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      Bridging Patients’ Needs and Caregivers’ Perspectives to Tailor Information Provisioning during Cardiac Rehabilitation

      1 , 2 , 3 , 1

      Proceedings of the 32nd International BCS Human Computer Interaction Conference (HCI)

      Human Computer Interaction Conference

      4 - 6 July 2018

      Patient-centered Computing, E-learning, Shared Decision Making, Cardiac Rehabilitation

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          Abstract

          In remote rehabilitation of cardiac patients, patients need a better understanding of various factors influencing their disease condition to become active participants in their care. Nonetheless, current e-learning approaches in healthcare lack personalization and a deeper understanding of individual patient needs. Most e-learning platforms in healthcare are merely an accumulation of content created by caregivers where patients have no means to seek tailored information to suit specific personal needs. This forms a barrier in patient understanding, debilitating them from becoming active stakeholders in their rehabilitation progress. We identify pitfalls in current approaches and gaps in information needs of patients and caregivers’ perspectives from literature. We organized two workshops - (i) with various professional caregivers involved in coaching cardiac patients, and (ii) with cardiac patients and their informal caregivers - to bridge caregivers’ perspectives with patients’ needs. Further, we prototyped and evaluated two tools to support shared decision making of information needs based on outcomes synthesized from the two workshops. In this paper, we discuss results of the workshops and prototype evaluations. Finally, we discuss how this shared decision making approach supports patient understanding and improves their adherence to rehabilitation goals.

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          Most cited references 25

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          Shared decision making: Concepts, evidence, and practice

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            Cardiac rehabilitation past, present and future: an overview.

            Cardiac Rehabilitation has evolved over the past decades from a simple monitoring for the safe return to physical activities to a multidisciplinary approach that focuses on patient education, individually tailored exercise training, modification of the risk factors and the overall well-being of the cardiac patients. It has been proven to be an effective tool for the care of the patients with heart disease. Recent research in cardiac rehabilitation has demonstrated that tremendous benefits can be derived from the optimal use of cardiac rehabilitation in patients with various cardiac pathologies including ischemic heart disease, heart failure and post heart surgery. The benefits of cardiac rehabilitation include mortality reduction, symptom relief, reduction in smoking and improved exercise tolerance, risk factors modification and the overall psychosocial wellbeing. Unfortunately, cardiac rehabilitation remains considerably underutilized mainly because of referral problems and poor enrollment. The development of alternate approaches and the use of transtelephonic and other means of monitoring and surveillance will help expand the utilization of cardiac rehabilitation.
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              A vision for patient-centered health information systems.

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                Author and article information

                Contributors
                Conference
                July 2018
                July 2018
                : 1-11
                Affiliations
                [1 ] Hasselt University-tUL-Expertise

                Center for Digital Media

                Wetenschapspark 2, 3590 Diepenbeek, Belgium
                [2 ] Hasselt University-tUL

                Martelarenlaan 42, 3500 Hasselt, Belgium
                [3 ] Hasselt University-Faculty of Medicine and Life Sciences; Department of Cardiology, Jessa Hospital, Stadsomvaart 11, 3500 Hasselt, Belgium
                Article
                10.14236/ewic/HCI2018.49
                © Sankaran et al. Published by BCS Learning and Development Ltd. Proceedings of British HCI 2018. Belfast, UK.

                This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

                Proceedings of the 32nd International BCS Human Computer Interaction Conference
                HCI
                32
                Belfast, UK
                4 - 6 July 2018
                Electronic Workshops in Computing (eWiC)
                Human Computer Interaction Conference
                Product
                Product Information: 1477-9358BCS Learning & Development
                Self URI (journal page): https://ewic.bcs.org/
                Categories
                Electronic Workshops in Computing

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