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      Evaluating patient and stakeholder engagement in research: moving from theory to practice.

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          Abstract

          Despite the growing demand for research that engages stakeholders, there is limited evidence in the literature to demonstrate its value - or return on investment. This gap indicates a general lack of evaluation of engagement activities. To adequately inform engagement activities, we need to further investigate the dividends of engaged research, and how to evaluate these effects. This paper synthesizes the literature on hypothesized impacts of engagement, shares what has been evaluated and identifies steps needed to reduce the gap between engagement's promises and the underlying evidence supporting its practice. This assessment provides explicit guidance for better alignment of engagement's promised benefits with evaluation efforts and identifies specific areas for development of evaluative measures and better reporting processes.

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          Author and article information

          Journal
          J Comp Eff Res
          Journal of comparative effectiveness research
          2042-6313
          2042-6305
          Mar 2015
          : 4
          : 2
          Affiliations
          [1 ] Academy Health, 1150 17th Street NW, Suite 600, Washington, DC 20036, USA.
          Article
          10.2217/cer.14.79
          25825842
          999eb266-cfb3-4c42-83ba-1ac47f507aa8
          History

          PCOR,comparative effectiveness research,evaluation,patient engagement,patient-centered outcomes research,review,stakeholder engagement

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