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      Why managing sciatica is difficult: patients’ experiences of an NHS sciatica pathway. A qualitative, interpretative study

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          Abstract

          Objectives

          Amid a political agenda for integrated, high-value care, the UK is implementing its Low Back and Radicular Pain Pathway. To align care with need, it is imperative to understand the patients’ perspective. The purpose of this study was, therefore, to explore how people experience being managed for sciatica within an National Health Service (NHS) pathway.

          Design

          Qualitative interpretative study.

          Setting

          Musculoskeletal Service in an NHS, Primary Care Trust, UK.

          Participants

          The sample comprised 14 people aged ≥18 years with a clinical presentation of sciatica, who were currently under the care of a specialist physiotherapist (the specialist spinal triage practitioner), had undergone investigations (MRI) and received the results within the past 6 weeks. People were excluded if they had previously undergone spinal surgery or if the suspected cause of symptoms was cauda equina syndrome or sinister pathology. Participants were sampled purposively for variation in age and gender. Data were collected using individual semi-structured interviews (duration: 38–117 min; median: 82.6 min), which were audio-recorded and transcribed verbatim. Data were analysed thematically.

          Results

          A series of problems with the local pathway (insufficient transparency and information; clinician-led decisions; standardised management; restricted access to specialist care; and a lack of collaboration between services) made it difficult for patients to access the management they perceived necessary. Patients were therefore required to be independent and proactive or have agency. This was, however, difficult to achieve (due to the impact of sciatica and because patients lacked the necessary skills, funds and support) and together with the pathway issues, this negated patients’ capability to manage sciatica.

          Conclusions

          This novel paper explores how patients experience the process of being managed within a sciatica pathway. While highlighting the need to align with recommended best practice, it shows the need to be more person-centred and to support and empower patient agency.

          Trial registration number

          ClinicalTrials.gov reference (UOS-2307-CR); Pre-results.

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          Most cited references21

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          How Many Interviews Are Enough?: An Experiment with Data Saturation and Variability

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            Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness

            Background In this article we outline Burden of Treatment Theory, a new model of the relationship between sick people, their social networks, and healthcare services. Health services face the challenge of growing populations with long-term and life-limiting conditions, they have responded to this by delegating to sick people and their networks routine work aimed at managing symptoms, and at retarding – and sometimes preventing – disease progression. This is the new proactive work of patient-hood for which patients are increasingly accountable: founded on ideas about self-care, self-empowerment, and self-actualization, and on new technologies and treatment modalities which can be shifted from the clinic into the community. These place new demands on sick people, which they may experience as burdens of treatment. Discussion As the burdens accumulate some patients are overwhelmed, and the consequences are likely to be poor healthcare outcomes for individual patients, increasing strain on caregivers, and rising demand and costs of healthcare services. In the face of these challenges we need to better understand the resources that patients draw upon as they respond to the demands of both burdens of illness and burdens of treatment, and the ways that resources interact with healthcare utilization. Summary Burden of Treatment Theory is oriented to understanding how capacity for action interacts with the work that stems from healthcare. Burden of Treatment Theory is a structural model that focuses on the work that patients and their networks do. It thus helps us understand variations in healthcare utilization and adherence in different healthcare settings and clinical contexts.
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              Sciatica: review of epidemiological studies and prevalence estimates.

              Review of studies on sciatica prevalence and synthesis of available evidence. To assess the studies on sciatica prevalence, discuss reasons for variation in estimates, provide suggestions for improving accuracy of recording sciatica in epidemiological and outcome studies so as to enable better evaluation of natural history and treatment effect in the presence of low back pain related sciatica. Sciatica is a common cause of pain and disability. It is more persistent and severe than low back pain, has a less favorable outcome and consumes more health resources. However, sciatica prevalence rates reported in different studies and reviews vary considerably and provide no clear picture about sciatica prevalence. A literature search of all English language peer reviewed publications was conducted using Medline, EMBASE, and CINAHL for the years 1980-2006. Two reviewers extracted data on sciatica prevalence and definitions from the identified articles. Of the papers retrieved, 23 were included in the review. Only 2 studies out of the 23 used clinical assessment for assessing sciatic symptoms, and definitions of sciatica varied widely. Sciatica prevalence from different studies ranged from 1.2% to 43%. Sciatica prevalence estimates vary considerably between studies. This may be due to differences in definitions, methods of data collection and perhaps populations studied. Suggestions are made on how to improve accuracy of capturing sciatica in epidemiological studies.
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                Author and article information

                Journal
                BMJ Open
                BMJ Open
                bmjopen
                bmjopen
                BMJ Open
                BMJ Publishing Group (BMA House, Tavistock Square, London, WC1H 9JR )
                2044-6055
                2020
                11 June 2020
                : 10
                : 6
                : e037157
                Affiliations
                [1 ]departmentPhysiotherapy Service , Solent NHS Trust , Portsmouth, Hampshire, UK
                [2 ]departmentSchool of Health Sciences , University of Southampton , Southampton, UK
                [3 ]departmentNuffield Department of Primary Care Health Sciences , University of Oxford , Oxford, Oxfordshire, UK
                [4 ]departmentTherapy Services Department , University Hospital Southampton NHS Foundation Trust , Southampton, UK
                Author notes
                [Correspondence to ] Clare Ryan; Clare.ryan1@ 123456nhs.net
                Author information
                http://orcid.org/0000-0002-3555-8624
                Article
                bmjopen-2020-037157
                10.1136/bmjopen-2020-037157
                7295411
                32532780
                ff4c6596-d499-4a0a-a63f-73539274b8bb
                © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ.

                This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See:  https://creativecommons.org/licenses/by/4.0/.

                History
                : 21 January 2020
                : 25 February 2020
                : 16 March 2020
                Funding
                Funded by: National Institute of Health Research/ Health Education England;
                Award ID: CR: Clinical Doctoral Research Fellowship (Round 4
                Categories
                Qualitative Research
                1506
                1725
                Original research
                Custom metadata
                unlocked

                Medicine
                back pain,musculoskeletal disorders,adult orthopaedics,qualitative research,quality in health care,protocols & guidelines

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