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      Literatura científica brasileira sobre transtornos do espectro autista Translated title: Brazilian scientific literature about autism spectrum disorders

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          Abstract

          OBJETIVOS: O presente estudo refere-se a uma revisão sistemática, cujo objetivo foi conduzir uma análise da produção científica de autores brasileiros sobre Transtornos do espectro autista (TEA), no período de 2002 a 2009. MÉTODOS: A busca bibliográfica foi realizada nas bases de dados: PUBMED, SciELO, LILACS e portal CAPES, incluindo diversos descritores, tais como autismo e transtorno invasivo do desenvolvimento. RESULTADOS: Um total de 93 artigos foi identificado, tendo sido publicados, sobretudo por autores da região Sudeste e de universidades públicas. Aproximadamente um terço dos artigos foi publicado em revistas com algum fator de impacto variando entre 0,441 e 3,211; sendo a maioria dos artigos baseada em amostras pequenas. Foram identificadas 140 dissertações e teses; 82,1% eram dissertações de mestrado. O principal tema de pesquisa abordado neste material relacionou-se a programas de intervenção para TEA. CONCLUSÃO: Esta revisão mostra o interesse de pesquisadores brasileiros na temática dos TEA, entretanto, uma parte considerável dessa produção científica se concentra em dissertações/teses e a minoria em artigos científicos publicados em revistas com elevado fator de impacto. Os resultados desta revisão sistemática mostram a necessidade de novos estudos com amostras maiores que levariam a um maior impacto e visibilidade da produção científica brasileira relativa aos TEA.

          Translated abstract

          OBJECTIVE: This study is a systematic review aiming to conduct a general analysis of the scientific production covering publications of Brazilian authors about ASD in the period from 2002 to 2009. METHODS: The bibliographic search was conducted in the following scientific databases: PUBMED, SciELO, LILACS and portal CAPES, by using keywords such as autism and pervasive developmental disorders. RESULTS: A total of 93 papers were identified mainly produced by authors from tSoutheast Brazil and from public universities. Approximately one third of the papers was published in journals with a level of impact factor that ranged from 0.441 to 3.211; most of them were based on small sample sizes. Identified were 140 dissertations/theses; 82.1% were masters theses. The major research topic was related to intervention programs addressing ASD. CONCLUSION: This review shows that Brazilian researchers are interested in the ASD theme, however, a large part of this scientific production is concentrated in dissertation/masters theses and the minority of papers was published in journals with a high impact factor. Results of this systematic review suggest the need for studies with larger sample sizes which would produce greater impact and visibility in the Brazilian scientific production in the field of the ASD.

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          Epidemiological surveys of autism and other pervasive developmental disorders: an update.

          Eric Fombonne (2003)
          This paper was commissioned by the committee on the Effectiveness of Early Education in Autism of the National Research Council (NRC). It provides a review of epidemiological studies of pervasive developmental disorders (PDD) which updates a previously published article (The epidemiology of autism: a review. Psychological Medicine 1999; 29: 769-786). The design, sample characteristics of 32 surveys published between 1966 and 2001 are described. Recent surveys suggest that the rate for all forms of PDDs are around 30/10,000 but more recent surveys suggest that the estimate might be as high as 60/10,000. The rate for Asperger disorder is not well established, and a conservative figure is 2.5/10,000. Childhood disintegrative disorder is extremely rare with a pooled estimate across studies of 0.2/10,000. A detailed discussion of the possible interpretations of trends over time in prevalence rates is provided. There is evidence that changes in case definition and improved awareness explain much of the upward trend of rates in recent decades. However, available epidemiological surveys do not provide an adequate test of the hypothesis of a changing incidence of PDDs.
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            Prevalence of autism spectrum disorders--autism and developmental disabilities monitoring network, 14 sites, United States, 2002.

