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      Quality end-of-life care: A global perspective

      research-article
      1 , 2 , 3 , , 1 , 4 , 5
      BMC Palliative Care
      BioMed Central

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          Abstract

          Background

          Quality end-of-life care has emerged as an important concept in industrialized countries.

          Discussion

          We argue quality end-of-life care should be seen as a global public health and health systems problem. It is a global problem because 85 % of the 56 million deaths worldwide that occur annually are in developing countries. It is a public health problem because of the number of people it affects, directly and indirectly, in terms of the well being of loved ones, and the large-scale, population based nature of some possible interventions. It is a health systems problem because one of its main features is the need for better information on quality end-of-life care. We examine the context of end-of-life care, including the epidemiology of death and cross-cultural considerations. Although there are examples of success, we could not identify systematic data on capacity for delivering quality end-of-life care in developing countries. We also address a possible objection to improving end-of-life care in developing countries; many deaths are preventable and reduction of avoidable deaths should be the focus of attention.

          Conclusions

          We make three recommendations: (1) reinforce the recasting of quality end-of-life care as a global public health and health systems problem; (2) strengthen capacity to deliver quality end-of-life care; and (3) develop improved strategies to acquire information about the quality of end-of-life care.

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          Most cited references24

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          Quality end-of-life care: patients' perspectives.

          Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients. To identify and describe elements of quality end-of-life care from the patient's perspective. Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis. Toronto, Ontario. A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38). Participants' views on end-of-life issues. Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones. These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care.
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            Perceptions by Family Members of the Dying Experience of Older and Seriously Ill Patients

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              Changing patterns of death and dying.

              This paper reviews changing patterns of mortality worldwide, paying particular attention to differences between developed and developing countries and the consequences of demographic and epidemiological transitions. These involve gains in life expectancy and a shift from infectious to degenerative conditions as causes of death. Reversals to these transitions in certain Eastern European and African countries, due respectively to the social disorganisation accompanying the collapse of communism and to AIDS is described. The implications of changing population structures for the experience of old age and dying are explored and gender and socio-economic differences within countries is highlighted. The current state of knowledge about differences in the dying trajectories of different causes of death is summarised and gaps in this knowledge identified. The availability of lay health care in the community at different points in the demographic transition is described, and the problems and dilemmas of formal health care provision for dying people in both developed and developing countries outlined, including an analysis of the reasons for public support for euthanasia in some Western countries. In particular, the appropriateness of models of specialist palliative care outside the cultures in which such care originally developed is questioned. Finally, there is discussion of the extent to which medical and scientific measures erode traditional religious consolations for the problems involved in dying and bereavement.
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                Author and article information

                Journal
                BMC Palliat Care
                BMC Palliative Care
                BioMed Central (London )
                1472-684X
                2002
                25 July 2002
                : 1
                : 4
                Affiliations
                [1 ]University of Toronto Joint Centre for Bioethics, Toronto, Ontario, Canada
                [2 ]Department of Medicine, University of Toronto, Toronto, Ontario, Canada
                [3 ]University Health Network, Toronto, Ontario, Canada
                [4 ]Mount Sinai Hospital, Toronto, Ontario, Canada
                [5 ]Department of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada
                Article
                1472-684X-1-4
                10.1186/1472-684X-1-4
                122082
                12139768
                2e43d111-e59a-4bc9-8f88-cfaadeaa45f6
                Copyright © 2002 Singer and Bowman; licensee BioMed Central Ltd. This is an Open Access article: verbatim copying and redistribution of this article are permitted in all media for any purpose, provided this notice is preserved along with the article's original URL.
                History
                : 23 April 2002
                : 25 July 2002
                Categories
                Debate

                Anesthesiology & Pain management
                Anesthesiology & Pain management

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