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      Advancing the Science of Recruitment for Family Caregivers: Focus Group and Delphi Methods

      research-article
      , APRN, ACHPN, PhD 1 , , , RN, PhD 1 , , PhD 2 , , RN, PhD 1 , , RN, PhD 1
      (Reviewer), (Reviewer)
      JMIR Nursing
      JMIR Publications
      family caregivers, recruitment, social media, illness stories

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          Abstract

          Background

          Successful recruitment of participants is imperative to a rigorous study, and recruitment challenges are not new to researchers. Many researchers have used social media successfully to recruit study participants. However, challenges remain for effective online social media recruitment for some populations.

          Objective

          Using a multistep approach that included a focus group and Delphi method, researchers performed this study to gain expert advice regarding material development for social media recruitment and to test the recruitment material with the target population.

          Methods

          In the first phase, we conducted a focus group with 5 social media experts to identify critical elements for effective social media recruitment material. Utilizing the Delphi method with 5 family caregivers, we conducted the second phase to reach consensus regarding effective recruitment videos.

          Results

          Phase I utilized a focus group that resulted in identification of three barriers related to social media recruitment, including lack of staff and resources, issues with restrictive algorithms, and not standing out in the crowd. Phase II used the Delphi method. At the completion of Delphi Round 1, 5 Delphi participants received a summary of the analysis for feedback and agreement with our summary. Using data and recommendations from Round 1, researchers created two new recruitment videos with additions to improve trustworthiness and transparency, such as the university’s logo. In Round 2 of the Delphi method, consensus regarding the quality and trustworthiness of the recruitment videos reached 100%.

          Conclusions

          One of the primary challenges for family caregiver research is recruitment. Despite the broad adoption of social media marketing approaches, the effectiveness of online recruitment strategies needs further investigation.

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          Most cited references34

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          Thematic Analysis

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            Member Checking

            The trustworthiness of results is the bedrock of high quality qualitative research. Member checking, also known as participant or respondent validation, is a technique for exploring the credibility of results. Data or results are returned to participants to check for accuracy and resonance with their experiences. Member checking is often mentioned as one in a list of validation techniques. This simplistic reporting might not acknowledge the value of using the method, nor its juxtaposition with the interpretative stance of qualitative research. In this commentary, we critique how member checking has been used in published research, before describing and evaluating an innovative in-depth member checking technique, Synthesized Member Checking. The method was used in a study with patients diagnosed with melanoma. Synthesized Member Checking addresses the co-constructed nature of knowledge by providing participants with the opportunity to engage with, and add to, interview and interpreted data, several months after their semi-structured interview.
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              Defining consensus: a systematic review recommends methodologic criteria for reporting of Delphi studies.

              To investigate how consensus is operationalized in Delphi studies and to explore the role of consensus in determining the results of these studies. Systematic review of a random sample of 100 English language Delphi studies, from two large multidisciplinary databases [ISI Web of Science (Thompson Reuters, New York, NY) and Scopus (Elsevier, Amsterdam, NL)], published between 2000 and 2009. About 98 of the Delphi studies purported to assess consensus, although a definition for consensus was only provided in 72 of the studies (64 a priori). The most common definition for consensus was percent agreement (25 studies), with 75% being the median threshold to define consensus. Although the authors concluded in 86 of the studies that consensus was achieved, consensus was only specified a priori (with a threshold value) in 42 of these studies. Achievement of consensus was related to the decision to stop the Delphi study in only 23 studies, with 70 studies terminating after a specified number of rounds. Although consensus generally is felt to be of primary importance to the Delphi process, definitions of consensus vary widely and are poorly reported. Improved criteria for reporting of methods of Delphi studies are required. Copyright © 2014 Elsevier Inc. All rights reserved.
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                Author and article information

                Contributors
                Journal
                JMIR Nurs
                JMIR Nurs
                JNI
                JMIR Nursing
                JMIR Publications (Toronto, Canada )
                2562-7600
                Jan-Dec 2019
                22 July 2019
                : 2
                : 1
                : e13862
                Affiliations
                [1 ] College of Nursing Kent State University Kent, OH United States
                [2 ] Faculty of Nursing Suez Canal University Ismailia Egypt
                Author notes
                Corresponding Author: Dana Hansen dhansen1@ 123456kent.edu
                Author information
                http://orcid.org/0000-0002-6811-3381
                http://orcid.org/0000-0002-3267-3651
                http://orcid.org/0000-0001-5106-8046
                http://orcid.org/0000-0002-7515-3832
                http://orcid.org/0000-0002-9797-1844
                Article
                v2i1e13862
                10.2196/13862
                8279439
                34345769
                006bb834-5043-4cc0-baac-d8edd1c23405
                ©Dana Hansen, Amy Petrinec, Mona Hebeshy, Denice Sheehan, Barbara L Drew. Originally published in JMIR Nursing Informatics (https://nursing.jmir.org), 22.07.2019.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.

                History
                : 28 February 2019
                : 1 April 2019
                : 16 May 2019
                : 8 June 2019
                Categories
                Original Paper
                Original Paper

                family caregivers,recruitment,social media,illness stories

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