Percepciones sobre el cuidado en personas adultas con discapacidad intelectual de un centro de día argentino  <span class="so-article-trans-title" dir="auto"> Translated title: Perceptions about care in adults with intellectual disabilities in an Argentine day center </span>

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Abstract

Resumen Introducción: En este artículo se parte de la perspectiva que afirma que el cuidado es más que una tarea y alude a modos de vinculación de cada persona consigo misma, con las demás y con los ecosistemas. De este modo, se abona el supuesto de que todas las personas tienen saberes sobre el cuidado y pueden cuidar. Objetivo principal: Analizar las percepciones en torno al cuidado que presentan las personas con discapacidad intelectual adultas que asisten a un centro de día de la región centro de Argentina, a partir de sus propias vivencias y significaciones. Método: El estudio se enmarca en el paradigma cualitativo, desde el enfoque de la grounded theory. En este artículo se presentan los resultados de 10 entrevistas en profundidad y 2 círculos de conversación reflexiva (focus group) desarrollados entre los meses de febrero y mayo del año 2022, con 10 personas adultas de diferentes géneros y edades que asisten a un centro de día dedicado a su inclusión social y laboral. Resultados y conclusión: Se evidencian múltiples percepciones en torno al cuidado: como ayuda ante tareas de la vida cotidiana, prácticas ligadas al control, vínculos fundamentados en la reciprocidad. Las personas entrevistadas se reconocen agenciando diferentes prácticas de cuidado. El artículo concluye que las percepciones de las personas que formaron parte de este estudio, son discordantes respecto a la literatura predominante en torno al tema, la cual solo considera el rol de las personas con discapacidad como receptoras de cuidado. Asimismo, presentan percepciones que asimilan, así como también diferencian, las prácticas de control respecto del cuidado. Estas consideraciones convocan a abordajes complejos del tema, que permitan identificar la agencia y la recepción del cuidado en los vínculos más allá de los roles existentes.

Translated abstract

Abstract Introduction: This article starts from the perspective that affirms that care is more than a task and alludes to ways of linking each person with himself, with others and with ecosystems. In this way, the assumption that all people have knowledge about care and can care is supported. Main goal: To analyze the perceptions about the care presented by adults with intellectual disabilities who attend a day center in the central region of Argentina, based on their own experiences and meanings. Method and technique: The study is framed in the qualitative paradigm, from the Grounded Theory approach. This article presents the results of 10 in-depth interviews and 2 reflective conversation circles (focus groups) developed between the months of February and May 2022, with 10 adults of different genders and ages who attend a day center, dedicated to their social and labor inclusion. Results and conclusion: Multiple perceptions about care are evident: as help with tasks of daily life, practices linked to control, relations based on reciprocity. People with intellectual disabilities are recognized by executing different care practices. The article concludes that the perceptions of the people who were part of this study are discordant with respect to the mostly current literature on the subject, which only considers their role as recipients of care. Likewise, they present perceptions that assimilate, as well as differentiate, control practices regarding care. These considerations call us to complex approaches to the subject, which allow us to identify the agency and the reception of care in the links beyond the existing roles.

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Most cited references 54

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The Discovery of Grounded Theory : Strategies for Qualitative Research

Barney G. Glaser, Anselm L. Strauss (1967)

Most writing on sociological method has been concerned with how accurate facts can be obtained and how theory can thereby be more rigorously tested. In The Discovery of Grounded Theory, Barney Glaser and Anselm Strauss address the equally Important enterprise of how the discovery of theory from data--systematically obtained and analyzed in social research--can be furthered. The discovery of theory from data--grounded theory--is a major task confronting sociology, for such a theory fits empirical situations, and is understandable to sociologists and laymen alike. Most important, it provides relevant predictions, explanations, interpretations, and applications. In Part I of the book, -Generation Theory by Comparative Analysis, - the authors present a strategy whereby sociologists can facilitate the discovery of grounded theory, both substantive and formal. This strategy involves the systematic choice and study of several comparison groups. In Part II, The Flexible Use of Data, - the generation of theory from qualitative, especially documentary, and quantitative data Is considered. In Part III, -Implications of Grounded Theory, - Glaser and Strauss examine the credibility of grounded theory. The Discovery of Grounded Theory is directed toward improving social scientists' capacity for generating theory that will be relevant to their research. While aimed primarily at sociologists, it will be useful to anyone Interested In studying social phenomena--political, educational, economic, industrial-- especially If their studies are based on qualitative data.