mHealth and Health Analytics Interventions to support Patients with Advanced Chronic Kidney Disease

Chronic kidney disease is a substantial global health burden, very significant independent risk factor for further morbidities, greatly decreases quality of life and has a very high associated cost to health systems. Patients experience complex treatment trajectories, high levels of treatment burden and can become frustrated and dissatisfied with their experience. I seek to investigate the potential of mobile health technologies to support advanced chronic kidney disease patients in their treatment, by iteratively developing and evaluating produced solutions with patients and experts, while working with NHS partners to form an implementation and deployment strategy for such solutions into routine practice.

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Author and article information

Contributors

Ramsay Meiklem

Conference

Publication date: July 2020

Publication date (Print): July 2020

Pages: 77-79

Affiliations

[0001]Department of Computer and Information Sciences,

University of Strathclyde,

Glasgow, UK

Article

DOI: 10.14236/ewic/HCI20DC.20

SO-VID: f1b25ebc-b8fe-4178-b8ab-e88cf6145abf

License:

This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

Conference name: Proceedings of the 33rd International BCS Human Computer Interaction Conference

Conference acronym: BCS HCI 2020

Conference number: 33

Conference location: Keele University, UK

Conference date: 6 July 2020

Conference sponsor: Electronic Workshops in Computing (eWiC)

Conference theme: Human Computer Interaction

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1477-9358 BCS Learning & Development

Self URI (article page): https://www.scienceopen.com/hosted-document?doi=10.14236/ewic/HCI20DC.20

Self URI (journal page): https://ewic.bcs.org/

REFERENCES

E. AitkenP. ThomsonL. BainbridgeR. KasthuriB. MohrD. Kingsmore 2017 A randomized controlled trial and cost-effectiveness analysis of early cannulation arteriovenous grafts versus tunneled central venous catheters in patients requiring urgent vascular access for hemodialysis Journal of Vascular Surgery 65 3 766 774
M.M. BouamraneR. MeiklemM. DunlopD. KingsmoreP. ThomsonK. StevensonS. Greenwood 2019 June Haemodialysis electronic patient portal: a design requirements analysis and feasibility study with domain experts. 2019 IEEE 32nd International Symposium on Computer-Based Medical Systems (CBMS) 212 216 IEEE
E.R. BurgessM.C. ReddyA. DavenportP. LaboiA. Blandford 2019 May Tricky to get your head around" Information Work of People Managing Chronic Kidney Disease in the UK. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems 1 17
J. ClearyJ. Drennan 2005 Quality of life of patients on haemodialysis for end -stage renal disease Journal of advanced nursing 51 6 577 586
D.T. EtonD.R. de OliveiraJ.S. EggintonJ.L. RidgewayL. OdellC.R. MayV.M. Montori 2012 Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient related outcome measures 3 39
H.I. FeldmanS. KobrinA. Wasserstein 1996 Hemodialysis vascular access morbidity Journal of the American Society of Nephrology 7 4 523 535 David T. Eton et al "Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study." Patient related outcome measures 3 2012 39
S. FukuharaA.A. LopesJ.L. Bragg-GreshamK. KurokawaD.L. MapesT. AkizawaJ. BommerB.J. CanaudF.K. PortP.J. Held 2003 Health-related quality of life among dialysis patients on three continents: the Dialysis Outcomes and Practice Patterns Study Kidney international 64 5 1903 1910
K.I. GallacherC.R. MayP. LanghorneF.S. Mair 2018 A conceptual model of treatment burden and patient capacity in stroke. BMC family practice 19 1 9
N.R. HillS.T. FatobaJ.L. OkeJ.A. HirstC.A. O’CallaghanD.S. LassersonF.R. Hobbs 2016 Global prevalence of chronic kidney disease–a systematic review and meta-analysis. PloS one 11 7 e0158765
D.J. JonesK. HarveyJ.P. HarrisL.T. ButlerE.C. Vaux 2017 Understanding the impact of haemodialysis on UK National Health Service patients’ well-being: A qualitative investigation. Journal of Clinical Nursing 27 1–2 193 204 Scott W. Oliver et al "A national appraisal of haemodialysis vascular access provision in Scotland." The journal of vascular access 18 2 2017 126 131
Carl MayM. Montori VictorS. Mair. Frances "We need minimally disruptive medicine." Bmj 339 2009 b2803
S.P. MurphyM.J. PowersA. Jalowiec 1985 Psychometric evaluation of the hemodialysis stressor scale. Nursing Research
S.W. OliverJ. CampbellD.B. KingsmoreR. KasthuriW. MetcalfeJ.P. TraynorD. Fischbacher-SmithA.G. JardineP.C. Thomson 2017 A national appraisal of haemodialysis vascular access provision in Scotland The Journal of Vascular Access 18 2 126 131
P. Stenvinkel 2010 Chronic kidney disease: a public health priority and harbinger of premature cardiovascular disease Journal of internal medicine 268 5 456 467

