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      Bridging Patients’ Needs and Caregivers’ Perspectives to Tailor Information Provisioning during Cardiac Rehabilitation

      proceedings-article

      1 , 2 , 3 , 1

      Proceedings of the 32nd International BCS Human Computer Interaction Conference (HCI)

      Human Computer Interaction Conference

      4 - 6 July 2018

      Patient-centered Computing, E-learning, Shared Decision Making, Cardiac Rehabilitation

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            Abstract

            In remote rehabilitation of cardiac patients, patients need a better understanding of various factors influencing their disease condition to become active participants in their care. Nonetheless, current e-learning approaches in healthcare lack personalization and a deeper understanding of individual patient needs. Most e-learning platforms in healthcare are merely an accumulation of content created by caregivers where patients have no means to seek tailored information to suit specific personal needs. This forms a barrier in patient understanding, debilitating them from becoming active stakeholders in their rehabilitation progress. We identify pitfalls in current approaches and gaps in information needs of patients and caregivers’ perspectives from literature. We organized two workshops - (i) with various professional caregivers involved in coaching cardiac patients, and (ii) with cardiac patients and their informal caregivers - to bridge caregivers’ perspectives with patients’ needs. Further, we prototyped and evaluated two tools to support shared decision making of information needs based on outcomes synthesized from the two workshops. In this paper, we discuss results of the workshops and prototype evaluations. Finally, we discuss how this shared decision making approach supports patient understanding and improves their adherence to rehabilitation goals.

            Content

            Author and article information

            Contributors
            Conference
            July 2018
            July 2018
            : 1-11
            Affiliations
            [1 ] Hasselt University-tUL-Expertise

            Center for Digital Media

            Wetenschapspark 2, 3590 Diepenbeek, Belgium
            [2 ] Hasselt University-tUL

            Martelarenlaan 42, 3500 Hasselt, Belgium
            [3 ] Hasselt University-Faculty of Medicine and Life Sciences; Department of Cardiology, Jessa Hospital, Stadsomvaart 11, 3500 Hasselt, Belgium
            Article
            10.14236/ewic/HCI2018.49
            4497248f-ab2f-4628-bf52-17dc45f520b6
            © Sankaran et al. Published by BCS Learning and Development Ltd. Proceedings of British HCI 2018. Belfast, UK.

            This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

            Proceedings of the 32nd International BCS Human Computer Interaction Conference
            HCI
            32
            Belfast, UK
            4 - 6 July 2018
            Electronic Workshops in Computing (eWiC)
            Human Computer Interaction Conference
            Product
            Product Information: 1477-9358BCS Learning & Development
            Self URI (journal page): https://ewic.bcs.org/
            Categories
            Electronic Workshops in Computing

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