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      Tradução e adaptação cultural do Peds QL TM ESRD para a língua portuguesa Translated title: Translation and cultural adaptation of Peds QL TM ESRD to Portuguese

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          Abstract

          OBJETIVO: Traduzir e adaptar a versão 3.0 do questionário Peds QL TM - End Stage Renal Disease para a língua portuguesa. METODOLOGIA: A metodologia adotada foi proposta pelo idealizador do questionário original e é composta por 4 fases: tradução da versão original, retradução para o idioma inglês, aplicação em grupos de pacientes e prova de leitura e finalização, sendo que, as traduções e a revisão foram realizadas por profissionais especialistas nas línguas portuguesa e inglesa. Os questionários são compostos pelas versões de relato da criança e do adolescente e relato dos pais, e divididos em faixas etárias de 2 a 4 anos (apenas relato dos pais), 5 a 7 anos, 8 a 12 anos e 13 a 18 anos. Ao todo, foram realizadas 35 entrevistas, sendo 15 de crianças e adolescentes e 20 dos responsáveis. CONCLUSÕES: O processo de tradução e adaptação cultural, que consistiu na equivalência semântica (equivalência entre as palavras), equivalência idiomática (expressões equivalentes não encontradas ou itens que precisavam ser substituídos) e equivalência experimental (palavras e situações adequadas ao contexto cultural brasileiro), resultaram em uma versão de fácil compreensão e administração.

          Translated abstract

          OBJECTIVE: To translate into and adapt to Brazilian Portuguese the Peds QL TM - End Stage Renal Disease version 3.0 questionnaire. METHOD: The methodology proposed by the creator of the original questionnaire was adopted. It consisted of 4 phases: translation from English into Brazilian Portuguese, back-translation into English, application to a population sample and proof-reading and completion. The translations and review were made by professional experts in Portuguese and English. The questionnaires were composed of versions for children and adolescents' reports and parents' reports, and were divided according to age ranges: 2-4 years (parents' report only), 5-7 years, 8-12 years and 13-18 years. 35 interviews were conducted with 15 children and adolescents and 20 carergivers. CONCLUSIONS: The process of translation and cultural adaptation, which consisted of semantic equivalence (equivalence between words), idiomatic equivalence (no equivalent expressions found or items that needed to be replaced) and experimental equivalence (words and situations appropriate to the Brazilian cultural context), resulted in a version that was understandable and easy to apply.

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          PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

          The PedsQL (Pediatric Quality of Life Inventory) (Children's Hospital and Health Center, San Diego, California) is a modular instrument for measuring health-related quality of life (HRQOL) in children and adolescents ages 2 to 18. The PedsQL 4.0 Generic Core Scales are multidimensional child self-report and parent proxy-report scales developed as the generic core measure to be integrated with the PedsQL Disease-Specific Modules. The PedsQL 4.0 Generic Core Scales consist of 23 items applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions. The 4 PedsQL 4.0 Generic Core Scales (Physical, Emotional, Social, School) were administered to 963 children and 1,629 parents (1,677 subjects accrued overall) recruited from pediatric health care settings. Item-level and scale-level measurement properties were computed. Internal consistency reliability for the Total Scale Score (alpha = 0.88 child, 0.90 parent report), Physical Health Summary Score (alpha = 0.80 child, 0.88 parent), and Psychosocial Health Summary Score (alpha = 0.83 child, 0.86 parent) were acceptable for group comparisons. Validity was demonstrated using the known-groups method, correlations with indicators of morbidity and illness burden, and factor analysis. The PedsQL distinguished between healthy children and pediatric patients with acute or chronic health conditions, was related to indicators of morbidity and illness burden, and displayed a factor-derived solution largely consistent with the a priori conceptually-derived scales. The results demonstrate the reliability and validity of the PedsQL 4.0 Generic Core Scales. The PedsQL 4.0 Generic Core Scales may be applicable in clinical trials, research, clinical practice, school health settings, and community populations.
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            Quality of life measurement in children and adolescents: issues, instruments, and applications.

            There is increasing interest in measuring quality of life (QL) in children and adolescents, but this interest has developed without careful attention given numerous important issues. Consequently, there is much diversity and confusion in this measurement area. We discuss at a conceptual level herein how to construe and define QL, approach its measurement, and the implications of for whom this is done. Methodological issues pertaining to validation, proxy report, and child development are also discussed. Guidelines for selecting QL measures are provided and a set of generic QL measures is recommended for further consideration. Finally, applications of the QL concept in the policy, service and care, and science areas are delineated. Copyright 2001 John Wiley & Sons, Inc.
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              Medidas de avaliação de qualidade de vida

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                Author and article information

                Journal
                jbn
                Brazilian Journal of Nephrology
                Braz. J. Nephrol.
                Sociedade Brasileira de Nefrologia (São Paulo, SP, Brazil )
                0101-2800
                2175-8239
                December 2011
                : 33
                : 4
                : 448-456
                Affiliations
                [02] orgnameTexas A&M University orgdiv1College of Architecture orgdiv2Department of Landscape Architecture and Urban Planning
                [01] orgnameUniversidade de São Paulo orgdiv1Faculdade de Medicina orgdiv2Hospital das Clínicas
                Article
                S0101-28002011000400010 S0101-2800(11)03300410
                10.1590/S0101-28002011000400010
                371c9bfe-1282-4892-9255-9fc67e21aad8

                This work is licensed under a Creative Commons Attribution 4.0 International License.

                History
                : 11 July 2011
                : 26 September 2011
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 40, Pages: 9
                Product

                SciELO Brazil

                Categories
                Artigos Originais

                Renal Insufficiency,Child,Questionnaires,Quality of Life,Insuficiência Renal,Criança,Questionários,Qualidade de Vida

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