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      Percepções de familiares sobre as práticas de intervenção precoce na infância em um centro especializado de reabilitação Translated title: Family perceptions about early intervention practices in specialized rehabilitation center

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          Abstract

          Resumo A intervenção precoce centrada na família tem sido considerada entre os pesquisadores como o atual paradigma para o cuidado à infância. Este artigo tem por objetivo apresentar e discutir percepções de familiares sobre as práticas de intervenção precoce e participação ativa da família, realizadas pela equipe de um Centro Especializado de Reabilitação (CER) no atendimento de crianças com Transtorno do Espectro Autista (TEA). Participaram da pesquisa nove familiares de crianças com TEA, de zero a quatro anos e 11 meses, inseridas no serviço. Foram realizadas entrevistas com os participantes para investigar o conhecimento das famílias e suas expectativas sobre a participação nas intervenções, e após a coleta de dados foi feito a análise temática de conteúdo. A prática da equipe desse serviço não está relacionada exclusivamente a um único modelo de apoio às famílias, com a participação família sendo, em sua maioria, alinhada ao modelo de apoio focado na família. Espera-se que este estudo possa contribuir e fomentar discussões sobre a intervenção precoce, dos modelos de apoio à família, e em especial das crianças com TEA.

          Translated abstract

          Abstract Family-centered early intervention has been considered by researchers as the current paradigm for childcare. This article aims to present and discuss perceptions of family members about early intervention practices and active family participation, carried out by the team of a Specialized Rehabilitation Center (CER) in the care of children with Autistic Spectrum Disorder (ASD). Nine family members of children with ASD, from zero to four years and 11 months, included in the service, participated in the research. Interviews were conducted with the participants to investigate the families’ knowledge and their expectations about participating in the interventions, and after data collection, thematic content analysis was performed. The practice of the team at this service is not exclusively related to a single model of support for families, with family participation being, for the most part, aligned with the support model focused on the family. It is hoped that this study can contribute and encourage discussions about early intervention, family support models, and especially children with ASD.

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            Evaluation of the Diagnostic Stability of the Early Autism Spectrum Disorder Phenotype in the General Population Starting at 12 Months

            This study examines the diagnostic stability of autism spectrum disorder in a large cohort of toddlers starting at 12 months of age and compares this stability with that of toddlers with other disorders.
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              A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

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                Author and article information

                Journal
                physis
                Physis: Revista de Saúde Coletiva
                Physis
                PHYSIS - Revista de Saúde Coletiva (Rio de Janeiro, RJ, Brazil )
                0103-7331
                1809-4481
                2023
                : 33
                : e33073
                Affiliations
                [3] São Paulo orgnameUniversidade Federal de São Paulo Brazil
                [2] Braga orgnameUniversidade do Minho Portugal
                [1] Praia Grande SP orgnamePrefeitura Municipal da Praia Grande Brasil
                Article
                S0103-73312023000100662 S0103-7331(23)03300000662
                10.1590/s0103-7331202333073
                a5e641a6-0db2-4aa6-a421-abd440cfa9dc

                This work is licensed under a Creative Commons Attribution 4.0 International License.

                History
                : 30 September 2021
                : 06 February 2023
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 33, Pages: 0
                Product

                SciELO Brazil


                Rehabilitation Center,Family,Early Intervention,Autism Spectrum Disorders,Centro de Reabilitação,Família,Transtornos do Espectro Autista,Intervenção Precoce

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