            , (2007)
            Data from a population-based, multisite surveillance network were used to determine the prevalence of autism spectrum disorders (ASDs) among children aged 8 years in 14 areas of the United States and to describe the characteristics of these children. 2002. Children aged 8 years were identified as having an ASD through screening and abstraction of evaluation records at health facilities for all 14 sites and through information from psychoeducational evaluations for special education services for 10 of the 14 sites. Case status was determined through clinician review of data abstracted from the records. Children whose parent(s) or legal guardian(s) resided in the respective areas in 2002 and whose records documented behaviors consistent with the Diagnostic and Statistical Manual, Fourth Edition, Text Revision (DSM-IV-TR) criteria for autistic disorder; pervasive developmental disorder, not otherwise specified; or Asperger disorder were classified as having ASDs. For 2002, of 407,578 children aged 8 years in the 14 surveillance areas, 2,685 (0.66%) were identified as having an ASD. ASD prevalence per 1,000 children aged 8 years ranged from 3.3 (Alabama) to 10.6 (New Jersey), with the majority of sites ranging from 5.2 to 7.6 (overall mean: 6.6 [i.e., one of every 152 children across all sites). ASD prevalence was significantly lower than all other sites in Alabama (p<0.001) and higher in New Jersey (p<0.0001). ASD prevalence varied by identification source, with higher average prevalence for ASDs in sites with access to health and education records (mean: 7.2) compared with sites with health records only (mean: 5.1). Five sites identified a higher prevalence of ASDs for non-Hispanic white children than for non-Hispanic black children. The ratio of males to females ranged from 3.4:1.0 in Maryland, South Carolina, and Wisconsin to 6.5:1.0 in Utah. The majority of children were receiving special education services at age 8 years and had a documented history of concerns regarding their development before age 3 years. However, the median age of earliest documented ASD diagnosis was much later (range: 49 months [Utah]--66 months [Alabama]). The proportion of children with characteristics consistent with the criteria for an ASD classification who had a previously documented ASD classification varied across sites. In the majority of sites, females with an ASD were more likely than males to have cognitive impairment. For the six sites for which prevalence data were available from both 2000 and 2002, ASD prevalence was stable in four sites and increased in two sites (17% in Georgia and 39% in West Virginia). Results from the second report of a U.S. multisite collaboration to monitor ASD prevalence demonstrated consistency of prevalence in the majority of sites, with variation in two sites. Prevalence was stable in the majority of sites for which 2 years of data were available, but an increase in West Virginia and a trend toward an increase in Georgia indicate the need for ongoing monitoring of ASD prevalence. These ASD prevalence data provide the most complete information on the prevalence of the ASDs in the United States to date. The data confirm that ASD prevalence is a continuing urgent public health concern affecting an approximate average of one child in every 150 and that efforts are needed to improve early identification of ASDs.
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              Factors associated with stress in mothers of children with autism.

              Latife Yazigi, Mariana C. Duarte, Sacha Mooney … (2005)
              The objective of this case-control study was to investigate the determinants of maternal stress in mothers of children with autism. Mothers of 31 children with autism from mental health clinics were matched by child age/gender and mother age to 31 mothers of children without mental health problems, drawn from public schools and a primary care unit. Logistic regression models showed that the presence of stress in mothers was primarily associated with having a child with autism. However, poor expression of affect, little interest in people, being an older mother, and having a younger child also contributed to increased stress levels. Although having a child with autism was the main factor responsible for stress, the presence of the other factors further increased maternal stress. The implication is that a subgroup of mothers of children with autism is more prone to experience stress, thus requiring special attention from mental health professionals.
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                Author and article information

                Journal
                Journal ID (publisher-id): ramb
                Title: Revista da Associação Médica Brasileira
                Abbreviated Title: Rev. Assoc. Med. Bras.
                Publisher: Associação Médica Brasileira (São Paulo, SP, Brazil )
                ISSN (Print): 0104-4230
                ISSN (Electronic): 1806-9282
                Publication date (Print and electronic): 2010
                Volume: 56
                Issue: 5
                Pages: 607-614
                Affiliations
                [01] São Paulo SP orgnameUniversidade Presbiteriana Mackenzie orgdiv1Centro de Ciências Biológicas e da Saúde orgdiv2Programa de Pós-Graduação em Distúrbios do Desenvolvimento
                [02] São Paulo SP orgnameUniversidade Presbiteriana Mackenzie orgdiv1Programa de Pós-graduação em Distúrbios do Desenvolvimento
                [03] Belo Horizonte MG orgnameUniversidade Federal de Minas Gerais orgdiv1Faculdade de Medicina
                [04] São Paulo SP orgnameUniversidade Federal de São Paulo orgdiv1Departamento de Psiquiatria
                Article
                Publisher ID: S0104-42302010000500026 Publisher ID: S0104-4230(10)05600526
                DOI: 10.1590/S0104-42302010000500026
                SO-VID: 34f41eaf-1a28-47ab-b7f6-b3638b5bb817
                License:

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                Date accepted : 04 June 2010
                Date received : 01 June 2010
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 110, Pages: 8
                Product

                SciELO Brazil

                Categories
                Subject: Artigos de Revisão

                Keywords: Impact factor,Databases,Bibliography,Brazil,Transtorno autístico,Revisão,Fator de impacto,Bases de dados bibliográficas,Brasil,Autistic disorder,Review
                Data availability:
                Keywords: Impact factor, Databases, Bibliography, Brazil, Transtorno autístico, Revisão, Fator de impacto, Bases de dados bibliográficas, Brasil, Autistic disorder, Review

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