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      Enabling participation of Black and Minority Ethnic (BME) and seldom-heard communities in health research: A case study from the SCAMP adolescent cohort study

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          Abstract

          Our inquiry investigated the barriers to, and facilitators for, the involvement of Black and Minority Ethnic (BME) and ‘seldom-heard’ communities, in a study researching the impact of mobile phone and wireless device usage on adolescents’ cognition, behaviour and mental health. The aim was to co-produce solutions to increase participation, and we used focus groups, telephone interviews, a community event and a public and patient involvement (PPI) café to conduct the inquiry. Five themes emerged from the data: two enablers – the value and benefits of research; and three barriers – concerns about research and about communication, and practical constraints. A central cross-cutting theme, the concept of trust, was evident from the data, and extended across all themes, including across the solutions to non-participation. When the data collection and analysis were completed, we ran a symposium for researchers and members of the public to share our findings and to co-produce solutions. The symposium generated ideas about improving participation, including tailoring participant information, engaging with local advocates and involving people in research design and delivery.

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                Author and article information

                Journal
                rfa
                rfa
                Research for All
                RFA
                UCL Press (UK )
                2399-8121
                22 September 2020
                : 4
                : 2
                : 207-219
                Affiliations
                Imperial College London, UK
                Author notes
                Corresponding author: email: j.bruton@ 123456imperial.ac.uk
                Article
                10.14324/RFA.04.2.06
                Copyright © 2020 Bruton, Jones, Jenkins, Davies, Ward and Toledano

                This is an open-access article distributed under the terms of the Creative Commons Attribution Licence (CC BY) 4.0 https://creativecommons.org/licenses/by/4.0/, which permits unrestricted use, distribution and reproduction in any medium, provided the original author and source are credited.

                Page count
                Figures: 1, References: 37, Pages: 14
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                Research for All
                Volume 4, Issue 2

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