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      How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions

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          Abstract

          Objectives

          This scoping review aims to give a comprehensive and systematic overview of published evaluations and the potential impact of patient education interventions for children, adolescents and young adults who are living with chronic illness and/or impairment loss.

          Methods

          Relevant literature published between 2008 and 2018 has been comprehensively reviewed, with attention paid to variations in study, intervention and patient characteristics. Arksey and O'Malley's framework for scoping studies guided the review process, and thematic analysis was undertaken to synthesize extracted data.

          Results

          Of the 7214 titles identified, 69 studies were included in this scoping review. Participant‐reported benefits of the interventions included less distress from symptoms, improved medical adherence and/or less use of medication, and improved knowledge. The majority of studies measuring physical activity and/or physiologic outcomes found beneficial effects. Interventions were also beneficial in terms of decreased use of urgent health care, hospitalization, visits to general practitioner and absence from school. By sharing experiences, participants had learned from each other and attained new insight on how they could manage illness‐related challenges.

          Discussion

          Study results corroborate previous research suggesting that different types of patient education interventions have a positive impact on children, adolescents and young adults, but research on this field is still in a starting phase. The results summed up in the current review supports the utility of patient education interventions that employ behavioural strategies tailored to the developmental needs of children, adolescents and young adults with different cultural backgrounds.

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          Most cited references 157

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              International physical activity questionnaire: 12-country reliability and validity.

              Physical inactivity is a global concern, but diverse physical activity measures in use prevent international comparisons. The International Physical Activity Questionnaire (IPAQ) was developed as an instrument for cross-national monitoring of physical activity and inactivity. Between 1997 and 1998, an International Consensus Group developed four long and four short forms of the IPAQ instruments (administered by telephone interview or self-administration, with two alternate reference periods, either the "last 7 d" or a "usual week" of recalled physical activity). During 2000, 14 centers from 12 countries collected reliability and/or validity data on at least two of the eight IPAQ instruments. Test-retest repeatability was assessed within the same week. Concurrent (inter-method) validity was assessed at the same administration, and criterion IPAQ validity was assessed against the CSA (now MTI) accelerometer. Spearman's correlation coefficients are reported, based on the total reported physical activity. Overall, the IPAQ questionnaires produced repeatable data (Spearman's rho clustered around 0.8), with comparable data from short and long forms. Criterion validity had a median rho of about 0.30, which was comparable to most other self-report validation studies. The "usual week" and "last 7 d" reference periods performed similarly, and the reliability of telephone administration was similar to the self-administered mode. The IPAQ instruments have acceptable measurement properties, at least as good as other established self-reports. Considering the diverse samples in this study, IPAQ has reasonable measurement properties for monitoring population levels of physical activity among 18- to 65-yr-old adults in diverse settings. The short IPAQ form "last 7 d recall" is recommended for national monitoring and the long form for research requiring more detailed assessment.
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                Author and article information

                Contributors
                Role: Senior Researcheruna.stenberg@mestring.no
                Role: Co-researcher
                Role: Adviser
                Role: Associate Professor
                Role: Senior Adviser
                Role: User-representative
                Role: Senior Researcher
                Journal
                Health Expect
                Health Expect
                10.1111/(ISSN)1369-7625
                HEX
                Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
                John Wiley and Sons Inc. (Hoboken )
                1369-6513
                1369-7625
                26 May 2019
                October 2019
                : 22
                : 5 ( doiID: 10.1111/hex.v22.5 )
                : 849-862
                Affiliations
                [ 1 ] Norwegian National Advisory Unit on Learning and Mastery in Health Oslo University Hospital Oslo Norway
                [ 2 ] Learning and Coping Center Oslo University Hospital Oslo Norway
                [ 3 ] Institute of Nursing, Faculty of Public Health Inland Norway University of Applied Sciences Elverum Norway
                [ 4 ] Celebral Palsy Young Oslo Norway
                Author notes
                [* ] Correspondence

                Una Stenberg, Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway.

                Email: una.stenberg@ 123456mestring.no

                HEX12906
                10.1111/hex.12906
                6803408
                31131527
                © 2019 The Authors Health Expectations published by John Wiley & Sons Ltd

                This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                Counts
                Figures: 1, Tables: 4, Pages: 14, Words: 11576
                Product
                Funding
                Funded by: Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Norway
                Categories
                Review Article
                Review Articles
                Custom metadata
                2.0
                hex12906
                October 2019
                Converter:WILEY_ML3GV2_TO_NLMPMC version:5.7.0 mode:remove_FC converted:21.10.2019

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