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      Evaluation of the Family Impact Scale for use in Brazil

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          Abstract

          OBJECTIVES: The objectives of this study were to assess the validity and reliability of the Family Impact Scale (FIS) applied in Brazilian parents after translations and cultural adaptations to Brazilian Portuguese language and to evaluate the nature and extent to which the family functioning is compromised by the child oral conditions. MATERIAL AND METHODS: Parents were recruited from general populations for pre-testing (n=20), validity (n=210) and test-retest reliability (n=20) studies. The children were examined for dental caries, gingivitis, fluorosis and malocclusion. RESULTS: The FIS discriminated among the categories of malocclusion and showed good construct validity. The Cronbach's alpha and intraclass correlation coefficients were 0.87 and 0.90, respectively. Almost 20% of the informants reported some family impact `sometimes' or `often/everyday' from the child's oral condition. Impact on FIS domains of this frequency ranged from 13.8% for financial difficulties to 24.4% for parental or family activities. CONCLUSIONS: The Brazilian Portuguese version of FIS is valid and reliable. The results suggest that child oral conditions have a negative impact on the family. Further research is required, as these findings were based on cross-sectional study and convenience samples.

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          Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

          Clinicians and researchers without a suitable health-related quality of life (HRQOL) measure in their own language have two choices: (1) to develop a new measure, or (2) to modify a measure previously validated in another language, known as a cross-cultural adaptation process. We propose a set of standardized guidelines for this process based on previous research in psychology and sociology and on published methodological frameworks. These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores. We applied these guidelines to 17 cross-cultural adaptation of HRQOL measures identified through a comprehensive literature review. The reporting standards varied across studies but agreement between raters in their ratings of the studies was substantial to almost perfect (weighted kappa = 0.66-0.93) suggesting that the guidelines are easy to apply. Further research is necessary in order to delineate essential versus optional steps in the adaptation process.
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            What do global self-rated health items measure?

            One of the most frequently used health status measures consists of a single item that asks respondents to rate their overall health as excellent, good, fair, or poor. This study identified the conceptual domain that is assessed by this self-rated health measure. Findings from 158 in-depth interviews revealed that the same frame of reference is not used by all respondents in answering this question. Some study participants think about specific health problems when asked to rate their health, whereas others think in terms of either general physical functioning or health behaviors. The data further revealed that the specific referents that are used vary by age. In addition, more tentative findings suggest that the use of specific referents may also vary by education and race. Finally, the results suggest that certain referents may not be related to closed-ended health ratings in predictable ways.
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              Validity and reliability of a questionnaire for measuring child oral-health-related quality of life.

              Oral-health-related quality of life measures that exist are designed for adults. This study aimed to develop and evaluate the CPQ(11-14), a self-report measure of the impact of oral and oro-facial conditions on 11- to 14-year-old children. An item pool was generated with the use of a literature review and interviews with health professionals, parents, and child patients. The 36 items rated the most frequent and bothersome by 83 children were selected for the CPQ(11-14). Validity testing involved a new sample of 123 children. Test-retest reliability was assessed in a subgroup of these children (n = 65). Mean CPQ(11-14) scores were highest for oro-facial (31.4), lower for orthodontic (24.3), and lowest for pedodontic (23.3) patients. There were significant associations between the CPQ(11-14) score and global ratings of oral health (p < 0.05) and overall well-being (p < 0.01). The Cronbach's alpha and intraclass correlation coefficient for the CPQ(11-14) were 0.91 and 0.90, respectively. These results suggest that the CPQ(11-14) is valid and reliable.
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                Author and article information

                Journal
                jaos
                Journal of Applied Oral Science
                J. Appl. Oral Sci.
                Faculdade De Odontologia De Bauru - USP (Bauru, SP, Brazil )
                1678-7757
                1678-7765
                October 2009
                : 17
                : 5
                : 397-403
                Affiliations
                [01] orgnameState University of Campinas orgdiv1Piracicaba Dental Schoo orgdiv2Pediatric Dentistry Division
                Article
                S1678-77572009000500009 S1678-7757(09)01700509
                135c302a-094e-4573-9891-4e795506af86

                This work is licensed under a Creative Commons Attribution 4.0 International License.

                History
                : 19 May 2009
                : 22 September 2008
                : 27 May 2009
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 29, Pages: 7
                Product

                SciELO Brazil

                Categories
                Original Articles

                Quality of life,Child,Oral health,Validity, Reliability,Family

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