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      ‘I am living a peaceful life with my grandchildren. Nothing else.’ Stories of adversity and ‘resilience’ of older women caring for children in the context of HIV/AIDS and other stressors

      Ageing and Society
      Cambridge University Press (CUP)

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          ABSTRACT

          While the adverse effects of HIV and AIDS on female care-givers in southern Africa have been well documented, there are too few examples of more nuanced analyses, which reflect not only adversity and challenges, but also positive responses, perspectives and experiences. By discussing findings of qualitative research conducted with nine female carers of children in South Africa's Kwazulu-Natal province, one of the world's most HIV-affected regions, this paper explores two themes, focusing mainly on older (grandmother) carers: (a) their strength and resourcefulness in responding to adversity to ensure their families' survival and (b) their leadership role in affronting HIV and related stigma within their own families. These two themes unfold through insights provided by the stories of two study participants, which are discussed in the context of the broader study findings and literature. The aim of this research is both to add to experiential data on the much-debated notion of ‘resilience’ and further challenge the stereotype of older carers or ‘rural African grandmothers’ as passive victims of a changing world, rather than key agents of change. While terms such as ‘coping strategies’ and ‘resilience’ should be used cautiously, it is important to consider carers' short-term responses to the many challenges faced, with a view to constructively informing interventions.

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          AIDS-related stigma: perceptions of family caregivers and health volunteers in western Uganda.

          This article reports the findings from a qualitative research study carried out in four areas in western Uganda. Opinions about AIDS-related stigma were elucidated from four focus group discussions with health volunteers of a home-based care program for HIV/AIDS and from 16 in-depth interviews with family caregivers of AIDS patients. While the health volunteers emphasized that AIDS-related stigma is still very strong, the family caregivers said that positive changes have occurred and discrimination against AIDS patients and their family members has eased. The difference in the perception of AIDS-related stigma between health volunteers and family caregivers needs further confirmation through additional studies specifically designed to answer this question. It should also be investigated whether the healthcare system itself contributes to AIDS-related stigma in this environment.
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            Demonising women in the era of AIDS: On the relationship between cultural constructions of both HIV/AIDS and femininity

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              Author and article information

              Journal
              applab
              Ageing and Society
              Ageing and Society
              Cambridge University Press (CUP)
              0144-686X
              1469-1779
              November 2011
              February 7 2011
              November 2011
              : 31
              : 08
              : 1265-1288
              Article
              10.1017/S0144686X10001303
              ffbebe7a-5e58-439f-8474-ca3e843c62dc
              © 2011
              History

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