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      Update on Outcome Measure Development for Large Vessel Vasculitis: Report from OMERACT 12.

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          Abstract

          The rarity of large vessel vasculitis (LVV) is a major factor limiting randomized controlled trials in LVV, resulting in treatment choices in these diseases that are guided mainly by observational studies and expert opinion. Further complicating trials in LVV is the absence of validated and meaningful outcome measures. The Outcome Measures in Rheumatology (OMERACT) vasculitis working group initiated the Large Vessel Vasculitis task force in 2009 to develop data-driven, validated outcome tools for clinical investigation in LVV. This report summarizes the progress that has been made on a disease activity assessment tool and patient-reported outcomes in LVV as well as the group's research agenda.

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          Author and article information

          Journal
          J. Rheumatol.
          The Journal of rheumatology
          The Journal of Rheumatology
          0315-162X
          0315-162X
          Dec 2015
          : 42
          : 12
          Affiliations
          [1 ] From the Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Division of Rheumatology, and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA; Division of Rheumatology, Istanbul University Istanbul Faculty of Medicine; Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine, Istanbul, Turkey; Division of Rheumatology, University of California, Los Angeles, California, USA; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Ohio State University, Columbus, Ohio, USA; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland.S.Z. Aydin, MD, Associate Professor, Division of Rheumatology, Koc University Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Sreih, MD, Assistant Professor of Medicine, Division of Rheumatology, University of Pennsylvania; F. Alibaz-Oner, MD, Division of Rheumatology, Marmara University Faculty of Medicine; A. Gul, Professor, Division of Rheumatology, Istanbul University Istanbul Faculty of Medicine; S. Kamali, Professor, Division of Rheumatology, Marmara University Faculty of Medicine; G. Hatemi, Associate Professor, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; T. Kermani, MD, MS, Assistant Clinical Professor, Division of Rheumatology, University of California at Los Angeles; S.L. Mackie, BM, BCh, PhD, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; A. Mahr, MD, PhD, Professo
          Article
          jrheum.141144 NIHMS703995
          10.3899/jrheum.141144
          4668221
          26077399
          fb0784ba-25e1-4246-9e07-6110be705537
          History

          TAKAYASU ARTERITIS,OUTCOMES,LARGE VESSEL,GIANT CELL ARTERITIS,VASCULITIS

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