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      Communication Patterns and Characteristics of Family Caregivers and Persons Living With Dementia: Secondary Analysis of Video Observation

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          Abstract

          Background:

          It is essential to characterize communication patterns for better health outcomes for family caregivers and persons living with dementia.

          Objective:

          This study aimed to examine the relationships between communication patterns and the characteristics of dyads of family caregivers and persons living with dementia.

          Methods:

          A secondary analysis was conducted using 75 video-recorded home care observations from 19 dyads. Participant characteristics and caregiver burden, depression, and sense of competence were collected from the parent study. The video-recorded dyadic communication patterns were assessed using a coding scheme developed based on Communication Accommodation Theory and Classical Test Theory. The relative frequency of the communication patterns was compared between groups.

          Results:

          Overall, 8311 caregiver and 8024 care recipient communication behaviors were observed. Caregiver communication patterns were categorized as facilitative, disabling, and neutral. Care recipient communication patterns were categorized as engaging, challenging, and neutral. Caregiver gender, care recipient gender, care recipient education level, dementia diagnosis length, types of dementia, dyadic gender difference, burden, depression, and competence of caregiver, and types of communication were significantly associated with caregiver communication. Dementia diagnosis length, caregiver competence, dyadic gender difference, and types of communication were significantly associated with care recipient communication.

          Conclusions:

          The findings demonstrated different communication patterns depending on individual and dyad characteristics and evidence for dyadic communication support to promote meaningful interaction for persons living with dementia. Further analysis is needed to identify mediating factors and causal relationships.

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          Most cited references29

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          Descriptive Statistics and Normality Tests for Statistical Data

          Descriptive statistics are an important part of biomedical research which is used to describe the basic features of the data in the study. They provide simple summaries about the sample and the measures. Measures of the central tendency and dispersion are used to describe the quantitative data. For the continuous data, test of the normality is an important step for deciding the measures of central tendency and statistical methods for data analysis. When our data follow normal distribution, parametric tests otherwise nonparametric methods are used to compare the groups. There are different methods used to test the normality of data, including numerical and visual methods, and each method has its own advantages and disadvantages. In the present study, we have discussed the summary measures and methods used to test the normality of the data.
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            The Zarit Burden Interview: a new short version and screening version.

            The purpose of the study was to develop a short and a screening version of the Zarit Burden Interview (ZBI) that would be suitable across diagnostic groups of cognitively impaired older adults, and that could be used for cross-sectional, longitudinal, and intervention studies. We used data from 413 caregivers of cognitively impaired older adults referred to a memory clinic. We collected information on caregiver burden with the 22-item ZBI, and information about dependence in activities of daily living (ADLs) and the frequency of problem behaviors among care recipients. We used factor analysis and item-total correlations to reduce the number of items while taking into consideration diagnosis and change scores. We produced a 12-item version (short) and a 4-item version (screening) of the ZBI. Correlations between the short and the full version ranged from 0.92 to 0.97, and from 0.83 to 0.93 for the screening version. Correlations between the three versions and ADL and problem behaviors were similar. We further investigated the behavior of the short version with a two-way analysis of variance and found that it produced identical results to the full version. The short and screening versions of the ZBI produced results comparable to those of the full version. Reducing the number of items did not affect the properties of the ZBI, and it may lead to easier administration of the instrument.
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              Center for Epidemiologic Studies Depression Scale (CES-D) as a screening instrument for depression among community-residing older adults.

              The efficacy of the Center for Epidemiologic Studies Depression Scale (CES-D) as a screener for clinical depression was examined in a sample of 1,005 community-residing adults (age range = 50-96). Presence of a depressive disorder was determined by diagnostic interview. Analyses revealed that neither age, gender, cognitive impairment, functional impairment, physical disease, nor social desirability had a significant negative effect on the psychometric properties or screening efficacy of the CES-D. These results indicate that there was no significant degradation in the ability of the CES-D to screen for depression among community-residing elderly adults. This conclusion must be tempered by the fact that the sample did not include participants with the more disabling forms of cognitive or functional impairment and physical illness.
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                Author and article information

                Journal
                West J Nurs Res
                West J Nurs Res
                WJN
                spwjn
                Western Journal of Nursing Research
                SAGE Publications (Sage CA: Los Angeles, CA )
                0193-9459
                1552-8456
                24 February 2024
                April 2024
                : 46
                : 4
                : 264-277
                Affiliations
                [1 ]College of Nursing and Health Innovation, The University of Texas at Arlington, Arlington, TX, USA
                [2 ]The University of Iowa, Iowa City, IA, USA
                [3 ]The University of Kansas, Kansas City, KS, USA
                Author notes
                [*]Sohyun Kim, College of Nursing and Health Innovation, The University of Texas at Arlington, Arlington, TX 76019-9800, USA. Email: sohyun.kim@ 123456uta.edu
                Author information
                https://orcid.org/0000-0001-7043-7345
                https://orcid.org/0000-0002-1491-7384
                Article
                10.1177_01939459241233360
                10.1177/01939459241233360
                10955794
                38400741
                1e4e95ec-d7b4-4d77-ba2e-1bae0fd00b27
                © The Author(s) 2024

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Funding
                Funded by: National Institute of Nursing Research, FundRef https://doi.org/10.13039/100000056;
                Award ID: R01NR014737
                Categories
                Research Reports
                Custom metadata
                ts1

                dementia,communication,burden,competence,dyadic research,cognitive impairment,home care,caregivers,gerontology

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