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      A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform

      research-article
      , PhD 1 , , , PhD 2 , , PhD 2 , , MSc 2 , , MSc 2 , , MA 1 , , BHS 1 , , PhD 1 , , MA 3 , , PhD 1 , , PhD 4 , , PhD 1
      (Reviewer), (Reviewer), (Reviewer)
      JMIR Formative Research
      JMIR Publications
      virtual community, machine learning, Semantic Web, natural language processing, web intelligence, health informatics, Wikibase, disability rights, human rights, CRPD, equity, community, disability, ethics, rights, pilot, platform

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          Abstract

          Background

          The lack of availability of disability data has been identified as a major challenge hindering continuous disability equity monitoring. It is important to develop a platform that enables searching for disability data to expose systemic discrimination and social exclusion, which increase vulnerability to inequitable social conditions.

          Objective

          Our project aims to create an accessible and multilingual pilot disability website that structures and integrates data about people with disabilities and provides data for national and international disability advocacy communities. The platform will be endowed with a document upload function with hybrid (automated and manual) paragraph tagging, while the querying function will involve an intelligent natural language search in the supported languages.

          Methods

          We have designed and implemented a virtual community platform using Wikibase, Semantic Web, machine learning, and web programming tools to enable disability communities to upload and search for disability documents. The platform data model is based on an ontology we have designed following the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The virtual community facilitates the uploading and sharing of validated information, and supports disability rights advocacy by enabling dissemination of knowledge.

          Results

          Using health informatics and artificial intelligence techniques (namely Semantic Web, machine learning, and natural language processing techniques), we were able to develop a pilot virtual community that supports disability rights advocacy by facilitating uploading, sharing, and accessing disability data. The system consists of a website on top of a Wikibase (a Semantic Web–based datastore). The virtual community accepts 4 types of users: information producers, information consumers, validators, and administrators. The virtual community enables the uploading of documents, semiautomatic tagging of their paragraphs with meaningful keywords, and validation of the process before uploading the data to the disability Wikibase. Once uploaded, public users (information consumers) can perform a semantic search using an intelligent and multilingual search engine (QAnswer). Further enhancements of the platform are planned.

          Conclusions

          The platform ontology is flexible and can accommodate advocacy reports and disability policy and legislation from specific jurisdictions, which can be accessed in relation to the CRPD articles. The platform ontology can be expanded to fit international contexts. The virtual community supports information upload and search. Semiautomatic tagging and intelligent multilingual semantic search using natural language are enabled using artificial intelligence techniques, namely Semantic Web, machine learning, and natural language processing.

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          Most cited references51

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                Author and article information

                Contributors
                Journal
                JMIR Form Res
                JMIR Form Res
                JFR
                JMIR Formative Research
                JMIR Publications (Toronto, Canada )
                2561-326X
                November 2021
                5 November 2021
                : 5
                : 11
                : e33335
                Affiliations
                [1 ] School of Health Policy and Management Faculty of Health York University Toronto, ON Canada
                [2 ] CNRS, UMR 5516, Laboratoire Hubert Curien, Université Jean Monnet Saint Etienne Saint Etienne France
                [3 ] Student Learning and Academic Success Department, York University Libraries York University Toronto, ON Canada
                [4 ] School of Gender, Sexuality and Women's Studies York University Toronto, ON Canada
                Author notes
                Corresponding Author: Christo El Morr elmorr@ 123456yorku.ca
                Author information
                https://orcid.org/0000-0001-6287-3438
                https://orcid.org/0000-0001-5437-7725
                https://orcid.org/0000-0002-1825-4290
                https://orcid.org/0000-0002-4682-8992
                https://orcid.org/0000-0002-7179-5555
                https://orcid.org/0000-0002-7573-221X
                https://orcid.org/0000-0001-9581-8531
                https://orcid.org/0000-0002-7370-723X
                https://orcid.org/0000-0001-9757-8084
                https://orcid.org/0000-0003-2620-4389
                https://orcid.org/0000-0003-2554-2028
                https://orcid.org/0000-0003-3144-1733
                Article
                v5i11e33335
                10.2196/33335
                8663581
                34738910
                03bd9942-446d-4d17-8177-1fa53179db85
                ©Christo El Morr, Pierre Maret, Fabrice Muhlenbach, Dhayananth Dharmalingam, Rediet Tadesse, Alexandra Creighton, Bushra Kundi, Alexis Buettgen, Thumeka Mgwigwi, Serban Dinca-Panaitescu, Enakshi Dua, Rachel Gorman. Originally published in JMIR Formative Research (https://formative.jmir.org), 05.11.2021.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.

                History
                : 3 September 2021
                : 27 September 2021
                : 13 October 2021
                : 15 October 2021
                Categories
                Original Paper
                Original Paper

                virtual community,machine learning,semantic web,natural language processing,web intelligence,health informatics,wikibase,disability rights,human rights,crpd,equity,community,disability,ethics,rights,pilot,platform

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