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      Communication and access to healthcare: Experiences of Aboriginal and Torres Strait Islander people managing pain in Queensland, Australia

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          Abstract

          Background

          Pain management requires a multidisciplinary approach and a collaborative relationship between patient-provider in which communication is crucial. This study examines the communication experiences of Aboriginal and Torres Strait Islander patients and Aboriginal and Torres Strait Islander Hospital Liaison Officers (ATSIHLOs), to improve understanding of how pain is managed in and through patient-health professional communication.

          Methods

          This qualitative study involved a purposive sample of patients attending three persistent pain clinics and ATSIHLOs working in two hospitals in Queensland, Australia. Focus groups and in-depth interviews explored the communication experiences of patients managing pain and ATSIHLOs supporting patients with pain. This study adopted a descriptive phenomenological methodology, as described by Colaizzi (1978). Relevant statements (patient and ATSIHLOs quotes) about the phenomenon were extracted from the transcripts to formulate meanings. The formulated meanings were subsequently sorted into thematic clusters and then integrated into themes. The themes were then incorporated into a concise description of the phenomenon of communication within pain management. Findings were validated by participants.

          Results

          A total of 21 Aboriginal and Torres Strait Islander participants were involved in this study. Exploration of the communication experiences of patients and ATSIHLOs revealed overlapping themes of important barriers to and enablers of communication that affected access to care while managing pain. Acknowledging historical and cultural factors were particularly important to build trust between patients and health professionals. Some patients reported feeling stigmatized for identifying as Aboriginal and Torres Strait Islander, while others were reluctant to disclose their background for fear of not having the same opportunity for treatment. Differences in the expression of pain and the difficulty to use standard pain measurement scales were identified. Communication was described as more than the content delivered, it is visual and emotional expressed through body language, voice intonation, language and the speed of the conversation.

          Conclusion

          Communication can significantly affect access to pain management services. Aboriginal and Torres Strait Islander patients highlighted the burden of emotional pain caused by historical factors, negative stereotypes and the fear of discrimination. Pain management services and their health professionals need to acknowledge how these factors impact patients trust and care.

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          Most cited references38

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          Chronic pain: a review of its epidemiology and associated factors in population-based studies

          Chronic pain is a common, complex, and distressing problem that has a profound impact on individuals and society. It frequently presents as a result of a disease or an injury; however, it is not merely an accompanying symptom, but rather a separate condition in its own right, with its own medical definition and taxonomy. Studying the distribution and determinants of chronic pain allows us to understand and manage the problem at the individual and population levels. Targeted and appropriate prevention and management strategies need to take into account the biological, psychological, socio-demographic, and lifestyle determinants and outcomes of pain. We present a narrative review of the current understanding of these factors.
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            Overlapping Chronic Pain Conditions: Implications for Diagnosis and Classification.

            There is increasing recognition that many if not most common chronic pain conditions are heterogeneous with a high degree of overlap or coprevalence of other common pain conditions along with influences from biopsychosocial factors. At present, very little attention is given to the high degree of overlap of many common pain conditions when recruiting for clinical trials. As such, many if not most patients enrolled into clinical studies are not representative of most chronic pain patients. The failure to account for the heterogeneous and overlapping nature of most common pain conditions may result in treatment responses of small effect size when these treatments are administered to patients with chronic overlapping pain conditions (COPCs) represented in the general population. In this brief review we describe the concept of COPCs and the putative mechanisms underlying COPCs. Finally, we present a series of recommendations that will advance our understanding of COPCs.
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              Pain: an overview.

              Until the 1960s, pain was considered an inevitable sensory response to tissue damage. There was little room for the affective dimension of this ubiquitous experience, and none whatsoever for the effects of genetic differences, past experience, anxiety, or expectation. In recent years, great advances have been made in our understanding of the mechanisms that underlie pain and in the treatment of people who complain of pain. The roles of factors outside the patient's body have also been clarified. Pain is probably the most common symptomatic reason to seek medical consultation. All of us have headaches, burns, cuts, and other pains at some time during childhood and adult life. Individuals who undergo surgery are almost certain to have postoperative pain. Ageing is also associated with an increased likelihood of chronic pain. Health-care expenditures for chronic pain are enormous, rivalled only by the costs of wage replacement and welfare programmes for those who do not work because of pain. Despite improved knowledge of underlying mechanisms and better treatments, many people who have chronic pain receive inadequate care.
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                Author and article information

                Contributors
                Journal
                Front Pain Res (Lausanne)
                Front Pain Res (Lausanne)
                Front. Pain Res.
                Frontiers in Pain Research
                Frontiers Media S.A.
                2673-561X
                2673-561X
                06 December 2022
                2022
                : 3
                : 1041968
                Affiliations
                [ 1 ]Aboriginal and Torres Strait Islander Health Research Program, QIMR Berghofer Medical Research Institute , Brisbane, QLD, Australia
                [ 2 ]Western Australian Center for Rural Health, University of Western Australia , Geraldton, WA, Australia
                [ 3 ]North Queensland Persistent Pain Management Service, Townsville Hospital and Health Service , Townsville, QLD, Australia
                [ 4 ]Centre for Business and Economics of Health, Faculty of Business , St Lucia, QLD, Australia
                [ 5 ]Tess Cramond Pain and Research Centre, Metro North Hospital and Health Service , Brisbane, QLD, Australia
                [ 6 ]School of Psychology and Counselling, Faculty of Health , Brisbane, QLD, Australia
                [ 7 ]Aboriginal and Torres Strait Islander Health Division, Cultural Capability Services , Brisbane, QLD, Australia
                [ 8 ]Persistent Pain Clinic, Metro South Hospital and Health Service , Brisbane, QLD, Australia
                Author notes

                Edited by: Shivantika Sharad, University of Delhi, India

                Reviewed by: Kshitija Wason, University of Delhi, India Aishwarya Jaiswal, Banaras Hindu University, India

                [* ] Correspondence: Christina Maresch Bernardes christina.bernardes@ 123456qimrberghofer.edu.au

                Specialty Section: This article was submitted to Pain Research Methods, a section of the journal Frontiers in Pain Research

                Article
                10.3389/fpain.2022.1041968
                9763606
                36561982
                523cdd99-cdc9-4bbd-b7d7-e39792fbc15c
                © 2022 Bernardes, Houkamau, Lin, Taylor, Birch, Claus, Bryant, Meuter, Isua, Gray, Kluver, Jones, Ekberg and Pratt.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 12 September 2022
                : 14 November 2022
                Page count
                Figures: 0, Tables: 3, Equations: 0, References: 43, Pages: 0, Words: 0
                Funding
                Funded by: This study was funded by Brisbane Diamantina Health partners (BDHP) – Medical Research Future Fund (MRFF): Rapid Applied Research Translation (RART) Grant Opportunity.
                Categories
                Pain Research
                Original Research

                communication,aboriginal,torres strait islander,pain,access to healthcare

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