Bridging Patients’ Needs and Caregivers’ Perspectives to Tailor Information Provisioning during Cardiac Rehabilitation

In remote rehabilitation of cardiac patients, patients need a better understanding of various factors influencing their disease condition to become active participants in their care. Nonetheless, current e-learning approaches in healthcare lack personalization and a deeper understanding of individual patient needs. Most e-learning platforms in healthcare are merely an accumulation of content created by caregivers where patients have no means to seek tailored information to suit specific personal needs. This forms a barrier in patient understanding, debilitating them from becoming active stakeholders in their rehabilitation progress. We identify pitfalls in current approaches and gaps in information needs of patients and caregivers’ perspectives from literature. We organized two workshops - (i) with various professional caregivers involved in coaching cardiac patients, and (ii) with cardiac patients and their informal caregivers - to bridge caregivers’ perspectives with patients’ needs. Further, we prototyped and evaluated two tools to support shared decision making of information needs based on outcomes synthesized from the two workshops. In this paper, we discuss results of the workshops and prototype evaluations. Finally, we discuss how this shared decision making approach supports patient understanding and improves their adherence to rehabilitation goals.

Content

Author and article information

Contributors

Supraja Sankaran

Cindel Bonneux

Paul Dendale

Karin Coninx

Conference

Publication date: July 2018

Publication date (Print): July 2018

Pages: 1-11

Affiliations

[1 ] Hasselt University-tUL-Expertise

Center for Digital Media

Wetenschapspark 2, 3590 Diepenbeek, Belgium

[2 ] Hasselt University-tUL

Martelarenlaan 42, 3500 Hasselt, Belgium

[3 ] Hasselt University-Faculty of Medicine and Life Sciences; Department of Cardiology, Jessa Hospital, Stadsomvaart 11, 3500 Hasselt, Belgium

Article

DOI: 10.14236/ewic/HCI2018.49

SO-VID: 4497248f-ab2f-4628-bf52-17dc45f520b6

License:

This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

Conference name: Proceedings of the 32nd International BCS Human Computer Interaction Conference

Conference acronym: HCI

Conference number: 32

Conference location: Belfast, UK

Conference date: 4 - 6 July 2018

Conference sponsor: Electronic Workshops in Computing (eWiC)

Conference theme: Human Computer Interaction Conference

History

Product

1477-9358 BCS Learning & Development

Self URI (article page): https://www.scienceopen.com/hosted-document?doi=10.14236/ewic/HCI2018.49

