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      The Chronic Care Model and Technological Research and Innovation: A Scoping Review at the Crossroads

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          Abstract

          Background

          Information and communication technologies (ICT) are key to optimizing the outcomes of the Chronic Care Model (CCM), currently acknowledged as the best synthesis of available evidence for chronic illness prevention and management. At the same time, CCM can offer a needed framework for increasing the relevance and feasibility of ICT innovation and research in health care. Little is known about how and to what extent CCM and ICT research inform each other to leverage mutual strengths. The current study examines: What characterizes work being done at the crossroads of CCM and ICT research and innovation?

          Objective

          Our aim is identify the gaps and potential that lie between the research domains CCM and ICT, thus enabling more substantive questions and opportunities for accelerating improvements in ICT-supported chronic care.

          Methods

          Using a scoping study approach, we developed a search strategy applied to medical and technical databases resulting in 1054 titles and abstracts that address CCM and ICT. After iteratively adapting our inclusion/exclusion criteria to balance between breadth and feasibility, 26 publications from 20 studies were found to fulfill our criteria. Following initial coding of each article according to predefined categories (eg, type of article, CCM component, ICT, health issue), a 1st level analysis was conducted resulting in a broad range of categories. These were gradually reduced by constantly comparing them for underlying commonalities and discrepancies.

          Results

          None of the studies included were from technical databases and interventions relied mostly on “old-fashioned” technologies. Technologies supporting “productive interactions” were often one-way (provider to patient), and it was sometimes difficult to decipher how CCM was guiding intervention design. In particular, the major focus on ICT to support providers did not appear unique to the challenges of chronic care. Challenges in facilitating CCM components through ICT included poorly designed user interfaces, digital divide issues, and lack of integration with existing infrastructure.

          Conclusions

          The CCM is a highly influential guide for health care development, which recognizes the need for alignment of system tools such as ICT. Yet, there seem to be alarmingly few touch points between the subject fields of “health service development” and “ICT-innovation”. Bridging these gaps needs explicit and urgent attention as the synergies between these domains have enormous potential. Policy makers and funding agencies need to facilitate the joining of forces between high-tech innovative expertise and experts in the chronic care system redesign that is required for tackling the current epidemic of long-term multiple conditions.

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          Most cited references35

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          Evidence on the Chronic Care Model in the new millennium.

          Developed more than a decade ago, the Chronic Care Model (CCM) is a widely adopted approach to improving ambulatory care that has guided clinical quality initiatives in the United States and around the world. We examine the evidence of the CCM's effectiveness by reviewing articles published since 2000 that used one of five key CCM papers as a reference. Accumulated evidence appears to support the CCM as an integrated framework to guide practice redesign. Although work remains to be done in areas such as cost-effectiveness, these studies suggest that redesigning care using the CCM leads to improved patient care and better health outcomes.
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            Organizing care for patients with chronic illness.

            Usual medical care often fails to meet the needs of chronically ill patients, even in managed, integrated delivery systems. The medical literature suggests strategies to improve outcomes in these patients. Effective interventions tend to fall into one of five areas: the use of evidence-based, planned care; reorganization of practice systems and provider roles; improved patient self-management support; increased access to expertise; and greater availability of clinical information. The challenge is to organize these components into an integrated system of chronic illness care. Whether this can be done most efficiently and effectively in primary care practice rather than requiring specialized systems of care remains unanswered.
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              Improving chronic illness care: translating evidence into action.

              The growing number of persons suffering from major chronic illnesses face many obstacles in coping with their condition, not least of which is medical care that often does not meet their needs for effective clinical management, psychological support, and information. The primary reason for this may be the mismatch between their needs and care delivery systems largely designed for acute illness. Evidence of effective system changes that improve chronic care is mounting. We have tried to summarize this evidence in the Chronic Care Model (CCM) to guide quality improvement. In this paper we describe the CCM, its use in intensive quality improvement activities with more than 100 health care organizations, and insights gained in the process.
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                Author and article information

                Contributors
                Journal
                J Med Internet Res
                J. Med. Internet Res
                JMIR
                Journal of Medical Internet Research
                JMIR Publications Inc. (Toronto, Canada )
                1439-4456
                1438-8871
                February 2015
                06 February 2015
                : 17
                : 2
                : e25
                Affiliations
                [1] 1Norwegian Center for Integrated Care and Telemedicine University Hospital of North Norway TromsoeNorway
                [2] 2Center for Shared Decision Making and Collaborative Care Research Oslo University Hospital OsloNorway
                [3] 3The National Research Center in Complementary and Alternative Medicine University of Tromsø TromsøNorway
                Author notes
                Corresponding Author: Deede Gammon deede.gammon@ 123456telemed.no
                Author information
                http://orcid.org/0000-0002-9676-2442
                http://orcid.org/0000-0002-3294-4263
                http://orcid.org/0000-0002-3778-000X
                http://orcid.org/0000-0003-3487-4585
                http://orcid.org/0000-0001-6521-4884
                Article
                v17i2e25
                10.2196/jmir.3547
                4342659
                25677200
                c7dd0451-b299-4400-81f5-ae3fb8fd17b7
                ©Deede Gammon, Gro Karine Rosvold Berntsen, Absera Teshome Koricho, Karin Sygna, Cornelia Ruland. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 06.02.2015.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.

                History
                : 17 May 2014
                : 30 July 2014
                : 26 August 2014
                : 13 December 2014
                Categories
                Original Paper
                Original Paper

                Medicine
                chronic care model,chronic disease management,information and communication technology,telemedicine,ehealth,computer science,medical informatics,scoping review

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