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      ‘The missing links’: understanding how context and mechanism influence the impact of public involvement in research

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          Abstract

          Introduction

          It is now more widely recognized that public involvement in research increases the quality and relevance of the research. However, there are also more questions as to exactly how and when involvement brings added value.

          The nature of the current evidence of impact

          Based on the findings of recent literature reviews, most reports of public involvement that discuss impact are based on observational evaluations. These usefully describe the context, the type of involvement and the impact. However, the links between these factors are rarely considered. The findings are therefore limited to identifying the range of impacts and general lessons for good practice. Reflecting on the links between context, mechanism and outcome in these observational evaluations identifies which aspects of the context and mechanism could be significant to the outcome. Studies that are more in line with the principles of realistic evaluation can test these links more rigorously. Building on the evidence from observational evaluations to design research that explores the ‘missing links’ will help to address the question ‘what works best, for whom and when’.

          Conclusions

          We conclude that a more intentional and explicit exploration of the links between context, mechanism and outcome, applying the principles of realistic evaluation to public involvement in research, should lead to a more sophisticated understanding of the factors that increase or decrease the likelihood of positive outcomes. This will support the development of more strategic approaches to involvement maximizing the benefits for all involved.

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          Author and article information

          Contributors
          Role: Co‐Director
          Role: Director
          Role: Knowledge and Communications Manager
          Role: Research Manager
          Journal
          Health Expect
          Health Expect
          10.1111/(ISSN)1369-7625
          HEX
          Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
          John Wiley and Sons Inc. (Hoboken )
          1369-6513
          1369-7625
          29 October 2012
          December 2014
          : 17
          : 6 ( doiID: 10.1111/hex.2014.17.issue-6 )
          : 755-764
          Affiliations
          [ 1 ] TwoCan Associates Wallace House Hove UK
          [ 2 ] INVOLVE Coordinating Centre University of Leeds Eastleigh Hampshire UK
          Author notes
          [*] [* ] Correspondence

          Kristina Staley PhD

          TwoCan Associates

          Wallace House

          45 Portland Road

          Hove

          BN3 5DQ

          UK

          E‐mail: kristina@ 123456twocanassociates.co.uk

          Article
          PMC5060928 PMC5060928 5060928 HEX12017
          10.1111/hex.12017
          5060928
          23107054
          3a3632fc-5aa6-4731-81f7-94dcb5353bd7
          © 2012 John Wiley & Sons Ltd
          History
          : 18 September 2012
          Page count
          Pages: 10
          Funding
          Funded by: Department of Health
          Categories
          Review Article
          Review Article
          Custom metadata
          2.0
          hex12017
          December 2014
          Converter:WILEY_ML3GV2_TO_NLMPMC version:4.9.4 mode:remove_FC converted:06.10.2016

          evidence,impact,patient and public involvement,public involvement,realistic evaluation

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