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      Vivencias e impacto en la calidad de vida de personas con COVID persistente Translated title: Experiences and impact on the quality of life of people with long COVID

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          Abstract

          Resumen Objetivo Explorar las vivencias de las personas con COVID persistente en el País Vasco transcurrido más de 1 año desde el inicio de la pandemia, con el fin de comprender su impacto en la salud y en el ámbito social, así como detectar posibles áreas de mejora en la asistencia que reciben estas personas con el fin de desarrollar programas de salud que apoyen su recuperación. Método Estudio cualitativo fenomenológico. Como técnica de recogida de datos se realizaron entrevistas en profundidad hasta la saturación del discurso. Se incluyeron pacientes mayores de edad con sintomatología de COVID persistente con un tiempo de evolución mayor de 12 semanas. El contacto con los/las pacientes se realizó a través del Colectivo COVID Persistente de Euskadi. Las entrevistas se realizaron y grabaron con la aplicación ZOOM. Se realizó una trascripción literal de las entrevistas y posteriormente un análisis temático, identificando las primeras unidades de significado y asignando códigos que se agruparon después en las diferentes categorías. Resultados Participaron 20 pacientes. Del análisis de los discursos emergieron tres categorías principales: 1) afectación/impacto en la calidad de vida de los/las pacientes; 2) detección de mejoras en la asistencia sanitaria; y 3) aspectos que reconfortan. Conclusiones Este estudio evidencia el importante impacto en la calidad de vida que sufren estas personas. Es necesario diseñar políticas sanitarias que favorezcan el abordaje personalizado, integral y multidisciplinario de tales pacientes.

          Translated abstract

          Abstract Objective To explore the experiences of people with persistent COVID in the Basque Country more than a year after the start of the pandemic, in order to understand the health and social impact it has, as well as to detect possible areas for improvement in the care that these people receive in order to develop health programms to support their recovery. Method Qualitative phenomenological study. In-depth interviews will be carried out as a data collection technique until saturation of the discourse. Patients of legal age who present persistent COVID symptomatology with an evolution time of more than 12 weeks were included. Contact with the patients was made through the Basque Long COVID Collective. The interviews were carried out and recorded through the ZOOM application. After the literal transcription of the interviews, the thematic analysis will be carried out, identifying the first units of meaning and assigning codes that will later be grouped into the different categories. Results 20 patients participated. A total of three main categories emerged from the analysis of the discourses: 1) affecting/impacting patients’ quality of life; 2) identifying improvements in healthcare; and 3) comforting aspects. Conclusions This study shows the significant impact on the quality of life suffered by these people. It is necessary to design health policies that favour a personalised, comprehensive and multidisciplinary approach to these patients.

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          Most cited references34

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          Clinical Characteristics of Coronavirus Disease 2019 in China

          Abstract Background Since December 2019, when coronavirus disease 2019 (Covid-19) emerged in Wuhan city and rapidly spread throughout China, data have been needed on the clinical characteristics of the affected patients. Methods We extracted data regarding 1099 patients with laboratory-confirmed Covid-19 from 552 hospitals in 30 provinces, autonomous regions, and municipalities in mainland China through January 29, 2020. The primary composite end point was admission to an intensive care unit (ICU), the use of mechanical ventilation, or death. Results The median age of the patients was 47 years; 41.9% of the patients were female. The primary composite end point occurred in 67 patients (6.1%), including 5.0% who were admitted to the ICU, 2.3% who underwent invasive mechanical ventilation, and 1.4% who died. Only 1.9% of the patients had a history of direct contact with wildlife. Among nonresidents of Wuhan, 72.3% had contact with residents of Wuhan, including 31.3% who had visited the city. The most common symptoms were fever (43.8% on admission and 88.7% during hospitalization) and cough (67.8%). Diarrhea was uncommon (3.8%). The median incubation period was 4 days (interquartile range, 2 to 7). On admission, ground-glass opacity was the most common radiologic finding on chest computed tomography (CT) (56.4%). No radiographic or CT abnormality was found in 157 of 877 patients (17.9%) with nonsevere disease and in 5 of 173 patients (2.9%) with severe disease. Lymphocytopenia was present in 83.2% of the patients on admission. Conclusions During the first 2 months of the current outbreak, Covid-19 spread rapidly throughout China and caused varying degrees of illness. Patients often presented without fever, and many did not have abnormal radiologic findings. (Funded by the National Health Commission of China and others.)
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            Post-acute COVID-19 syndrome

            Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is the pathogen responsible for the coronavirus disease 2019 (COVID-19) pandemic, which has resulted in global healthcare crises and strained health resources. As the population of patients recovering from COVID-19 grows, it is paramount to establish an understanding of the healthcare issues surrounding them. COVID-19 is now recognized as a multi-organ disease with a broad spectrum of manifestations. Similarly to post-acute viral syndromes described in survivors of other virulent coronavirus epidemics, there are increasing reports of persistent and prolonged effects after acute COVID-19. Patient advocacy groups, many members of which identify themselves as long haulers, have helped contribute to the recognition of post-acute COVID-19, a syndrome characterized by persistent symptoms and/or delayed or long-term complications beyond 4 weeks from the onset of symptoms. Here, we provide a comprehensive review of the current literature on post-acute COVID-19, its pathophysiology and its organ-specific sequelae. Finally, we discuss relevant considerations for the multidisciplinary care of COVID-19 survivors and propose a framework for the identification of those at high risk for post-acute COVID-19 and their coordinated management through dedicated COVID-19 clinics.
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              Persistent Symptoms in Patients After Acute COVID-19

              This case series describes COVID-19 symptoms persisting a mean of 60 days after onset among Italian patients previously discharged from COVID-19 hospitalization.
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                Author and article information

                Journal
                gs
                Gaceta Sanitaria
                Gac Sanit
                Sociedad Española de Salud Pública y Administración Sanitaria (SESPAS) (Barcelona, Barcelona, Spain )
                0213-9111
                2023
                : 37
                : 102247
                Affiliations
                [3] Vitoria-Gasteiz País Vasco orgnameUniversidad del País Vasco orgdiv1Escuela Universitaria de Enfermería de Vitoria Spain
                [9] orgnameCIBER de Salud Mental (CIBERSAM) España
                [2] Bilbao orgnameOsakidetza Servicio Vasco de Salud orgdiv1Organización Sanitaria Integrada Bilbao Basurto España
                [4] Bizkaia orgnameAcademia de Ciencias de enfermería de Bizkaia España
                [6] Vitoria-Gasteiz orgnameInstituto de Investigación Sanitaria Bioaraba España
                [1] Barakaldo Bizkaia orgnameInstituto de Investigación Sanitaria Biocruces Bizkaia España
                [8] Vitoria-Gasteiz orgnameGobierno Vasco orgdiv1Dirección de Planificación, Ordenación y Evaluación Sanitaria del Gobierno Vasco orgdiv2Departamento de Salud España
                [7] Leioa País Vasco orgnameUniversidad del País Vasco orgdiv1Facultad de Ciencias Sociales y de la Comunicación Spain
                [5] Vitoria-Gasteiz orgnameOsakidetza Servicio Vasco de Salud orgdiv1Organización Sanitaria Integrada Araba España
                Article
                S0213-91112023000100200 S0213-9111(23)03700000200
                10.1016/j.gaceta.2022.102247
                36194958
                feeb5ed5-df08-4855-b595-246b658181e4

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

                History
                : 12 May 2022
                : 17 October 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 35, Pages: 0
                Product

                SciELO Spain

                Categories
                Originales

                Infecciones por coronavirus,COVID persistente,Prestación de atención de salud,Calidad de vida,Investigación cualitativa,Coronavirus infections,Long COVID,Delivery of health care,Quality of life,Qualitative research

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