emerald Publishing Limited
                2056-3868
                02 January 2018
                : 4
                : 1
                : 10-18
                Affiliations
                Centre for Addiction and Mental Health, Toronto, Canada
                Department of Psychiatry, University of Toronto , Toronto, Canada
                Department of Psychology, York University , Toronto, Canada.
                Author notes
                Yona Lunsky can be contacted at: yona.lunsky@camh.ca
                Article
                604247 AIA-08-2017-0019.pdf AIA-08-2017-0019
                10.1108/AIA-08-2017-0019
                © Emerald Publishing Limited
                Page count
                Figures: 0, Tables: 5, Equations: 0, References: 29, Pages: 9, Words: 4793
                Product
                Categories
                research-article, Research paper
                cat-HSC, Health & social care
                cat-LID, Learning & intellectual disabilities
                Custom metadata
                yes
                yes
                JOURNAL
                included

                Health & Social care

                Adults, Emergency department, Autism spectrum disorder, Hospital, Adolescents

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