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      The FAIR Funding Model: Providing a Framework for Research Funders to Drive the Transition toward FAIR Data Management and Stewardship Practices

      1 , 2
      Data Intelligence
      MIT Press - Journals

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          Abstract

          A growing number of research funding organizations (RFOs) are taking responsibility to increase the scientific and social impact of research output. Also reusable research data are recognized as relevant output for gaining impact. RFOs are therefore promoting FAIR research data management and stewardship (RDM) in their research funding cycle. However, the implementation of FAIR RDM still faces important obstacles and challenges. To solve these, stakeholders work together to develop innovative tools and practices. Here we elaborate on the role of RFOs in developing a FAIR funding model to support the FAIR RDM in the funding cycle, integrated with research community specific guidance, criteria and metadata, and enabling automatic assessments of progress and output from RDM. The model facilitates to create research data with a high level of FAIRness that are meaningful for a research community. To fully benefit from the model, RFOs, research institutions and service providers need to implement machine actionability in their FAIR RDM tools and procedures. As many stakeholders still need to get familiar with “human actionable” FAIR data practices, the introduction of the model will be stepwise, with an active role of the RFOs in driving FAIR RDM processes as effectively as possible.

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          FAIR Principles: Interpretations and Implementation Considerations

          The FAIR principles have been widely cited, endorsed and adopted by a broad range of stakeholders since their publication in 2016. By intention, the 15 FAIR guiding principles do not dictate specific technological implementations, but provide guidance for improving Findability, Accessibility, Interoperability and Reusability of digital resources. This has likely contributed to the broad adoption of the FAIR principles, because individual stakeholder communities can implement their own FAIR solutions. However, it has also resulted in inconsistent interpretations that carry the risk of leading to incompatible implementations. Thus, while the FAIR principles are formulated on a high level and may be interpreted and implemented in different ways, for true interoperability we need to support convergence in implementation choices that are widely accessible and (re)-usable. We introduce the concept of FAIR implementation considerations to assist accelerated global participation and convergence towards accessible, robust, widespread and consistent FAIR implementations. Any self-identified stakeholder community may either choose to reuse solutions from existing implementations, or when they spot a gap, accept the challenge to create the needed solution, which, ideally, can be used again by other communities in the future. Here, we provide interpretations and implementation considerations (choices and challenges) for each FAIR principle.
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            A Generic Workflow for the Data FAIRification Process

            The FAIR guiding principles aim to enhance the Findability, Accessibility, Interoperability and Reusability of digital resources such as data, for both humans and machines. The process of making data FAIR (“FAIRification”) can be described in multiple steps. In this paper, we describe a generic step-by-step FAIRification workflow to be performed in a multidisciplinary team guided by FAIR data stewards. The FAIRification workflow should be applicable to any type of data and has been developed and used for “Bring Your Own Data” (BYOD) workshops, as well as for the FAIRification of e.g., rare diseases resources. The steps are: 1) identify the FAIRification objective, 2) analyze data, 3) analyze metadata, 4) define semantic model for data (4a) and metadata (4b), 5) make data (5a) and metadata (5b) linkable, 6) host FAIR data, and 7) assess FAIR data. For each step we describe how the data are processed, what expertise is required, which procedures and tools can be used, and which FAIR principles they relate to.
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              The “A” of FAIR – As Open as Possible, as Closed as Necessary

              In order to provide responsible access to health data by reconciling benefits of data sharing with privacy rights and ethical and regulatory requirements, Findable, Accessible, Interoperable and Reusable (FAIR) metadata should be developed. According to the H2020 Program Guidelines on FAIR Data, data should be “as open as possible and as closed as necessary”, “open” in order to foster the reusability and to accelerate research, but at the same time they should be “closed” to safeguard the privacy of the subjects. Additional provisions on the protection of natural persons with regard to the processing of personal data have been endorsed by the European General Data Protection Regulation (GDPR), Reg (EU) 2016/679, that came into force in May 2018. This work aims to solve accessibility problems related to the protection of personal data in the digital era and to achieve a responsible access to and responsible use of health data. We strongly suggest associating each data set with FAIR metadata describing both the type of data collected and the accessibility conditions by considering data protection obligations and ethical and regulatory requirements. Finally, an existing FAIR infrastructure component has been used as an example to explain how FAIR metadata could facilitate data sharing while ensuring protection of individuals.
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                Author and article information

                Journal
                Data Intelligence
                Data Intelligence
                MIT Press - Journals
                2641-435X
                January 2020
                January 2020
                : 2
                : 1-2
                : 171-180
                Affiliations
                [1 ]The Netherlands Organization for Health Research and Development (ZonMw), 2509 AE, The Hague, The Netherlands
                [2 ]Health Research Board (HRB), Dublin 2, DO2 H638, Ireland
                Article
                10.1162/dint_a_00039
                a655e4e7-9f33-4b72-a476-759e0c60ad81
                © 2020
                History

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