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      Disabled women׳s maternal and newborn health care in rural Nepal: A qualitative study

      research-article
      , PhD, MSc a , * , , MPH (Researcher) b , , MA (Researcher) b , , MA (Researcher) b , , MSc (Researcher) b , , MBBS, DCH, MRCP b , , MA MB BChir FRCP, FRCPCH FMedSci a , , PhD c
      Midwifery
      Churchill Livingstone
      Disability, Neonatal, Equity, Quality, Access, Respectful care

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          Abstract

          Objective

          there is little evidence about disabled women׳s access to maternal and newborn health services in low-income countries and few studies consult disabled women themselves to understand their experience of care and care seeking. Our study explores disabled women׳s experiences of maternal and newborn care in rural Nepal.

          Design

          we used a qualitative methodology, using semi-structured interviews.

          Setting

          rural Makwanpur District of central Nepal.

          Participants

          we purposively sampled married women with different impairments who had delivered a baby in the past 10 years from different topographical areas of the district. We also interviewed maternal health workers. We compared our findings with a recent qualitative study of non-disabled women in the same district to explore the differences between disabled and non-disabled women.

          Findings

          married disabled women considered pregnancy and childbirth to be normal and preferred to deliver at home. Issues of quality, cost and lack of family support were as pertinent for disabled women as they were for their non-disabled peers. Health workers felt unprepared to meet the maternal health needs of disabled women.

          Key conclusions and implications for practice

          integration of disability into existing Skilled Birth Attendant training curricula may improve maternal health care for disabled women. There is a need to monitor progress of interventions that encourage institutional delivery through the use of disaggregated data, to check that disabled women are benefiting equally in efforts to improve access to maternal health care.

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          Most cited references49

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          Effect of a participatory intervention with women's groups on birth outcomes in Nepal: cluster-randomised controlled trial.

          Neonatal deaths in developing countries make the largest contribution to global mortality in children younger than 5 years. 90% of deliveries in the poorest quintile of households happen at home. We postulated that a community-based participatory intervention could significantly reduce neonatal mortality rates. We pair-matched 42 geopolitical clusters in Makwanpur district, Nepal, selected 12 pairs randomly, and randomly assigned one of each pair to intervention or control. In each intervention cluster (average population 7000), a female facilitator convened nine women's group meetings every month. The facilitator supported groups through an action-learning cycle in which they identified local perinatal problems and formulated strategies to address them. We monitored birth outcomes in a cohort of 28?931 women, of whom 8% joined the groups. The primary outcome was neonatal mortality rate. Other outcomes included stillbirths and maternal deaths, uptake of antenatal and delivery services, home care practices, infant morbidity, and health-care seeking. Analysis was by intention to treat. The study is registered as an International Standard Randomised Controlled Trial, number ISRCTN31137309. From 2001 to 2003, the neonatal mortality rate was 26.2 per 1000 (76 deaths per 2899 livebirths) in intervention clusters compared with 36.9 per 1000 (119 deaths per 3226 livebirths) in controls (adjusted odds ratio 0.70 [95% CI 0.53-0.94]). Stillbirth rates were similar in both groups. The maternal mortality ratio was 69 per 100000 (two deaths per 2899 livebirths) in intervention clusters compared with 341 per 100000 (11 deaths per 3226 livebirths) in control clusters (0.22 [0.05-0.90]). Women in intervention clusters were more likely to have antenatal care, institutional delivery, trained birth attendance, and hygienic care than were controls. Birth outcomes in a poor rural population improved greatly through a low cost, potentially sustainable and scalable, participatory intervention with women's groups.
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            Equity in maternal, newborn, and child health interventions in Countdown to 2015: a retrospective review of survey data from 54 countries.

            Countdown to 2015 tracks progress towards achievement of Millennium Development Goals (MDGs) 4 and 5, with particular emphasis on within-country inequalities. We assessed how inequalities in maternal, newborn, and child health interventions vary by intervention and country. We reanalysed data for 12 maternal, newborn, and child health interventions from national surveys done in 54 Countdown countries between Jan 1, 2000, and Dec 31, 2008. We calculated coverage indicators for interventions according to standard definitions, and stratified them by wealth quintiles on the basis of asset indices. We assessed inequalities with two summary indices for absolute inequality and two for relative inequality. Skilled birth attendant coverage was the least equitable intervention, according to all four summary indices, followed by four or more antenatal care visits. The most equitable intervention was early initation of breastfeeding. Chad, Nigeria, Somalia, Ethiopia, Laos, and Niger were the most inequitable countries for the interventions examined, followed by Madagascar, Pakistan, and India. The most equitable countries were Uzbekistan and Kyrgyzstan. Community-based interventions were more equally distributed than those delivered in health facilities. For all interventions, variability in coverage between countries was larger for the poorest than for the richest individuals. We noted substantial variations in coverage levels between interventions and countries. The most inequitable interventions should receive attention to ensure that all social groups are reached. Interventions delivered in health facilities need specific strategies to enable the countries' poorest individuals to be reached. The most inequitable countries need additional efforts to reduce the gap between the poorest individuals and those who are more affluent. Bill & Melinda Gates Foundation, Norad, The World Bank. Copyright © 2012 Elsevier Ltd. All rights reserved.
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              Disability and Poverty in Developing Countries: A Multidimensional Study

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                Author and article information

                Contributors
                Role: Dr
                Role: Dr
                Role: Professor
                Role: Professor
                Journal
                Midwifery
                Midwifery
                Midwifery
                Churchill Livingstone
                0266-6138
                1532-3099
                1 November 2014
                November 2014
                : 30
                : 11
                : 1132-1139
                Affiliations
                [a ]Institute for Global Health, University College London, 30 Guildford Street, London WC1N 1EH, UK
                [b ]MIRA, PO Box 921, Thapathali, Kathmandu, Nepal
                [c ]Leonard Cheshire Disability and Inclusive Development Centre, Department of Epidemiology and Public Health, University College London, 1-19 Torrington Place, London WC1E 6BT, UK
                Author notes
                [* ]Corresponding author. Joanna.morrison@ 123456ucl.ac.uk
                Article
                S0266-6138(14)00092-8
                10.1016/j.midw.2014.03.012
                4217148
                24768318
                8d515f34-0560-45f8-8cd7-6fcf949b2c60
                © 2014 The Authors
                History
                : 13 November 2013
                : 18 March 2014
                : 22 March 2014
                Categories
                Article

                Obstetrics & Gynecology
                disability,neonatal,equity,quality,access,respectful care
                Obstetrics & Gynecology
                disability, neonatal, equity, quality, access, respectful care

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