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      ‘I probably wouldn’t want to talk about anything too personal’: A qualitative exploration of how issues of privacy, confidentiality and surveillance in the home impact on access and engagement with online services and spaces for care-experienced young people

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          Abstract

          This paper draws on a qualitative interview-based study that explored online mental health and wellbeing interventions and services for care-experienced young people. The study involved young people ( n = 4), foster carers ( n = 8), kinship carers ( n = 2) and social care professionals ( n = 9) in Wales, UK. The paper reflects on the complexities of online communication in the space of ‘the home’. It documents the ways in which care-experienced young people’s living arrangements can restrict access to services and complicate confidentiality within portals to the virtual world, creating an environment where young people and their carers ‘wouldn’t want to talk about anything too personal’. Drawing on data generated in a study focused on services and interventions to support the mental health and wellbeing of care-experienced children and young people, the paper considers privacy, confidentiality and surveillance in the home and reflects on how associated relational practices impact on care-experienced young people. While the data discussed in this paper was generated during the Covid-19 pandemic, its findings have implications for how care-experienced young people and their carers can be supported to engage with the digital world in the future.

          Plain Language Summary

          When mental health services are delivered online, they are usually accessed from home. Home can be different for young people who grow up in care, with records kept about their day-to-day activities, a lack of access to the digital world and policy governing how they are able to live their lives. We spoke with young people, foster carers and practitioners about what it is like for young people to access mental health services online. The paper discusses how the private home lives of care-experienced children and young people impacts on how they are able to access much needed mental health services. We look at the need to protect the freedom of children in care and care-experienced young people to take risks and access digital spaces like other children and teenagers do, while also recognising the reality of the pressures on practitioners and carers to protect looked after children from harm.

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          Mental health before and during the COVID-19 pandemic: a longitudinal probability sample survey of the UK population

          Summary Background The potential impact of the COVID-19 pandemic on population mental health is of increasing global concern. We examine changes in adult mental health in the UK population before and during the lockdown. Methods In this secondary analysis of a national, longitudinal cohort study, households that took part in Waves 8 or 9 of the UK Household Longitudinal Study (UKHLS) panel, including all members aged 16 or older in April, 2020, were invited to complete the COVID-19 web survey on April 23–30, 2020. Participants who were unable to make an informed decision as a result of incapacity, or who had unknown postal addresses or addresses abroad were excluded. Mental health was assessed using the 12-item General Health Questionnaire (GHQ-12). Repeated cross-sectional analyses were done to examine temporal trends. Fixed-effects regression models were fitted to identify within-person change compared with preceding trends. Findings Waves 6–9 of the UKHLS had 53 351 participants. Eligible participants for the COVID-19 web survey were from households that took part in Waves 8 or 9, and 17 452 (41·2%) of 42 330 eligible people participated in the web survey. Population prevalence of clinically significant levels of mental distress rose from 18·9% (95% CI 17·8–20·0) in 2018–19 to 27·3% (26·3–28·2) in April, 2020, one month into UK lockdown. Mean GHQ-12 score also increased over this time, from 11·5 (95% CI 11·3–11·6) in 2018–19, to 12·6 (12·5–12·8) in April, 2020. This was 0·48 (95% CI 0·07–0·90) points higher than expected when accounting for previous upward trends between 2014 and 2018. Comparing GHQ-12 scores within individuals, adjusting for time trends and significant predictors of change, increases were greatest in 18–24-year-olds (2·69 points, 95% CI 1·89–3·48), 25–34-year-olds (1·57, 0·96–2·18), women (0·92, 0·50–1·35), and people living with young children (1·45, 0·79–2·12). People employed before the pandemic also averaged a notable increase in GHQ-12 score (0·63, 95% CI 0·20–1·06). Interpretation By late April, 2020, mental health in the UK had deteriorated compared with pre-COVID-19 trends. Policies emphasising the needs of women, young people, and those with preschool aged children are likely to play an important part in preventing future mental illness. Funding None.
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            Basics of Qualitative Research : Techniques and Procedures for Developing Grounded Theory

            The Second Edition of this best-selling textbook continues to offer immensely practical advice and technical expertise that will aid researchers in analyzing and interpreting their collected data, and ultimately build theory from it. The authors provide a step-by-step guide to the research act. Full of definitions and illustrative examples, the book presents criteria for evaluating a study as well as responses to common questions posed by students of qualitative research.
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              Mental health of young people: a global public-health challenge.

              Mental disorders account for a large proportion of the disease burden in young people in all societies. Most mental disorders begin during youth (12-24 years of age), although they are often first detected later in life. Poor mental health is strongly related to other health and development concerns in young people, notably lower educational achievements, substance abuse, violence, and poor reproductive and sexual health. The effectiveness of some interventions for some mental disorders in this age-group have been established, although more research is urgently needed to improve the range of affordable and feasible interventions, since most mental-health needs in young people are unmet, even in high-income countries. Key challenges to addressing mental-health needs include the shortage of mental-health professionals, the fairly low capacity and motivation of non-specialist health workers to provide quality mental-health services to young people, and the stigma associated with mental disorder. We propose a population-based, youth focused model, explicitly integrating mental health with other youth health and welfare expertise. Addressing young people's mental-health needs is crucial if they are to fulfil their potential and contribute fully to the development of their communities.
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                Author and article information

                Contributors
                Journal
                Adopt Foster
                Adopt Foster
                AAF
                spaaf
                Adoption & Fostering
                SAGE Publications (Sage UK: London, England )
                0308-5759
                1740-469X
                19 October 2023
                October 2023
                : 47
                : 3 , Special Edition: The digital turn in child and family social work: Challenges, opportunities and imagined futures
                : 277-294
                Affiliations
                [1-03085759231203019]Cardiff University, UK
                [2-03085759231203019]Scottish Covid-19 Inquiry, UK
                [3-03085759231203019]Cardiff University, UK
                [4-03085759231203019]Cardiff University, UK
                [5-03085759231203019]Cardiff University, UK
                [6-03085759231203019]Cardiff University, UK
                [7-03085759231203019]The Fostering Network in Wales, UK
                [8-03085759231203019]Cardiff University, UK
                [9-03085759231203019]Cardiff University, UK
                Author notes
                [*]Lorna Stabler, Cardiff University, College of Arts Humanities and Social Sciences, Glamorgan Building, King Edward VII Avenue, Cardiff, CF10 3XQ, UK. Email: stablerl@ 123456cardiff.ac.uk
                Author information
                https://orcid.org/0000-0003-0742-4271
                Article
                10.1177_03085759231203019
                10.1177/03085759231203019
                10590277
                37873026
                f9f28016-c133-4035-a84c-ae6bf7054d4f
                © The Author(s) 2023

                This article is distributed under the terms of the Creative Commons Attribution 4.0 License ( https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Funding
                Funded by: Health and Care Research Wales, FundRef https://doi.org/10.13039/100012068;
                Funded by: Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement, FundRef https://doi.org/10.13039/501100018954;
                Funded by: UK Research and Innovation, FundRef https://doi.org/10.13039/100014013;
                Award ID: ES/S004351/1
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                Custom metadata
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                mental health,covid-19,care-experienced young people,foster care,children in care,mental health services

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