YouTube as a source of patient information for pterygium surgery

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Abstract

Background:

Patients use the YouTube platform to get information about pterygium surgery, and this affects the treatment decisions of the patients.

Objectives:

The purpose of this study was to analyze the quality and reliability of YouTube videos as educational resources about pterygium surgery.

Design:

This is a register-based retrospective study.

Methods:

This was a retrospective, record-based study. A YouTube search was performed using the terms ‘pterygium surgery’ and ‘pterygium eye surgery’, resulting in the evaluation of a total of 200 videos. In the end, 122 English-language videos about pterygium surgery were recruited to study. All videos were rated with the DISCERN, the Journal of the American Medical Association (JAMA), and the Global Quality Score (GQS) systems.

Results:

The mean DISCERN, JAMA, and GQS values were 38.9 ± 10.9, 1.8 ± 0.8, and 2.2 ± 1, respectively. The YouTube videos about pterygium surgery had been uploaded by a physician in 63 (51.6%) and non-physicians in 59 (48.4%) cases. There was no significant difference between the two groups in terms of general characteristics and scores.

Conclusions:

Our results show that YouTube videos about pterygium surgery have low quality and credibility and are not sufficient in terms of providing patient information.

Registration:

Not applicable.

Related collections

Most cited references 25

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DISCERN: an instrument for judging the quality of written consumer health information on treatment choices.

D Charnock, S Shepperd, G Needham … (1999)

To develop a short instrument, called DISCERN, which will enable patients and information providers to judge the quality of written information about treatment choices. DISCERN will also facilitate the production of new, high quality, evidence-based consumer health information. An expert panel, representing a range of expertise in consumer health information, generated criteria from a random sample of information for three medical conditions with varying degrees of evidence: myocardial infarction, endometriosis, and chronic fatigue syndrome. A graft instrument, based on this analysis, was tested by the panel on a random sample of new material for the same three conditions. The panel re-drafted the instrument to take account of the results of the test. The DISCERN instrument was finally tested by a national sample of 15 information providers and 13 self help group members on a random sample of leaflets from 19 major national self help organisations. Participants also completed an 8 item questionnaire concerning the face and content validity of the instrument. Chance corrected agreement (weighted kappa) for the overall quality rating was kappa = 0.53 (95% CI kappa = 0.48 to kappa = 0.59) among the expert panel, kappa = 0.40 (95% CI kappa = 0.36 to kappa = 0.43) among information providers, and kappa = 0.23 (95% CI kappa = 0.19 to kappa = 0.27) among self help group members. Higher agreement levels were associated with experience of using the instrument and with professional knowledge of consumer health information. Levels of agreement varied across individual items on the instrument, reflecting the need for subjectivity in rating certain criteria. The trends in levels of agreement were similar among all groups. The final instrument consisted of 15 questions plus an overall quality rating. Responses to the questionnaire after the final testing revealed the instrument to have good face and content validity and to be generally applicable. DISCERN is a reliable and valid instrument for judging the quality of written consumer health information. While some subjectivity is required for rating certain criteria, the findings demonstrate that the instrument can be applied by experienced users and providers of health information to discriminate between publications of high and low quality. The instrument will also be of benefit to patients, though its use will be improved by training.

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Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor--Let the reader and viewer beware.

W M Silberg, G Lundberg, R A Musacchio (1997)

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A systematic review of patient inflammatory bowel disease information resources on the World Wide Web.

Tanith Rose, André Bernard, Stephanie Hughes … (2007)

The Internet is a widely used information resource for patients with inflammatory bowel disease, but there is variation in the quality of Web sites that have patient information regarding Crohn's disease and ulcerative colitis. The purpose of the current study is to systematically evaluate the quality of these Web sites. The top 50 Web sites appearing in Google using the terms "Crohn's disease" or "ulcerative colitis" were included in the study. Web sites were evaluated using a (a) Quality Evaluation Instrument (QEI) that awarded Web sites points (0-107) for specific information on various aspects of inflammatory bowel disease, (b) a five-point Global Quality Score (GQS), (c) two reading grade level scores, and (d) a six-point integrity score. Thirty-four Web sites met the inclusion criteria, 16 Web sites were excluded because they were portals or non-IBD oriented. The median QEI score was 57 with five Web sites scoring higher than 75 points. The median Global Quality Score was 2.0 with five Web sites achieving scores of 4 or 5. The average reading grade level score was 11.2. The median integrity score was 3.0. There is marked variation in the quality of the Web sites containing information on Crohn's disease and ulcerative colitis. Many Web sites suffered from poor quality but there were five high-scoring Web sites.

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Author and article information

Contributors

Cem Ozturkmen: Role: Data curationRole: Formal analysisRole: InvestigationRole: MethodologyRole: VisualizationRole: Writing – original draftRole: Writing – review & editing

Mustafa Berhuni:

ORCID: https://orcid.org/0000-0002-5725-2634

Role: ConceptualizationRole: Data curationRole: Formal analysisRole: Writing – review & editing

Journal

Journal ID (nlm-ta): Ther Adv Ophthalmol

Journal ID (iso-abbrev): Ther Adv Ophthalmol

Journal ID (publisher-id): OED

Journal ID (hwp): spoed

Title: Therapeutic Advances in Ophthalmology

Publisher: SAGE Publications (Sage UK: London, England )

ISSN (Electronic): 2515-8414

Publication date (Electronic): 26 May 2023

Publication date Collection: Jan-Dec 2023

Volume: 15

Electronic Location Identifier: 25158414231174143

Affiliations

[1-25158414231174143]Goznuru Eye Hospital, Gaziantep, Turkey

[2-25158414231174143]Dr. Ersin Arslan Education and Research Hospital, Batıkent mah. 9005 nolu sokak no: 4/3, Gaziantep, Turkey

Author notes

[*] mustafaberhuni@ 123456gmail.com

Author information

Mustafa Berhuni https://orcid.org/0000-0002-5725-2634

Article

Publisher ID: 10.1177_25158414231174143

DOI: 10.1177/25158414231174143

PMC ID: 10226336

SO-VID: 1783f143-d358-41c8-8e30-c04c81b87327

License:

This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

History

Date received : 20 January 2023

Date accepted : 8 April 2023

Custom metadata

cover-date January-December 2023

typesetter ts1

Keywords: discern,global quality score,journal of the american medical association,pterygium surgery,youtube

Data availability:

Keywords: discern, global quality score, journal of the american medical association, pterygium surgery, youtube

YouTube as a source of patient information for pterygium surgery

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Abstract

Background:

Objectives:

Design:

Methods:

Results:

Conclusions:

Registration:

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Management Information Systems

Most cited references 25

DISCERN: an instrument for judging the quality of written consumer health information on treatment choices.

Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor--Let the reader and viewer beware.

A systematic review of patient inflammatory bowel disease information resources on the World Wide Web.

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