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      Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis

      review-article
      , BSc, MBA, PhD 1 , , , GCTertEd, GDInfSys, MInfSys, PhD 2
      (Reviewer), (Reviewer)
      Journal of Medical Internet Research
      JMIR Publications
      electronic personal health records, PHR, functionality synopsis, value analysis, consumer health informatics

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          Abstract

          Background

          Contemporary personal health record (PHR) technologies offer a useful platform for individuals to maintain a lifelong record of personally reported and clinically sourced data from various points of medical care.

          Objective

          This paper presents an integrative review and synthesis of the extant literature on PHRs. This review draws upon multiple lenses of analysis and deliberates value perspectives of PHRs at the product, consumer, and industry levels.

          Methods

          Academic databases were searched using multiple keywords related to PHRs for the years 2001-2020. Three research questions were formulated and used as selection criteria in our review of the extant literature relevant to our study.

          Results

          We offer a high-level functional utility model of PHR features and functions. We also conceptualize a consumer value framework of PHRs, highlighting the applications of these technologies across various health care delivery activities. Finally, we provide a summary of the benefits of PHRs for various health care constituents, including consumers, providers, payors, and public health agencies.

          Conclusions

          PHR products offer a myriad of content-, connectivity-, and collaboration-based features and functions for their users. Although consumers benefit from the tools provided by PHR technologies, their overall value extends across the constituents of the health care delivery chain. Despite advances in technology, our literature review identifies a shortfall in the research addressing consumer value enabled by PHR tools. In addition to scholars and researchers, our literature review and proposed framework may be especially helpful for value analysis committees in the health care sector that are commissioned for the appraisal of innovative health information technologies such as PHRs.

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          Most cited references122

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          The integrative review: updated methodology.

          The aim of this paper is to distinguish the integrative review method from other review methods and to propose methodological strategies specific to the integrative review method to enhance the rigour of the process. Recent evidence-based practice initiatives have increased the need for and the production of all types of reviews of the literature (integrative reviews, systematic reviews, meta-analyses, and qualitative reviews). The integrative review method is the only approach that allows for the combination of diverse methodologies (for example, experimental and non-experimental research), and has the potential to play a greater role in evidence-based practice for nursing. With respect to the integrative review method, strategies to enhance data collection and extraction have been developed; however, methods of analysis, synthesis, and conclusion drawing remain poorly formulated. A modified framework for research reviews is presented to address issues specific to the integrative review method. Issues related to specifying the review purpose, searching the literature, evaluating data from primary sources, analysing data, and presenting the results are discussed. Data analysis methods of qualitative research are proposed as strategies that enhance the rigour of combining diverse methodologies as well as empirical and theoretical sources in an integrative review. An updated integrative review method has the potential to allow for diverse primary research methods to become a greater part of evidence-based practice initiatives.
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            What Is Value in Health Care?

            New England Journal of Medicine, 363(26), 2477-2481
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              Writing Integrative Literature Reviews: Guidelines and Examples

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                Author and article information

                Contributors
                Journal
                J Med Internet Res
                J Med Internet Res
                JMIR
                Journal of Medical Internet Research
                JMIR Publications (Toronto, Canada )
                1439-4456
                1438-8871
                April 2021
                29 April 2021
                : 23
                : 4
                : e26877
                Affiliations
                [1 ] Telfer School of Management University of Ottawa Ottawa, ON Canada
                [2 ] School of Engineering & Technology Central Queensland University Melbourne Australia
                Author notes
                Corresponding Author: Umar Ruhi umar.ruhi@ 123456uottawa.ca
                Author information
                https://orcid.org/0000-0002-8232-6121
                https://orcid.org/0000-0003-0061-7206
                Article
                v23i4e26877
                10.2196/26877
                8120425
                33866308
                b858969a-c94a-4990-a032-9d5288ab3c8f
                ©Umar Ruhi, Ritesh Chugh. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 29.04.2021.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.

                History
                : 31 December 2020
                : 25 January 2021
                : 30 January 2021
                : 15 April 2021
                Categories
                Review
                Review

                Medicine
                electronic personal health records,phr,functionality synopsis,value analysis,consumer health informatics

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