Self URI (journal page): https://ewic.bcs.org/

REFERENCES

J. ArnetzE. B. ArnetzB. 2009 Gender Differences in Patient Perceptions of Involvement in Myocardial Infarction Care European Journal of Cardiovascular Nursing 8 3 174 181
G. J. BaladyP. A. AdesV. A. BittnerB. A. FranklinN. F. GordonR. J. ThomasC. W. Yancy 2011 Referral, Enrollment, and Delivery of Cardiac Rehabilitation/Secondary Prevention Programs at Clinical Centers and Beyond: A Presidential Advisory From the American Heart Association Circulation 124 25 2951 2960
R. BrittoG. L. M. GhisiN. MotamediS. Grace 2014 PM486 Socio-demographic correlates of disease-related knowledge in cardiac rehabilitation participants in Toronto, Canada 9
J. P. BrownA. M. ClarkH. DalalK. WelchR. S. Taylor 2011 Patient education in the management of coronary heart disease Cochrane Database of Systematic Reviews 12
E. CaseyJ. K. O’ConnellJ. H. Price 1984 Perceptions of educational needs for patients after myocardial infarction Patient Education and Counseling 6 2 77 82
N. ElmoreJ. BurtG. AbelF. A. MaratosJ. MontagueJ. CampbellM. Roland 2016 Investigating the relationship between consultation length and patient experience: a cross-sectional study in primary care British Journal of General Practice 66 653 e896 e903
G. Eysenbach 2005 The Law of Attrition J Med Internet Res 7 1e11
I. FrederixN. Van DriesscheD. HansenJ. BergerK. BonneT. AldersP. Dendale 2015 Increasing the medium-term clinical benefits of hospital-based cardiac rehabilitation by physical activity telemonitoring in coronary artery disease patients European Journal of Preventive Cardiology 22 2 150 158
H. A. GeraedtsW. ZijlstraW. ZhangS. BulstraM. Stevens 2014 Adherence to and effectiveness of an individually tailored home-based exercise program for frail older adults, driven by mobility monitoring: design of a prospective cohort study BMC Public Health 14 1570
G. L. M. GhisiR. BrittoN. MotamediS. L. Grace 2015 Disease-related knowledge in cardiac rehabilitation enrollees: Correlates and changes Patient Education and Counseling 98 4 533 539
G. L. M. GhisiS. L. GraceS. ThomasM. F. EvansH. SawulaP. Oh 2014 Healthcare providers‟ awareness of the information needs of their cardiac rehabilitation patients throughout the program continuum Patient Education and Counseling 95 1 143 150
A. GrecoE. R. CappellettiD. MonzaniL. PancaniM. D’AddarioM. E. MagrinP. Steca 2016 A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome BMC Family Practice 17 1136
B. D. HagenhoffC. FeutzV. S. ConnK. K. SagehomM. Moranville‐Hunziker 1994 Patient education needs as reported by congestive heart failure patients and their nurses Journal of Advanced Nursing 19 4 685 690
D. HansenP. DendaleA. RaskinA. SchoonisJ. BergerI. VlassakR. Meeusen 2010 Long-term effect of rehabilitation in coronary artery disease patients: Randomized clinical trial of the impact of exercise volume Clinical Rehabilitation 24 4 319 327
M. Holmes-RovnerM. StommelW. D. CorserA. OlomuJ. Summers HoltropA. SiddiqiS. L. Dunn 2008 Does Outpatient Telephone Coaching Add to Hospital Quality Improvement Following Hospitalization for Acute Coronary Syndrome? Journal of General Internal Medicine 23 9 1464 1470
B. A. KamphorstM. C. A. KleinA. Van Wissen 2014 Autonomous e-coaching in the wild: empirical validation of a model-based reasoning system Paper presented at the Proceedings of the 2014 international conference on Autonomous agents and multi-agent systems Paris, France
B. A. KarlikA. Yarcheski 1987 Learning needs of cardiac patients: a partial replication study Heart & lung : the journal of critical care 16 5 544 551
S. KayaniyilC. I. ArdernJ. WinstanleyC. ParsonsS. BristerP. OhS. L. Grace 2009 Degree and Correlates of Cardiac Knowledge and Awareness among Cardiac Inpatients Patient Education and Counseling 75 1 99 107
M. KleinN. MoglesA. van Wissen 2011 Why Won’t You Do What’s Good for You? Using Intelligent Support for Behavior Change, Berlin, Heidelberg
A. H. KristS. H. Woolf 2011 A Vision for Patient-Centered Health Information Systems JAMA 305 3 300 301
W. M. Mampuya 2012 Cardiac rehabilitation past, present and future: an overview Cardiovascular Diagnosis and Therapy, 2 1 38 49
M. Moynihan 1984 Assessing the educational needs of post-myocardial infarction patients The Nursing clinics of North America 19 3 441 447
M. PolikandriotiF. Babatsikou 2013 Information to coronary disease patients Health Science Journal 7 1 3 10
S. SankaranI. FrederixM. HaesenP. DendaleK. LuytenK. Coninx 2016 A Grounded Approach for Applying Behavior Change Techniques in Mobile Cardiac Tele-Rehabilitation Paper presented at the Proceedings of the 9th ACM International Conference on PErvasive Technologies Related to Assistive Environments Corfu, Island, Greece
J. T. ScottD. R. Thompson 2003 Assessing the information needs of post-myocardial infarction patients: a systematic review Patient Education and Counseling 50 2 167 177
A. M. StiggelboutA. H. PieterseJ. C. J. M. De Haes 2015 Shared decision making: Concepts, evidence, and practice Patient Education and Counseling 98 10 1172 1179
F. Timmins 2005 A review of the information needs of patients with acute coronary syndromes Nursing in Critical Care 10 4 174 183
K. I. Turk‐AdawiN. B. OldridgeS. S. TarimaW. B. StasonD. S. Shepard 2013 Cardiac Rehabilitation Patient and Organizational Factors: What Keeps Patients in Programs? Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease 2 5e000418
S. WhiteP. BissellC. Anderson 2010 Patients’ Perspectives on Cardiac Rehabilitation, Lifestyle Change and Taking Medicines: Implications for Service Development Journal of Health Services Research & Policy 15 2_suppl 47 53

Comments

Comment on this article

[1] J. ArnetzE. B. ArnetzB. 2009 Gender Differences in Patient Perceptions of Involvement in Myocardial Infarction Care European Journal of Cardiovascular Nursing 8 3 174 181

[2] G. J. BaladyP. A. AdesV. A. BittnerB. A. FranklinN. F. GordonR. J. ThomasC. W. Yancy 2011 Referral, Enrollment, and Delivery of Cardiac Rehabilitation/Secondary Prevention Programs at Clinical Centers and Beyond: A Presidential Advisory From the American Heart Association Circulation 124 25 2951 2960

[3] R. BrittoG. L. M. GhisiN. MotamediS. Grace 2014 PM486 Socio-demographic correlates of disease-related knowledge in cardiac rehabilitation participants in Toronto, Canada 9

[4] J. P. BrownA. M. ClarkH. DalalK. WelchR. S. Taylor 2011 Patient education in the management of coronary heart disease Cochrane Database of Systematic Reviews 12

[5] E. CaseyJ. K. O’ConnellJ. H. Price 1984 Perceptions of educational needs for patients after myocardial infarction Patient Education and Counseling 6 2 77 82

[6] N. ElmoreJ. BurtG. AbelF. A. MaratosJ. MontagueJ. CampbellM. Roland 2016 Investigating the relationship between consultation length and patient experience: a cross-sectional study in primary care British Journal of General Practice 66 653 e896 e903

