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      Aids to management of headache disorders in primary care (2nd edition) : on behalf of the European Headache Federation and Lifting The Burden: the Global Campaign against Headache

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          Abstract

          The Aids to Management are a product of the Global Campaign against Headache, a worldwide programme of action conducted in official relations with the World Health Organization. Developed in partnership with the European Headache Federation, they update the first edition published 11 years ago.

          The common headache disorders (migraine, tension-type headache and medication-overuse headache) are major causes of ill health. They should be managed in primary care, firstly because their management is generally not difficult, and secondly because they are so common. These Aids to Management, with the European principles of management of headache disorders in primary care as the core of their content, combine educational materials with practical management aids. They are supplemented by translation protocols, to ensure that translations are unchanged in meaning from the English-language originals.

          The Aids to Management may be individually downloaded and, as is the case for all products of the Global Campaign against Headache, are available without restriction for non-commercial use.

          Electronic supplementary material

          The online version of this article (10.1186/s10194-018-0899-2) contains supplementary material, which is available to authorized users.

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          The global burden of headache: a documentation of headache prevalence and disability worldwide.

          This study, which is a part of the initiative 'Lifting The Burden: The Global Campaign to Reduce the Burden of Headache Worldwide', assesses and presents all existing evidence of the world prevalence and burden of headache disorders. Population-based studies applying International Headache Society criteria for migraine and tension-type headache, and also studies on headache in general and 'chronic daily headache', have been included. Globally, the percentages of the adult population with an active headache disorder are 46% for headache in general, 11% for migraine, 42% for tension-type headache and 3% for chronic daily headache. Our calculations indicate that the disability attributable to tension-type headache is larger worldwide than that due to migraine. On the World Health Organization's ranking of causes of disability, this would bring headache disorders into the 10 most disabling conditions for the two genders, and into the five most disabling for women.
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            Lifting the burden: The global campaign against headache.

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              From translation to version management: a history and review of methods for the cultural adaptation of the EuroQol five-dimensional questionnaire.

              The EuroQol five-dimensional (EQ-5D) questionnaire is used worldwide as a patient-reported outcome (PRO) instrument for the measurement and valuation of health. Several variants of the instrument now exist, including versions with three and five levels of severity and one for respondents aged 8 to 14 years. From the outset, a demand for new language versions of the EQ-5D questionnaire meant that there was a need to implement standardized procedures, which ensured that such versions were produced following international recommendations for the cultural adaptation of patient-reported outcomes. The availability of new variants and formats of the instrument, such as telephone-administered or electronic formats, complicated the task of providing and controlling the quality of cultural adaptations. Although cultural adaptations of the instrument are widely used, the procedures currently used to produce them have not been widely disseminated. The present article therefore describes the evolution of the production of other language versions of the instrument from the earliest days of simultaneous production and translation of the EQ-5D questionnaire to the more recent, broader-based strategy of version management. We describe current adaptation procedures and innovations within those procedures. We also describe how version management is organized within the EuroQol Group, review aspects related to quality control, and provide an overview of the number of currently available language versions for each variant of the EQ-5D questionnaire: three-level, five-level, and youth versions. We conclude by discussing some of the relevant issues related to cultural adaptation for frequently used instruments such as the EQ-5D questionnaire. © 2014 International Society for Pharmacoeconomics and Outcomes Research (ISPOR) Published by International Society for Pharmacoeconomics and Outcomes Research (ISPOR) All rights reserved.
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                Author and article information

                Contributors
                t.steiner@imperial.ac.uk
                rigmor.jensen@regionh.dk
                Zaza.Katsarava@uk-essen.de
                mattias.linde@ntnu.no
                anne.macgregor@sinoragram.co.uk
                osipova_v@mail.ru
                Koen.Paemeleire@uzgent.be
                jes.olesen@regionh.dk
                michele.peters@DPH.ox.ac.uk
                paolo.martelletti@uniroma1.it
                Journal
                J Headache Pain
                J Headache Pain
                The Journal of Headache and Pain
                Springer Milan (Milan )
                1129-2369
                1129-2377
                21 May 2019
                21 May 2019
                2019
                : 20
                : 1
                : 57
                Affiliations
                [1 ]ISNI 0000 0001 1516 2393, GRID grid.5947.f, Department of Neuromedicine and Movement Science, , NTNU Norwegian University of Science and Technology, ; Edvard Griegs Gate, Trondheim, Norway
                [2 ]ISNI 0000 0001 2113 8111, GRID grid.7445.2, Division of Brain Sciences, , Imperial College London, ; London, UK
                [3 ]Danish Headache Centre, Department of Neurology, University of Copenhagen, Rigshospitalet Glostrup, Glostrup, Denmark
                [4 ]Department of Neurology, Evangelical Hospital Unna, Unna, Germany
                [5 ]ISNI 0000 0001 2187 5445, GRID grid.5718.b, Medical Faculty, , University of Duisburg-Essen, ; Essen, Germany
                [6 ]ISNI 0000 0004 0627 3560, GRID grid.52522.32, Norwegian Advisory Unit on Headache, , St. Olavs Hospital, ; Trondheim, Norway
                [7 ]ISNI 0000 0001 2171 1133, GRID grid.4868.2, Centre for Neuroscience and Trauma, Blizard Institute of Cell and Molecular Science, Barts and the London School of Medicine and Dentistry, ; London, UK
                [8 ]ISNI 0000 0001 2288 8774, GRID grid.448878.f, Research Department of Neurology, , First “I. Sechenov” Moscow State Medical University, ; Moscow, Russian Federation
                [9 ]Research Center for Neuropsychiatry, Moscow, Russian Federation
                [10 ]ISNI 0000 0004 0626 3303, GRID grid.410566.0, Department of Neurology, , Ghent University Hospital, ; Ghent, Belgium
                [11 ]ISNI 0000 0004 1936 8948, GRID grid.4991.5, Health Services Research Unit, Nuffield Department of Population Health, , University of Oxford, ; Oxford, UK
                [12 ]GRID grid.7841.a, Department of Clinical and Molecular Medicine, , Sapienza University, ; Rome, Italy
                [13 ]ISNI 0000 0004 1757 123X, GRID grid.415230.1, Regional Referral Headache Centre, , Sant’Andrea Hospital, ; Rome, Italy
                Author notes

                This article, as a Consensus Article from experts in the topic, has been reviewed internally among Authors. Its importance in the field and its suitability to be published in The Journal of Headache and Pain has been evaluated and confirmed by an independent The Journal of Headache and Pain Editorial Board Member.

                Article
                899
                10.1186/s10194-018-0899-2
                6734476
                31113373
                ad28dcf1-3cc7-4187-a160-d394ccafe4b4
                © The Author(s). 2019

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

                History
                : 20 January 2018
                : 31 July 2018
                Categories
                Consensus Article
                Custom metadata
                © The Author(s) 2019

                Anesthesiology & Pain management
                headache disorders,migraine,tension-type headache,cluster headache,medication-overuse headache,trigeminal neuralgia,persistent idiopathic facial pain,classification,diagnosis,management,primary care,guidelines,red flags,patient information leaflets,follow-up,instruments,outcome measures,headache calendar,headache diary,burden of disease,translation,global campaign against headache,european headache federation

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