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      It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism

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          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Shelter in place mandates due to the COVID-19 pandemic left caregivers to determine how to best meet the therapeutic requirements of their children with autism spectrum disorder (ASD). Understanding the challenges faced by families, and their experiences using telehealth for the first time, may help make services sustainable in future public health emergencies. A sample of 70 caregivers of people with ASD from across the US completed an anonymous online survey. Results indicate that impaired emotion regulation was a primary contributor of parent-reported stress for persons with ASD during the pandemic, while loss of established structure and routine contributed to parental stress. Nearly half the sample reported using telehealth for the first time. Many caregivers were appreciative that telehealth permitted continuation of services, but expressed concerns about limited effectiveness due in part to their children’s social communication problems.

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          Using thematic analysis in psychology

          Virginia Braun, Victoria Clarke (2014)
          Article 0 comments Cited 17733 times – based on 0 reviews     Review now
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            Global trends in emerging infectious diseases

            Kate E. Jones, Nikkita G Patel, Marc A. Levy … (2008)
            The next new disease Emerging infectious diseases are a major threat to health: AIDS, SARS, drug-resistant bacteria and Ebola virus are among the more recent examples. By identifying emerging disease 'hotspots', the thinking goes, it should be possible to spot health risks at an early stage and prepare containment strategies. An analysis of over 300 examples of disease emerging between 1940 and 2004 suggests that these hotspots can be accurately mapped based on socio-economic, environmental and ecological factors. The data show that the surveillance effort, and much current research spending, is concentrated in developed economies, yet the risk maps point to developing countries as the more likely source of new diseases. Supplementary information The online version of this article (doi:10.1038/nature06536) contains supplementary material, which is available to authorized users.
            Article 0 comments Cited 1354 times – based on 0 reviews     Review now
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              The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder.

              Stephanie Hayes, Shelley L Watson (2013)
              Researchers commonly report that families of children with autism spectrum disorder (ASD) experience more parenting stress than families of typically developing (TD) children or those diagnosed with other disabilities [e.g., Down syndrome (DS), cerebral palsy, intellectual disability]. The authors reexamined the research using comparison groups to investigate parenting stress and conducted a meta-analysis to pool results across studies. The experience of stress in families of children with ASD versus families of TD children resulted in a large effect size. Comparisons between families of children of ASD and families with other disabilities also generated a large effect size however, this result should be interpreted with caution as it may be associated with the specific experience of parenting a child with DS.
              Article 0 comments Cited 230 times – based on 0 reviews     Review now
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                Author and article information

                Journal
                Journal ID (nlm-ta): Res Dev Disabil
                Journal ID (iso-abbrev): Res Dev Disabil
                Title: Research in Developmental Disabilities
                Publisher: Elsevier Ltd.
                ISSN (Print): 0891-4222
                ISSN (Electronic): 1873-3379
                Publication date PMC-release: 14 March 2021
                Publication date (Print): June 2021
                Publication date (Electronic): 14 March 2021
                Volume: 113
                Page: 103938
                Affiliations
                [a ]Center for Youth Development and Intervention, The University of Alabama, 200 Hackberry Lane, Suite 101, Tuscaloosa, AL 35487, United States
                [b ]Autism Spectrum Disorders Clinic, The University of Alabama, P.O. Box 870161, Tuscaloosa, AL 35487, United States
                [c ]Department of Psychology, The University of Alabama, Tuscaloosa, AL 35487, United States
                [d ]Institute of Psychiatry, Psychology and Neuroscience, King’s College London, de Crespigny Park, Denmark Hill, London SE5 8AF, United Kingdom
                Author notes
                [* ]Corresponding author.
                Article
                Publisher Item ID: S0891-4222(21)00087-1 Publisher ID: 103938
                DOI: 10.1016/j.ridd.2021.103938
                PMC ID: 9758058
                PubMed ID: 33730684
                SO-VID: 1c8de722-f824-42b2-bdb0-a85b391b390e
                Copyright © © 2021 Elsevier Ltd. All rights reserved.
                License:

                Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.

                History
                Date received : 8 November 2020
                Date revision received : 7 March 2021
                Date accepted : 10 March 2021
                Categories
                Subject: Article

                ScienceOpen disciplines: Neurology
                Keywords: autism,covid-19,pandemic,stress,telehealth
                Data availability:
                ScienceOpen disciplines: Neurology
                Keywords: autism, covid-19, pandemic, stress, telehealth

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