[7] G. Eysenbach 2005 The Law of Attrition J Med Internet Res 7 1e11

[8] I. FrederixN. Van DriesscheD. HansenJ. BergerK. BonneT. AldersP. Dendale 2015 Increasing the medium-term clinical benefits of hospital-based cardiac rehabilitation by physical activity telemonitoring in coronary artery disease patients European Journal of Preventive Cardiology 22 2 150 158

[9] H. A. GeraedtsW. ZijlstraW. ZhangS. BulstraM. Stevens 2014 Adherence to and effectiveness of an individually tailored home-based exercise program for frail older adults, driven by mobility monitoring: design of a prospective cohort study BMC Public Health 14 1570

[10] G. L. M. GhisiR. BrittoN. MotamediS. L. Grace 2015 Disease-related knowledge in cardiac rehabilitation enrollees: Correlates and changes Patient Education and Counseling 98 4 533 539

[11] G. L. M. GhisiS. L. GraceS. ThomasM. F. EvansH. SawulaP. Oh 2014 Healthcare providers‟ awareness of the information needs of their cardiac rehabilitation patients throughout the program continuum Patient Education and Counseling 95 1 143 150

[12] A. GrecoE. R. CappellettiD. MonzaniL. PancaniM. D’AddarioM. E. MagrinP. Steca 2016 A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome BMC Family Practice 17 1136

[13] B. D. HagenhoffC. FeutzV. S. ConnK. K. SagehomM. Moranville‐Hunziker 1994 Patient education needs as reported by congestive heart failure patients and their nurses Journal of Advanced Nursing 19 4 685 690

[14] D. HansenP. DendaleA. RaskinA. SchoonisJ. BergerI. VlassakR. Meeusen 2010 Long-term effect of rehabilitation in coronary artery disease patients: Randomized clinical trial of the impact of exercise volume Clinical Rehabilitation 24 4 319 327

[15] M. Holmes-RovnerM. StommelW. D. CorserA. OlomuJ. Summers HoltropA. SiddiqiS. L. Dunn 2008 Does Outpatient Telephone Coaching Add to Hospital Quality Improvement Following Hospitalization for Acute Coronary Syndrome? Journal of General Internal Medicine 23 9 1464 1470

[16] B. A. KamphorstM. C. A. KleinA. Van Wissen 2014 Autonomous e-coaching in the wild: empirical validation of a model-based reasoning system Paper presented at the Proceedings of the 2014 international conference on Autonomous agents and multi-agent systems Paris, France

[17] B. A. KarlikA. Yarcheski 1987 Learning needs of cardiac patients: a partial replication study Heart & lung : the journal of critical care 16 5 544 551

[18] S. KayaniyilC. I. ArdernJ. WinstanleyC. ParsonsS. BristerP. OhS. L. Grace 2009 Degree and Correlates of Cardiac Knowledge and Awareness among Cardiac Inpatients Patient Education and Counseling 75 1 99 107

[19] M. KleinN. MoglesA. van Wissen 2011 Why Won’t You Do What’s Good for You? Using Intelligent Support for Behavior Change, Berlin, Heidelberg

[20] A. H. KristS. H. Woolf 2011 A Vision for Patient-Centered Health Information Systems JAMA 305 3 300 301

[21] W. M. Mampuya 2012 Cardiac rehabilitation past, present and future: an overview Cardiovascular Diagnosis and Therapy, 2 1 38 49

[22] M. Moynihan 1984 Assessing the educational needs of post-myocardial infarction patients The Nursing clinics of North America 19 3 441 447

[23] M. PolikandriotiF. Babatsikou 2013 Information to coronary disease patients Health Science Journal 7 1 3 10

[24] S. SankaranI. FrederixM. HaesenP. DendaleK. LuytenK. Coninx 2016 A Grounded Approach for Applying Behavior Change Techniques in Mobile Cardiac Tele-Rehabilitation Paper presented at the Proceedings of the 9th ACM International Conference on PErvasive Technologies Related to Assistive Environments Corfu, Island, Greece

[25] J. T. ScottD. R. Thompson 2003 Assessing the information needs of post-myocardial infarction patients: a systematic review Patient Education and Counseling 50 2 167 177

[26] A. M. StiggelboutA. H. PieterseJ. C. J. M. De Haes 2015 Shared decision making: Concepts, evidence, and practice Patient Education and Counseling 98 10 1172 1179

[27] F. Timmins 2005 A review of the information needs of patients with acute coronary syndromes Nursing in Critical Care 10 4 174 183

[28] K. I. Turk‐AdawiN. B. OldridgeS. S. TarimaW. B. StasonD. S. Shepard 2013 Cardiac Rehabilitation Patient and Organizational Factors: What Keeps Patients in Programs? Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease 2 5e000418

[29] S. WhiteP. BissellC. Anderson 2010 Patients’ Perspectives on Cardiac Rehabilitation, Lifestyle Change and Taking Medicines: Implications for Service Development Journal of Health Services Research & Policy 15 2_suppl 47 53

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