Comments

Comment on this article

[1] E. AitkenP. ThomsonL. BainbridgeR. KasthuriB. MohrD. Kingsmore 2017 A randomized controlled trial and cost-effectiveness analysis of early cannulation arteriovenous grafts versus tunneled central venous catheters in patients requiring urgent vascular access for hemodialysis Journal of Vascular Surgery 65 3 766 774

[2] M.M. BouamraneR. MeiklemM. DunlopD. KingsmoreP. ThomsonK. StevensonS. Greenwood 2019 June Haemodialysis electronic patient portal: a design requirements analysis and feasibility study with domain experts. 2019 IEEE 32nd International Symposium on Computer-Based Medical Systems (CBMS) 212 216 IEEE

[3] E.R. BurgessM.C. ReddyA. DavenportP. LaboiA. Blandford 2019 May Tricky to get your head around" Information Work of People Managing Chronic Kidney Disease in the UK. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems 1 17

[4] J. ClearyJ. Drennan 2005 Quality of life of patients on haemodialysis for end -stage renal disease Journal of advanced nursing 51 6 577 586

[5] D.T. EtonD.R. de OliveiraJ.S. EggintonJ.L. RidgewayL. OdellC.R. MayV.M. Montori 2012 Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient related outcome measures 3 39

[6] H.I. FeldmanS. KobrinA. Wasserstein 1996 Hemodialysis vascular access morbidity Journal of the American Society of Nephrology 7 4 523 535 David T. Eton et al "Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study." Patient related outcome measures 3 2012 39

[7] S. FukuharaA.A. LopesJ.L. Bragg-GreshamK. KurokawaD.L. MapesT. AkizawaJ. BommerB.J. CanaudF.K. PortP.J. Held 2003 Health-related quality of life among dialysis patients on three continents: the Dialysis Outcomes and Practice Patterns Study Kidney international 64 5 1903 1910

[8] K.I. GallacherC.R. MayP. LanghorneF.S. Mair 2018 A conceptual model of treatment burden and patient capacity in stroke. BMC family practice 19 1 9

[9] N.R. HillS.T. FatobaJ.L. OkeJ.A. HirstC.A. O’CallaghanD.S. LassersonF.R. Hobbs 2016 Global prevalence of chronic kidney disease–a systematic review and meta-analysis. PloS one 11 7 e0158765

[10] D.J. JonesK. HarveyJ.P. HarrisL.T. ButlerE.C. Vaux 2017 Understanding the impact of haemodialysis on UK National Health Service patients’ well-being: A qualitative investigation. Journal of Clinical Nursing 27 1–2 193 204 Scott W. Oliver et al "A national appraisal of haemodialysis vascular access provision in Scotland." The journal of vascular access 18 2 2017 126 131

[11] Carl MayM. Montori VictorS. Mair. Frances "We need minimally disruptive medicine." Bmj 339 2009 b2803

[12] S.P. MurphyM.J. PowersA. Jalowiec 1985 Psychometric evaluation of the hemodialysis stressor scale. Nursing Research

[13] S.W. OliverJ. CampbellD.B. KingsmoreR. KasthuriW. MetcalfeJ.P. TraynorD. Fischbacher-SmithA.G. JardineP.C. Thomson 2017 A national appraisal of haemodialysis vascular access provision in Scotland The Journal of Vascular Access 18 2 126 131

[14] P. Stenvinkel 2010 Chronic kidney disease: a public health priority and harbinger of premature cardiovascular disease Journal of internal medicine 268 5 456 467

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